Tag Archives: Personal

“Hope” Springs Forth: New Article Out in Sociology of Health and Illness!

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In this post, Xan Nowakowski reflects on a recent publication in Sociology of Health and Illness concerning the personal, political, and structural experience of managing chronic conditions in everyday life.

Hello readers! If you’ve been following WWIH for a while, or just know any of us editors outside of the blog, you may have heard a bit about my new article in Sociology of Health and Illness. It’s a critical analysis of my experiences with a prescription drug that has excellent benefits and a lot of potential side effects, and the many sociological lessons learned from trying to find the right balance between the two.

A lot of the illness management literature deconstructs major changes in health status, and the impacts of these events on identity formation and performance. This literature doesn’t yet contain as diverse an array of information and analysis on the day-to-day nuances of living with chronic conditions. I’m hoping to inspire other scholars to delve more into that area, and to do so with a richly intersectional perspective on relationships between health and social life.

To have this article published in Sociology of Health and Illness is a dream come true, and the product of about two years’ worth of work. So I’m thrilled to report that “Hope Is a Four-Letter Word: Riding the Emotional Rollercoaster of Illness Management” is now available online, along with an accompanying video abstract introducing the piece. The print version of the article will appear later this year. In the meantime, if you want to read the article and are having trouble getting access to the online version, just drop me an email.

I also encourage everyone to share the link to the online version with others who may be interested in this topic. I quite deliberately constructed this article as a narrative with theoretical commentary, not a research methods piece. It’s accessible for a wide variety of audiences, not just academics. I wrote the paper with patients, families, clinicians, advocates, and caregivers all well in mind. WWIH readers will recognize a lot of our key themes here: intersectionality of multiple social positions and roles, gender performances and violations of norms, racial and ethnic inequality, symbolic interactionism as a tool for understanding health experience, and of course a hefty dose of storytelling!

An essential contribution of this piece is detailed insight into the interplay between personality and social structure in the experience of chronic illness and the management thereof. By using my own voice to explore the complexities of different theories of social inequality, I hope to help build new ground for dialogue about what chronic illness feels like day-to-day that can inspire improvements in both community support and clinical care. I also hope to open doors for other scholars who occupy one or more marginalized social locations to share and critically analyze their own stories of illness management in everyday life.

On not Writing

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Erika Gisela Abad has a Ph.D. in American Studies, and works at Center for Puerto Rican Studies investigating intersectionality, cultural experience, and oral history among Puerto Rican communities and families.  In this post, Erika reflects on how her research in Puerto Rican Chicago sparks tension and memory in dialogues and debates with her mother.  

I struggle with not writing. Sitting with my mom after a long day’s work watching ridiculous TV shows on streaming media. I do this in the midst of professional uncertainty when my conscious tells me it is important to, well, send out applications. A woman struggling with the invisibility of her work, of her motherhood, closing the computer allows me to make her visible in the mundanity of the everyday to which we’ve arrived.

A mixed class Latina the second to finish college, the first PhD, I got this degree because making a living as a writer a mentor once told me, was going to be difficult. In the place many predicted the MFA would land me, I sit with my mom because of the reasons I write:

To heal, to release anger, to get to truths neither speaking nor working reveal. Drafting and talking through to forgive what moments trauma doesn’t want to let go. As I once wrote a mentor, it’s about getting to the table and trying to write what the other person coming to the table could or would look like. It’s about practicing with characters and metaphors how to listen through the trauma, whether the trauma be colonial, patriarchal or material – whether the trauma be that which has been named or that which must be kept invisible. Sometimes the struggle to survive demands struggles be kept silent. Human suffering, as inevitable as it is, often gets lost in the pursuit of fantasy as well as forgetting. Coming to the table is also about assessing whether the wheel turning revolution can be rebuilt or if the pieces of memory missing – memory missing because of what can’t yet be named – requires so many of us to rebuild it.

And sitting with my mom is about waiting, waiting for memory to reappear. And her memories awaken in the memories of others I record as an oral historian. Memories of parking lots turned into playgrounds, memories of late buses to colleges she never imagined. Memories of drinking Dr. Pepper for the first time, her comfort food, the comfort of being able to know more, taste more than poverty and patriarchy permitted to a young woman growing up where Puerto Ricans were trying to make place. These memories give her life beyond the college she never finished for no other reason than being by herself. Her stories lifting up from computer screens in a voice still weary of helping and reaching, come to life beyond the place of making meaning of leaving that requires returning, overwhelmed by isolation.

And I sit with that, when our skin color differences do not write away the sameness of racism we experience. A paleness that encourages forgetting that my brownness writes on the page, for the stage in ways that have her admit—not to me—that the fight continues. Responses to racism are coded in the traumas we share. Retorts and resistance colored by the adverse childhood experiences that divide us. Sitting is all she wants at the end of the day, at the end of days running, at the end of years climbing to find stable ground in which to root, in which to lift me, among her other children higher. My hands race and wring, legs twitch because work, all the kinds, exige movement.

And I struggle to not write in those moments: moments where the cogs in my head turn too fast for her to keep up; when the questions she asks receive huffs and stomps out looking for roads bigger than the rooms we occupy. In those moments where the grumbles she makes about the car driver who works when she doesn’t, because the car that is freedom to her and is more work to me in ways that put her back on the bus, on the train to move because her fixed time challenges the time that, for me, remains in constant question. The need for work fuels us in speeds and codes the other doesn’t understand.

It takes seconds to remember a woman speaking of a girl ashamed and strained by the laundry she carries on the bus. And I see my mom there, then, aching and taking days off to not have to, again cross the street with bags and baskets. She bought to own to never again walk or rent or borrow. She works to have the luxury, luxuries she couldn’t have back then, then when Puerto Ricans were beginning to make meaning, Puerto Ricans who form the history I collect. Her life fills up in the margins of those stories, of those whose mark on Puerto Rican Chicago get printed in newspapers, shine in their awards, appear on screens to see. Those Puerto Ricans now, in between arguments and questions, spark her to remember her story. Histories she lived differently, differently for reasons the more I learn from others, the more she reveals.

So I stretch and listen and sit still, waiting, waiting till she’s asleep to pull out the books, to open the pc, to take out the pen and paper to write. Because writing is still needed to heal, to move, to forgive, to let go, to uncover, to remember. But not writing—not writing in those moments I steal from reason, from economy—allows me to say thank you, thank you the only way a struggling writer knows how. By counting the wrinkles in her face, the sighs in her stories, knowing that, in between them, remain moments and movements to keep me writing.

When it hurts not to write

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In this post, J reflects on their writing processes, and asks readers to reflect on these aspects in their own lives and the way writing or feeling unable to write at a given moment feel and take shape in our own lives.

How do you go about writing?  What is your process?  What do you do when you cannot write for any given reason?  Do you look forward to writing or is it something you have to make yourself do?  Do you operate via a structured schedule, with set time limits and goals, and other rules to keep you on track?  By contrast, do you operate in a more fluid manner writing when the feeling comes or an idea presents itself or some combination of these and other factors?  Do you need to be indoors, outdoors, anywhere specific to write?  Do you keep little handwritten notes or recordings on your phone or maybe a journal littered with in progress ideas and analyses?  These are simply a few of the multitude of options and variations I have come across among other writers over the years.  In this post, I want to share my own experience to encourage others to reflect on how you go about the process of writing and what writing is like for you.

In my case, writing is simultaneously a major part of how I make a living and a huge chunk of my personal life.  Very few things that I have encountered in this world can match how wonderful it feels to write.  I write creatively, academically, publicly, privately, empirically, theoretically, collaboratively, and solo, and attempt to write as much as possible because it is a prime site of fun, pleasure, and enjoyment for me throughout my life.  Despite these lovely aspects of writing in my world, it is also deeply painful for me when I cannot write – I feel lost, like a part of me is missing – and no matter the reason, anytime I cannot write my moods, emotions, and even self concept (i.e., my own estimation of who I am, what I’m worth, etc) suffer greatly.  Put simply, for me writing is a delicate ongoing balance between pleasure (when I can do it I am filled with joy) and pain (when I cannot do it I feel terrible).  I can’t pretend this is the same or different for other writers, but this is what it feels like for me.

All of the above is complicated by the fact that I (best I can tell) have no control over whether or not I can write at a given time.  Likely tied to other elements of the way my brain operates, I go through shifts or fluctuations wherein sometimes writing is the easiest, most natural, and smooth experience in the world, and at other times I just cannot do it no matter what I try or what deadlines or projects I have at my disposal at the time.  In the former case, I’m basically in paradise writing every day and rather communicative in other ways.  In the latter case, however, my entire mood shifts downward, I become very quiet and isolated, and I feel broken or lost.  This ongoing experience means that I write in cycles – or bursts as a close friend of mine termed the process a while back – wherein the difference in me, in what I produce, in how I feel, in how I communicate, and in how I spend my time is noticeable to those closet to me (in fact, many times these wonderful people get very worried about me during “not writing” times because of how down, distraught, and isolated I become and I’m quite lucky to have people who care so much in those moments and reach out to check on me).

This cycle in many ways dictates or shapes the rest of my life.  From August 2014 until the end of January 2015, for example, I could not write, and as is generally the case during such a “not writing” period I was very isolated, depressed (both emotionally and in terms of clinical symptoms) most of the time, and people I collaborate with had to basically wait until the part of me that writes – as one friend put it – “came back to life.”  On the other hand, from February 2015 until the end of November 2015 I experienced a nonstop burst wherein I wrote every day, filled up the inboxes of colleagues, collaborators and friends, and felt happy, satisfied and able to be social (as much as I ever am).  At present, I’m somewhere between the two extremes, which is honestly a new place for me.  I can write a little bit, but its harder than when I’m “on” one of my bursts, but I also have days where I just stare at the screen and want to (or do) cry and scream.  I don’t know if this is a new addition to the cycles or a one time thing, but I feel like I’m located in between the two versions of me I’ve become comfortable with.

This newfound in between “writing” and “not writing” led me to wonder what writing is like for other people.  While this is something I have talked with many people about, I thought it might be useful to ask on a broader scale what the writing processes looks like for others, and also to offer my own experience for anyone who has yet to learn that there is not just one way to go about writing (a curious lesson I come across that some undergrad and graduate students have picked up from some unknown sources).  After years of seeking advice, figuring out my own methods, and working with people who have very different methods (for example both Xan and Lain here at Write Where It Hurts have different writing processes and experiences than I do), I’ve become fairly certain that there are a wide variety of ways people go about the process of writing.  As a result, I want to encourage others to think about these processes, what works and doesn’t work for a given person, and how we can utilize such insights to both Write Where It Hurts and manage the ways it may hurt when we have trouble writing.

Tag, You’re Ill: My Decision to Wear a Medical Alert Bracelet

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In this week’s post, Xan reflects on medical sign equipment and the self through the example of decision-making regarding medical alert bracelets.

I started my year in South Tampa with a dead car battery, a small moment of panic, and a series of tough realizations about my health and life. Turning 32 during the winter break made me reflect on how far I have come with my physical and mental health, and my ability to engage in effective illness management in all of those areas. I have never felt happier to grow older or to continue to challenge myself with new goals for well living, both within and outside of my professional life. At this point in my journey, giving myself those challenges means really moving out of my comfort zone and daring to dismantle some of the boundaries I previously erected in order to feel like I belong.

A curious artifact of my illness experience on which I’ve increasingly focused attention via critical autoethnography research is my staunch refusal to use any devices that obviously signal to others that I am ill.   Despite multiple loved ones and colleagues persistently reminding me that I might enjoy much better comfort in meeting spaces and at community events were I to carry a “donut pillow” to pad my sit bones on hard seating surfaces, I still find the prospect incredibly unpleasant. Reflecting on my reactions to this very intelligent suggestion always brings me to the same conclusion: Although I have built my entire career on using my own experiences of chronic illness to conduct impactful research and outreach on same, doing that kind of work also means that I mostly control the narrative of my disease.

By contrast, using a medical device—however simple or subtle—gives others very prominent evidence that I have a chronic condition, and allows them to form a wide variety of conclusions about my diagnosis and what my life is like. I suppose I have not really changed that much in some ways, because even though I accepted long ago that my own agency is merely a component of the complex social fabric in which I spend my days, I still feel the urge to control as many things in my environment as I can. The idea that I might not get a chance to shape how others interpret my illness still does not sit well with me.

Of course, this notion is problematic in and of itself. Being an 85-pound adult does invite people to draw all sorts of conclusions about what I live with, some reasonably accurate and some remarkably off-base. For instance, in community settings I have sometimes been mistaken for a methamphetamine or heroin user. These situations are likewise uncomfortable, and perhaps drive me to control what elements of the narrative I still can. Perhaps for this reason more than anything else, I have never worn a medical alert bracelet despite having a heart condition as a result of my autoimmune disease. When my potassium levels dip lower than usual, a bit of excitement or panic can make the Q and T waves of my heartbeat spread so far apart that my heart actually stops for a split second.

Long QT syndrome is a tough condition to miss if you know what to look for. Just look for the person who randomly passes out with seemingly no rhyme or reason, only to wake up fully alert moments later. It’s common in people with a history of severe hypokalemia, which often owes to chronic diseases of the mucous membranes and/or kidneys. My own disease is very similar to cystic fibrosis and may in fact be a rare form of CF—genetic tests remain inconclusive. So my whole GI tract is affected, as are my kidneys to some degree.

As a result, my body requires large amounts of supplemental potassium to sustain itself and keep my heart functioning. I’m also hypotensive thanks to a family history of low blood pressure, which doesn’t help matters. Neither does the thiamine deficiency I’ve become vulnerable to because of all the scarring on my small intestine, which in turn can exacerbate heart problems. So I pass out sometimes—when I’m excited, when I’m panicked, when I’m dehydrated, when I’m fighting a virus… I collapse and hit the deck, then wake up a few seconds later, usually with several very confused people surrounding me.

So far, I’ve been lucky. I’ve never lost consciousness for that long—maybe 60 seconds during the worst episode I’ve had to date, where I collapsed at the entrance to a busy store. I’ve never passed out in a place where I would have been in danger physically. I’ve fainted in showers and living rooms, in quiet parking lots and in my partner’s arms. I’ve never gotten a concussion, never broken bones from the fall. When the fluttering starts in my chest and I start to feel my body lifting off from the ground, as if I will finally fly away from the pain it has caused me, I know what’s coming and I let it happen. I just crumple like a marionette with slack strings, folding gently to the ground. I relax and keep my body loose to minimize my chances of getting seriously hurt.

I also try to calm myself during moments of panic so things do not progress to that point—a lofty challenge when I am still figuring out how to live well with PTSD, but one I conquer more and more with each passing day. And when I invariably wake again, still in the same body with all its same foibles, I try to make light of things and share a laugh with anyone who has come to help. But it isn’t really funny, and on the few occasions this has happened in recent months, I have increasingly felt that the joke may be on me. I reflected on all of this as I lay on the pavement outside our apartment in Palma Ceia, cold sweat on my brow and heart fluttering beneath my ribs. My partner stood above me, hand on phone in case this would be the one time where I did need an ambulance. I blinked, vision coming back into focus, looking up at my partner with a sheepish expression.

I should probably get a medical alert bracelet, shouldn’t I. My partner looks down at me, arms crossed, eyebrows raised. Uh-huh. I accept help getting up, which represents substantial progress in and of itself. This is gonna be an adjustment, I say. I don’t usually wear anything that would tell people I’m sick. I know it’s kind of obvious but I have this illusion that I control the message all the time. And this makes it obvious in a really big way. I guess I’m just gonna have to be okay with it. I want to be around for a long time and that’s not going to happen if some well-meaning paramedic shoots me up with adrenaline because they think I’m a drug user who has overdosed. My partner relaxes and listens, satisfied that my usual mile-a-minute sharing of my thoughts means I’m doing all right.

I let my partner find me an auto parts store nearby that will replace the battery and send me on my way back north to get started with spring semester teaching. We watch through the store windows as the old battery comes out and the new one goes in, me talking endlessly about the significance of deciding to order a medical alert bracelet. I talk about what I’ll engrave on the back. I already know I’m going to get one with rear engraving—my compromise with myself about discretion and narrative control. I think about my bracelet the whole drive home: what it will say, what it will look like, how I will wear it. I think about getting a wallet card to hold all the other information I cannot possibly fit on a bracelet that might be of use to first responders.

I think about how I’m going to talk to my parents about all of this. They know I have “a little long QT”, as they like to put it. But they don’t really know that it still flares up sometimes, even with my potassium and thiamine levels managed with supplements. I debate just not saying anything, to them or my colleagues or anyone else. And then somewhere between Tampa and Tallahassee I decide that I’m just beyond sick of hiding, of erecting these arbitrary boundaries in a life where my illness is already common knowledge because I think somehow they will protect me, allow me to keep control of a body that has been killing me since the day I joined this world. Perhaps I’ve finally realized that if I behave like a prisoner of my body, I become one. Controlling the narrative doesn’t give me the kind of freedom that I once thought it might. I suppose I’m beginning to feel okay with just how much I cannot control in this body, in this life.

Back at home, I spend hours researching different bracelet options, settling on a professionally engraved tag for which I can make my own bands. I’ve always loved bracelets—a signature part of my aesthetic for years—and figured that would be a good way to make the experience less intimidating. It is a whole new world of scary, even if you’ve been very open about your illness for many years as I have and even if you have made it a huge focus in your career, to put it right there on your arm for anyone and everyone to see. A “scarlet A” of sorts, a piece of sign equipment branding you as different. I thought about this as I deliberately chose a tag design with a black caduceus symbol. Then I spent several hours mulling over the engraving content—making notes, stepping away, coming back to it, revising. If I was going to put the core of my life on my wrist to speak for me at times when I could not speak for myself, I was not going to take the process lightly.

My medical alert tag arrives in the mail a couple weeks later, and I make a simple band for it with supplies purchased from a craft store. I begin wearing it the next morning. The tag is a simple steel oval with a black caduceus symbol on the front side, and on the back several lines of engraving:

 

AUTOIMMUNE DISEASE

LONG QT & HYPOTENSION

MULTIPLE MEDICATIONS

INFO ON WALLET CARD

J (SPOUSE): XXX-XXX-XXXX

 

I’ve accepted that this is something I need to do to live the best life I can. I’ve made every effort to ensure that I will be happy to wear the tag every day, customizing the band exactly to my liking, ensuring that I’ll have no excuses to leave it behind in a drawer. I’ve also accepted that I still have the freedom and agency to tell people who I am, both within the context of my chronic illness and outside of it. I won’t become a walking stereotype just because I wear a medical alert tag. I’m still me, which entails living with a chronic condition but hardly ends there.

I also have peace of mind from knowing that something so small and simple can advocate for me when I cannot speak up for myself. So do my parents, who nod sagely and say I’m making a smart choice when I tell them I’ve decided to start wearing an alert bracelet. So does my partner, who quietly breathes a sigh of relief over the phone when I say I’ve ordered the tag. I’m not usually much for New Year’s resolutions, but I feel good about making and fulfilling this one. Since the tag arrived, I’ve worn it proudly—hanging a lantern on it, using it in my teaching and community outreach, the same way I’ve done with so many other elements of my illness experience. It’s just one more way of writing where it hurts.

Experiencing Gender Variation

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Last week, J. Sumerau discussed the development and ongoing recruitment for the Transgender Religion Survey. In this post, J. discusses zir own gender experience, and the importance of amplifying the voices and experiences of gender variant people.  

It has been over two decades since I first heard the terms crossdresser and transsexual. I still feel a smile creep across my face anytime I hear or see these words today even though I rarely use them anymore because once upon a time they gave voice to something I did not yet know how to talk about or make sense of about myself.

As part of an ongoing effort to amplify and document gender variant experiences and voices in scholarly and public discourse, I will use this post to briefly discuss some ways I experience my own gender variation. In so doing, however, it is important to note that my experience is only one of a vast multitude of diverse ways gender variant people experience themselves, sex, gender, and other aspects of this world (for more examples readers may want to start by checking out a new book called Trans/Portraits or other posts wherein people discuss gender variant experiences and options online). In other words, the voices and experiences of gender variant people are as broad and diverse as any other broadly labeled population I have come across to date, and my own experience is only one possibility within this much broader population. I thus offer my own experience as a compliment to ongoing efforts to more broadly disseminate the variety of gender experience throughout our contemporary social world.

Recognizing the diversity and variation within and between gender variant populations is especially important in my case because my own experience fluctuates regularly between various ways people experience gender. For example, there are people who experience more permanent forms of biological and / or social transition as imperative, necessary, and essential to their health, happiness, and well being. As medical research continues to demonstrate, these people need and deserve access, support, and resources for transition, and should be encouraged and affirmed in their transition endeavors at all levels of society. Across the spectrum of gender possibilities, there are people who experience more permanent forms of biological and / or social transition as unnecessary or optional for their health, happiness, and well being in this world. In such cases, the ability to safely transform their appearance, demeanor, or other facets from day to day or within any other time frame, in given circumstances, or in varied ways across the life course represents the gender experience in need of encouragement and affirmation. There are also many variations and nuances people experience between and beyond these two options. Whether one exists on either end of the spectrum I utilize above or somewhere in between or beyond this spectrum in terms of gender, (to me) the core of these experiences lies in the pursuit of autonomy for all people regardless of how they identify with, experience, and make sense of sex and gender in their own lives.

This vast spectrum of gender possibilities is something I confront every day because I tend to fluctuate back and forth between the two options I elaborated above. On some days, I am certain that I will fully transition biologically and socially at some point, and I will spend time looking over the options, researching doctors and procedures, and drawing inspiration from emerging narratives shared by people who transitioned at various points of the life course. At such times, I am certain that I need to transition to be fully satisfied in myself and my life, and I am incredibly grateful that I am lucky enough to have a life partner and close friends I can talk to about how I am feeling, transition plans, and how we will collectively navigate transition processes. On other days, however, I am equally certain that I will never fully transition biologically or socially, and I feel very happy about my ongoing back and forth between masculine and feminine appearances, dressing or otherwise appearing as various gender when I go out at varied times, and my efforts to blend varied elements of myself on any given day. At such times, I am certain that I should not biologically or socially transition in full because fluidity is the road to my own satisfaction, and I am equally grateful that I am lucky enough to have a life partner and close friends I can talk to about and show my fluidity without any pressure to “be only one thing” at any given time.

While the two aforementioned types of days allow me to recognize and appreciate the experiences of people who experience gender in each of these ways, there is unfortunately a third type of day. On this third type of day, I feel torn apart and lost within competing desires to be fluid and to fully transition at the same time. On such days, someone will call me mam or sir depending on my appearance and how they interpret that appearance, and I will want to scream, cry, or disappear because such moments remind me that I do not exist for many people in our world at present. On most such days, I hide in my home to the extent that I can or only go out at night when there are less people around to misgender and / or cisgender me by trying to fit me into their own assumptions and expectations. When I have to go out on such days, I find myself shaking inside and frightened every moment I encounter another person. At such times, I am certain that I need to transition and I am certain that I should not transition at the same time, and I realize all too clearly that I am only free and safe when I am alone or with my life partner and close friends who do not expect me to be a certain type of thing all the time or at any time, but rather help me to manage this type of day anyway they can.

These three types of days repeat throughout my life, and have for a long time now. In the midst of the first type, I see myself in others who seek to and / or accomplish transition in a world that has set numerous unnecessary barriers in their path, and attempts to erase, negatively mark or define, and punish our existence in this world. In the midst of the second type, I see myself in others in search of the freedom and safety to vary who they are in a world that seeks to box everyone into one static option, and often only offers fear, shame, and other forms of punishment for those who refuse to conform. In the midst of the third type, I just try to remember the few experiences I have had in explicitly gender neutral spaces where static, fluid and everywhere in between are welcomed and affirmed, and imagine what our world might be like if such spaces were much more common while I try to feel better about the ongoing battle inside me. In all such cases, however, I am confronted by just how much gender matters to one’s experiences in every facet of our current social world.

This observation especially hits home every time I notice just how differently I am treated when I appear feminine to someone and / or appear to not quite fit “feminine or masculine only” to someone else. In my case, the latter is a much more common experience whereas the former typically happens in darker environments and / or when people approach me from behind while interpreting my long hair, clothing, and / or body language as indicative of a feminine self. The difference in treatment when one is interpreted as masculine and when one is interpreted as feminine is dramatic and obvious. Further, the ways one is treated when they are identified as “possibly assigned male” while wearing or acting in a fashion typically assigned feminine are often terrifying and dangerous. Especially as someone who often can be interpreted as assigned male (intentionally or not), I see the disparities long outlined and opposed by gender scholars and activists everywhere I go because I regularly experience privilege and marginalization in varied aspects of my interactions with others depending upon the ways others interpret and assign meaning to my body, my appearance, and my selfhood.

In fact, how I decide to dress or walk or talk on a given day, how people interpret these endeavors, and what type of day from those listed above I am having in a given moment all collectively shape what the world looks like to me from day to day, situation to situation, and person to person. As I noted above, I am actually quite lucky in that I have a supportive network of people who embrace and affirm me in the midst of any of these experiences, and I further have symbolic and instrumental resources due to other aspects of my appearance and current circumstances that also provide strategies for mitigating such experiences. For me, a large part of the push to amplify the voices of gender variant people (as well as people in other marginalized social positions whether they are also gender variant or not) lies in doing what small part I can in the ongoing pursuit of such support and affirmation for the many people who do not have access to such networks or other important resources at present. As we have learned in relation to many marginalized communities over time, broader recognition of the existence and experiences of diverse groups often helps facilitate better understanding and acceptance of such populations over time. As someone who remembers learning that neither sciences nor religions appeared to either know I existed or have anything positive to say about my existence not so long ago, I think an important step in moving forward involves documenting and amplifying gender variant existence, and the multitude of ways people identify with, experience, and make sense of sex and gender throughout our world.

In my own case, the above offers a snapshot of my experience. I typically identify as a transgender and / or non-binary genderqueer depending on what type of day I am having at the time. In some ways, the use of both terms to capture the variation in my experience is comforting to me. In fact, I adopt a similar strategy when seeking to explain to others my sexuality (i.e., bisexual and pansexual Queer as a recognition of being on the bi spectrum in ways commonly described as pansexual and Queer) and my religion / spirituality (i.e., agnostic and / or skeptical non-believer as a recognition of my acknowledgement that I don’t know or care if there is a higher power or not in ways commonly described as being skeptical of unverified secular and religious claims). In the same way I exist and experience the world between common assumptions about gay/lesbian and hetero/straight sexualities and between common assumptions about religion and nonreligion, my existence and experience of gender lies somewhere between trans and cis gender with an appreciation for and recognition of people who exist and experience this world in relation to other locations within the broad spectrum of gender possibilities.

As a result, I want to close this post with two invitations for other gender variant people regardless of their sex, sexual, religious, or other social locations. First, as an editor of this blog and on behalf of my co-editors, I want to invite any gender variant person in search of an outlet for sharing their voice and experience to submit – anonymously or named – their stories to Write Where It Hurts. We welcome your experiences and perspectives, and will be happy to provide a space for sharing them for those who wish to do so. Second, as noted in last week’s post, I want to invite any gender variant person who is interested to participate in the Transgender Religion Survey. Recruitment continues on the survey itself, and we welcome your voices and experiences with and / or about religion and nonreligion.

For questions or to submit a post to Write Where It Hurts, readers may contact us at wewritewhereithurts@gmail.com

For more information, official survey documentation, and / or to participate in the Transgender Religion Survey, please visit: http://researchsurveyor.com/surveys/index.php?r=survey%2Findex&sid=568681&lang=en

Ripped Pages, Erased words – lessons from the unintended audience

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A writer across genres and disciplines, this anonymous contributor is playing the professional field. She is debating whether to continue tenure track pursuits or focus on a career that lets her write what she chooses while pursuing advocacy work. She is grateful for the conversation/reflection that inspired this essay. 

There were two times in my life – once as a child, another as a young adult – where I was asked to destroy my words. In both situations, men asked me to get rid of my words – a journal and a blog. As a survivor of sexual assault and a feminist scholar aware of gendered language and silence, it was important for my own journey as a writer to fully name and forgive how I had responded to write as a result of those moments. I write this to remind myself why I write, for whom I write and to face the fears that have emerged in what I could/want to write and publish.

First, the journal writing I was doing as a 10-11 year old was framed by divorce, moving, death of a childhood friend and grandparents’ return to Puerto Rico. In that time period, abstract thought developing in my brain along with a great deal of loss in my environment creo un sentido de rencor, angustia y resentimiento. I was angry at everyone before I was a teenager. I had been lost, confused and I felt worthless given how much consistency I had lost. That anger was private until an elder read it. After reading it, he demanded I throw my words away because of how disrespectful and hurtful they were to the people I was framing in a negative manner. My words, my private thoughts were not protected because the journal was neither locked nor stored in a secret place. As a child I internalized the idea that my words did not belong to me. Once I ripped out the pages, I started writing fiction. Fiction as escape, as release, as an optimism I would not allow myself to find in an environment until I grew to live comfortably as a lesbian in a city located in the Western United States.

Ten or eleven years later, I was still acting and writing ‘straight’. I was writing straight fantasies, very PG, I thought, and the object of my affection demanded I take down the blog. Written without ever thinking he’d see it, I grew mortified that someone would share it, especially given the greater social context in which my ‘feelings’ for him were shared with him and how long it took him to tell me that someone told him. The person I was writing about yelled at me for how I felt, for writing it down and for publicizing it the way I had. Again, my words no longer belonged to me and I had to get rid of them. I did. Within months, I stopped associating with all involved. The wounds of being uncovered, of leaving and all that neither of us understand of each other’s life lay as an ever-increasing gap between us. Not just for the manner in which something public-private had been shared, but, more specifically, for what I understood that to represent at the time.

In both of these instances, I took for granted where I was writing. As a child, I needed locks and I needed hiding to keep my words mine. The uninvited and unintended audiences wanted to alter/erase my words because of what those words meant to them. Those words were not direct weapons against them. For me, in either instance, the words attempted to explore hurt, frustration, loneliness. The losses and change were overwhelming with minimal outlets available compared to the extent so many were suffering. I wrote as a means to escape, to let go of feelings. To have that taken from me, literally ripped out, informed fantasy writing that would sustain me until high school gave me access to password protected writing.

As a college student teetering on living in truth/coming out and trying to find smaller ways to be different, blogging was a way to connect with a handful of friends who had online journals and remained as invisible as I intended to be. Like in my childhood, I wanted a way to have a journal go with me wherever I was, operating on the belief that I was insignificant enough not to be distributed. It served as a way to explore curiosities, questions, internalized hetero-romantic idealism and other ideas that are of little significance to me now. In those moments, they were growing pains on paper/on screen. Growing pains that were mine. A question emerged that I will address after explaining how I viewed those two moments.

Those writings were a necessary process in my journey. Tremendous loss shaped how I perceived family because of how little control we had over our lives and over the affects of others’ choices on my ability to have, what I thought, was a normative childhood. No one wants to lose so much so quickly. Divorce and death shake foundations. Those I grew to rely on dispersed, and, in that, the grief of various communities – blood and peer – overwhelmed me. Grief transformed to hate because I could not bring my friend back. I could not go back to the house I had lived in for ten years. I did not have childhood friends I played with living next to me. I had more than my uncle had at my age, but that more was not something I would understand or forgive until others’ affluence taught me the power and resilience I had gained in that year of intense loss and change.

As for the online journal I kept in undergrad, I wanted to rewrite ownership of my sexuality. I didn’t think I owned it because – whether a gender or a community – I had spent a lifetime internalizing that my sexuality was not my own. Women grapple with this as much as those who struggle with being queer. I only allowed myself to understand that I had to hide, negotiate and perform resistance to the factors that informed the lack of ownership regarding my sexuality. Because of how new I had been to that community, because of the struggle I had relating to and working with cismen (of color), I was terrified of sharing the complex emotions I had around my body. When I did, I felt I was giving up too much too quickly. It has taken me years of poetry, therapy, and journaling to forgive myself and those young men for how naive we were about bodies, power, sexuality and desire.

The ownership others take over words based on their age/gender internalized authority remains a struggle in many communities. As writers, we each contend with the implications of ownership and measurement exercised by those who use social media to factor into whether one will be hired, published in the future, or deemed socially appropriate because of how in/visible we hope to be and because there are members of our audience we do not know. Reflecting over reactions remains key because there is a great deal we learn from ourselves in the process. Those lessons can, when we allow them to, spur our creative, intellectual and spiritual growth. Neither silence nor censorship will control the audience that thieves itself into the words to which we do not invite them. Neither silence/self-censorship will adequately erase the effects of our experiences. Writing is a choice, a demand for those of us who have born witness to suffering brought on by silence.

The quality of our writing can improve with awareness of how we control what we choose. As scholars, we control that which we are most informed. I take this out of my journal to share on this blog out of a need to forgive myself for who I couldn’t be for myself in moments I needed to express myself while protecting the integrity of my right to feel. As I grow as a writer, protection remains key, which is why I choose for this to remain anonymous for now. I want to control where my writing goes next. I want it to go to a place where, in the future, attaching my names to these words will not cause me nor any of the people in this narrative harm.

Systemic Racism & Why I don’t want kids

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In this guest post, David Springer reflects on the ways experiencing and studying systemic racism influence preferences for having or not having children.  David Springer is a doctoral student in sociology at the University of Illinois Chicago who studies race, ethnicity & gender and African American experience. 

At this point in my life, I’ve ended many different friendships and relationships because of racism. It’s a normal part of my life. Often, these incidents begin with comments like “You’re really ________ for a black guy” or “I like you, you’re not like other black people!” I turn 30 in about 2 months, and I don’t have the energy to explain to people why that’s offensive. I certainly don’t have time to explain why I or other black people are upset over Trayvon Martin’s death or his murderer’s acquittal, the Ferguson protests and the Baltimore uprisings. Over the past few years, I’ve come to learn that a big part of experiencing racism is about experiencing loss. It can involve losing access to resources (if you even had access in the first place), losing your humanity, losing your life (literally), and losing relationships. I thought I knew how to handle the latter until this past week.

I ended a completely functional, stable, 2-year relationship with a woman I loved because of racism. She is Asian-American and I’m black, but it wasn’t because of a microaggression. It wasn’t because she thought #BlackLivesMatter protesters were just rabble rousers or because she thought black people would be fine if we just pulled our pants up and stopped “acting ghetto.” In fact, in 2 years, we argued about something race related exactly one time. We ended our relationship because I came to the realization that I don’t want children, and she does. That, in and of itself, is not explicitly related to race. People end relationships all the time because they disagree on whether or not to have children. However, I’d venture to guess that most people who say they don’t want kids don’t cite racism as the reason. For me, racism has everything to do with why I don’t want to bring children into this world.

With the #BlackLivesMatter Movement in full swing and the seemingly endless stream of stories of violence against black people, racism continues to permeate our daily lives. On a personal level, I’m confronted with racism in my everyday life in ways I’ve written about before. I’m also a race scholar, so systemic racial inequality also shapes my worldview. My own research focuses on the ways race shapes the lives of even the most successful, middle class blacks in this “post-racial” society. Between my own personal experiences, an understanding of institutional inequality, and an awareness of how that inequality literally kills black men, women and children every day, you get what scholars refer to as “racial battle fatigue.”

Racial battle fatigue refers to the stress people of color experience when exposed to discrimination. This stress can be psychological (frustration, defensiveness, apathy, anxiety, hopelessness), physiological (headaches, high blood pressure, shortness of breath, sleep disturbances, etc.), or emotional-behavioral (stereotype threat, impatience, increased smoking, alcohol, or drug use, and poor job or school performance). For me, chronic exposure to racism tends to manifest itself though a deep sense of anxiety and hopelessness. Though I know that progress has been made since the Civil Rights Movement and that my own success is a symbol of that progress, I’m also aware of how much that progress has stalled or regressed. On one hand, Census data suggests that black folks are generally less poor than they were before that era. That data also suggests that more of us are going to college and getting bachelor’s degrees, and that the black middle class has grown. Black success, at least on an individual level, is highly visible in our society. President Obama, as many have discussed before, is the most obvious example of this progress.

On the other hand, this racial progress coexists with racial disparities in income, wealth, poverty, unemployment, incarceration rates, housing and education. If black America were a country to itself, it would trail behind white America in virtually every measure of social mobility and life chances. It would have a worse infant mortality rate than many “3rd World” countries, a lower life expectancy than Mexico, a higher homicide rate (per-100,000) than the Ivory Coast, Sudan, or Haiti, and the highest rate of incarceration on the planet. While legally sanctioned discrimination has subsided over time, even successful blacks deal with racism in their neighborhoods, public spaces, stores, and the workplaces. Every day there is a new story of a black person being verbally harassed, followed in stores, harassed by security personnel, or killed by police and vigilantes. At this point, these kinds of stories are expected. I go through a range of emotions when I see these stories – anger, disgust, sadness, etc. But I’m never surprised by any of it. And from where I sit, I don’t have much evidence that it will stop. If Dr. King and the Civil Rights Generation could not stop it, what hope do we have?

I understand that this isn’t a 100% rational reaction. There are many people who are fighting for black lives. And that fight is not always for naught, as the students of Mizzou showed us this past week. Things like this provide some hope, but that hope is quickly tempered by how people reacted to those protests – death threats, terrorism, and general hostility. Which brings me back to having children. When I’m aware of the many ways racism hurts and kills black folks in this country, how can I justify bringing a child into this world? How do I handle the inevitable day when my child gets called a nigger or some other epithet? We live in a world where that’s a virtually a guarantee. So how do I explain that to them? And do I try to give them hope that it will get better, even when I know that probably isn’t true? Do I just “keep it real,” and shatter their innocence? These are the kinds of things my ex-girlfriend and I had to think about. How were we supposed to explain to a child that the police, who they will be taught to see as the good guys and heroes, are often hostile and hateful towards black people? I didn’t really interact much with the police outside of a D.A.R.E. talk here and there, but I can remember knowing very early in life that police didn’t like black people. And when kids are taught that people who hurt people go to jail, how do we explain that when white people hurt us, they’re more likely to avoid punishment? How do I help that child avoid the pain I felt the first time a girl’s parents rejected me because I was black?

These questions are what drive my preference to not have children. Since I was in an interracial relationship, I had to think long and hard about how race might affect a child’s life. And since my ex wasn’t black, many of the child’s experiences would be tied directly to me, especially if that child looked more like me than her. Of course being/looking Asian comes with many of the same problems and discrimination, as well as some unique experiences (“Where are you really from?”). But anti-black racism is, as critical race theorists often argue, a cornerstone of American society. And black people are often viewed as inferior to Asians on cultural grounds. And since I’m the darker one in the relationship, I am aware that the more the child looks like me, the more likely they are to experience discrimination in their neighborhoods, in stores, at school, and at the hands of police officers. Again, I know that isn’t a 100% rational thought. And it wouldn’t be my fault if my child experienced racism. But it would feel like it was, and I’m not sure how I’d be able to deal with that as a parent, let alone how to talk to a child about it.

There’s No Manual for This: Surviving Rape Apologists in the Classroom

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The following anonymous guest post is by a sociology instructor at a public university in the United States. In this post, she reflects on experiences confronting trauma and rape apologists in the evaluation of student assignments.

When I began graduate training, I was inundated with advice about how to survive in my chosen profession. Specifically, I received tips on teaching – how to grade papers efficiently, how to foster a meaningful class discussion, how to have boundaries with students regarding grade contestations and office hours while also creating a safe space for learning. I was told to try and grade students’ work as uniformly and objectively as possible. I value all of this advice, yet I was left unprepared for what would happen in the future when I taught a gender class.

It was the middle of the semester and we were covering rape culture. As any Feminist instructor who has ever taught about rape culture probably knows, covering this topic is challenging for a multitude of reasons. Sometimes we encounter students who realize that they’ve been raped who come to office hours looking for resources. Other times, students learn that they’ve actually committed rape, and struggle to reconcile this with their images of themselves as “good people” and “not one of those (usually) guys.” And many Feminist instructors, especially those who are women, know all too well what it’s like to navigate the “mansplaining” of a few of the men in the class who would like to ardently deny that rape culture exists. Such students may make claims including but not limited to the following:

In response to discussions about the fact that what a woman is wearing does not give someone license to rape her, nor does the rate of rapes have anything to do with clothing choice: “but don’t you think what she was wearing is at least a little important?”

In response to conversations about the structural barriers to reporting rapes, and the estimated number of rapes that go unreported: “But why wouldn’t she report it? It’s kind of on her.”

In response to demonstrating the staggeringly low rates of “false reports” in contrast with the alarmingly high concern lawmakers, the media, and the general public seem to have with this artificial trend: “How do you know that it’s really rape?”

In response to pointing out that someone is incapable of consenting if they’re intoxicated:  “Well don’t you think she should have been more aware of her surroundings? Less drunk? It’s kind of her fault.”

In response to the fact that we live in a society that valorizes men’s violence against and dominance over women: “Boys will be boys.”

Every so often, however, male students may present a reasonable shortcoming of the prevailing rape culture rhetoric, such as “Why don’t we talk about when men experience rape? How can we make space for that dialogue without pushing aside women’s experiences with rape and systemic inequality.”

This is a valid question, and the inquiry is on point. We need to make space for men (as well as non-binary people) to share their experiences with rape since the foreclosure of such space stems from the very same mechanisms of inequality reproduction that facilitate rape culture in the first place.

When I encountered a paper that began with this question in my gender class, I hoped the student would take the paper in that direction.

He started by citing a media example of a case where a woman on a college campus raped a man, and how poorly the campus responded. However, I first felt a twinge in my spine when I looked up the source of his story and traced it back to a Men’s Rights Advocacy (MRA) group. “Okay,” I thought to myself, “students use terrible sources all the time, often because they might not have the skills to distinguish journalism from something like an MRA group. I’ll give him the benefit of the doubt here and make a note of it for the next paper.”

Unfortunately, his “argument” quickly devolved into a tirade claiming – since he presented ONE case where a man was raped by a woman – Feminism is pointless and women are complaining too much about “their problems.” He wrote that men and women experience rape culture in exactly the same way, and claimed talking about gender inequality was just an effort to make men look bad. He said that women brought these things upon themselves by making people, and specifically men, angry and annoyed via conversations about Feminism and rape culture. He did not even feign a presentation of data to back up his argument after the initial example, but rather, he simply ranted against Feminism, women, and open discussions about the sexual violence women regularly experience.

As I went over his paper, I realized that I was reading a paper that sounded word for word like something my rapist would say. And not only did this sound like something my rapist would say, this student fit the same demographic profile as the man who raped me – White, college male, between the ages of 18-22.

I got up from my desk and went for a walk. I couldn’t concentrate. I had plans to read a book later that afternoon, which were shattered by being thrown back into a pit of traumatic, fragmented memories by this student’s paper. I was furious at the fact that, as an instructor, I was expected to take his paper seriously, and scared of what he might do if he didn’t like his grade. Although I knew it was unlikely that this student would literally try to rape me, his words felt so familiar that I began having trouble distinguishing him from the man that did. Their words were so frighteningly similar that the “rational instructor” side of my brain could not overpower the “trauma survivor” part of my brain.

None of my training or experience prepared me for something like this, not even advice from the few Feminist scholars I have had the pleasure of knowing. I was in a position where I had to take this student’s words seriously, evaluate their merit, and provide a percentile score based on how well I thought they fit the parameters of the assignment.

“ZERO! YOU GET A FUCKING ZERO” I literally screamed at my computer screen. I decided that I wasn’t ready to return to grading papers yet so I got up and went for another walk.

I felt irritated that in two pages of (poorly written) ranting this student was able to undercut whatever authority I thought I had as an instructor. Authority that, especially as a female instructor, I worked hard to establish and maintain. I imagined him sitting on the other side of his computer screen laughing at my pain, joking about my distress. I imagined him being friends with my rapist (though the man who raped me is now significantly older than this student, he is frozen in the 18-22 age bracket in my mind). How, I wondered, could I possibly evaluate this student’s work in an “unbiased” fashion? Such a request would involve me living an entirely different life than the one that I’ve had.

I returned to my computer late that night. I pulled up his paper, took a deep breath, and began to read it again. No one ever advised me about how to grade a paper that sounds like something my rapist would say, so I suppose I will have to train myself. After all, I am certain that I am not the only instructor to have to navigate this dynamic, and I’m sure this won’t be the last time I have to navigate it.

Teaching Where It Hurts

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In this post, Xan Nowakowski and J. Sumerau reflect on their experiences personalizing sociology in the classroom (see their recently published Teaching Sociology article on this topic here) in hopes of facilitating dialogue and debate about the benefits and limitations of incorporating professor biographies into sociological curricula.

As people who write about, teach, study, and engage in advocacy related to chronic health conditions, social inequalities, sexual and gender experiences and identities, and managing trauma, we have become intimately aware of the potential personal experience and stories can have for facilitating learning and motivating concrete action among our students, colleagues, and communities. At the same time, we know all too well that structural factors regularly limit who can say what in classrooms in much the same way they do beyond the academy, and that academic traditions have long privileged rational or remote notions of instruction over emotional and personalized approaches. As we did in our recently published Teaching Sociology article, we would like to encourage our colleagues to consider these options and structural patterns in hopes of spurring dialogue about the potential of using our own experiences within inequitable structures to help students and colleagues see the pain created by social inequalities on a more personal level.

As we did with the establishment of ongoing conference sessions, an upcoming book project, and the creation of this site, our focus here lies in the potential of writing (or researching, teaching and advocating) where it hurts. When Xan shares stories of almost dying or struggles with doctors and other medical professionals unfamiliar with what to do to treat their chronic physical health conditions, for example, students come face to face with the results of our flawed healthcare system in the midst of their own lives and worldviews. Likewise, when J. shares stories of being physically assaulted for daring to go on a date with a cute boy or watching a lover die amidst both caring and supportive and judgmental and hateful medical professionals, students witness the concrete tears, pain, and sorrow that come from experiences within interlocking systems of inequality embedded throughout our society. In these and many other cases, we utilize our own pain to pull social inequality out of the abstract and into the actual lived experiences of the students and colleagues who interact with us.

As we advocate in our recent article and practice in our own classes and on this site, we seek to personalize social inequalities for our students. Rather than things they read or hear about in class that happen somewhere “out there” unseen to them, we use our own experience and narratives shared by other people occupying marginalized positions or experiencing traumatic events to translate “out there” into personal realities with actual faces, personalities, voices, and bodies in the eyes of students and colleagues. In fact, both students and colleagues regularly experience their own organic emotional reactions to social patterns in the process, and tend to very quickly make the link that if it could happen to “their professor” then it could happen to “them” or “their loved ones” as well. Not surprisingly, such realizations very quickly transform societal patterns of inequality into anything but abstract concepts. As a result, our willingness to talk about the pain or teach where it hurts often translates into incredibly passionate and engaged rooms full of students especially willing to discuss and consider concrete steps they can take toward more positive social relations.

As we note in our recent article, we developed these approaches – individually and collectively – over time by building the entirety of our class offerings around discussion, consent, and application of scholarly materials to personal experience. In terms of discussion, for example, our courses are organized – from the first to the last day – around personal or collected emotional narratives that we share with students in relation to each course reading and topic. In so doing, we ritualize personal narratives within the class so students become accustomed to this form of interaction and dialogue throughout the course. Likewise, our courses are built upon an emphasis on consent wherein students are never required to disclose their own personal experiences or use ours in their work, but they are allowed to do both of these things on any assignment or in any class meeting where such things are relevant to the given assignment or class topic or assigned material. We thus remove grading from the equation by giving students ample resources to do just as well in the class no matter their experience and / or interpretation of the personal content we or other students share. Finally, we strategically link every scholarly piece or activity in a given class to specific personalized examples so students are able to always see the real world (or applied) aspects of the materials we cover in their own lives, in our lives, and / or in the lives of other people. Our experiences – as well as some initial negative experiences others have had when first attempting styles like our own without these ingredients – tell us these (and maybe other) efforts to create classrooms where students get used to and feel safe with vulnerability may be essential ingredients in personalizing instruction.

With all this information in mind, we invite dialogue, commentary and discussion on the possibility of personalizing scholarly work through teaching and other methods. Whether one seeks to join this conversation on this site or in relation to our call in Teaching Sociology or in any other space, we invite and appreciate other educator’s perspectives on these matters. To this end, ask yourself what ways you do or could personalize sociology? What might be the benefits or limitations of doing so? What institutional and structural steps might we need to take to serve and protect those who share their pain in the service of education and advocacy by and for their students and other colleagues? While we will not pretend to have some “right” or “absolute” answers to these questions, our experiences to date within and beyond classrooms tell us these questions might be incredibly important and useful in many ways.

We Write Where It Hurts

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Welcome to Write Where It Hurts, a community for scholars doing deeply personal research, teaching, and service!

In this inaugural post, we thought it might be wise to introduce ourselves and explain our expectations for the ongoing development of this blog. Like many scholars (some say all), we initially embarked on academic careers seeking to make sense of our own lives, and find practical solutions to problems we faced along the way. Whether we sought to understand religion and sexualities (J), health access and inequalities (Xan), or gender and sexual fluidity (Lain), each of us sought to make sense of things we experienced that were not very well understood in the world in hopes of creating greater understanding for ourselves and for others facing similar experiences and structural conditions in the future. As a result, we are intimately familiar with the promise and the pitfalls of doing deeply personal research, teaching, and service in the current academic system.

With the launch of this blog, we thus seek to open a space for conversations and debates concerning the personal and emotional elements of research, teaching, and service. While all research, teaching and service is accomplished by human beings with personal lives, experiences, expectations, and assumptions, academia has been slow to embrace the human or subjective component of scientific inquiry, and many people engaging in controversial, emotionally-charged, or otherwise “non-traditional” activities are often stigmatized for doing so. In other cases, people doing deeply personal research, teaching and service find themselves without support that could ease the process as well as the management of negative interactions with others promoting “traditional” activities. Our goal is thus to both begin pulling the subjective elements of academic work out of the shadows, and provide a supportive space for those already engaged in (or considering engaging in) deeply personal research, teaching, and service within and beyond academic settings.

To this end, the blog will host regular features in the coming weeks, months, and (hopefully) years.

  • Reflective essays on experiences managing personal topics as a researcher, teacher, or activist
  • Reflective essays on experiences managing trauma related to research and teaching topics, areas, and endeavors
  • Reflective essays on personal experiences that facilitate academic careers
  • Critical essays on the myth of objectivity, and the ways this ideology is used to stifle creativity and maintain academic norms
  • Critical essays on the marginalization of personal, subjective, and / or emotionally-based research and teaching efforts
  • Anonymous stories wherein people experience personal or emotionally-based negative and positive experiences while working in and beyond academic settings
  • Tips for teaching personal, emotionally-charged, and / or controversial topics in various settings and contexts
  • Tips for doing research in emotionally-charged and / or controversial areas
  • Strategies for managing emotions in relation to conferences, academic jobs, graduate programs, and other tense areas of academic life
  • Strategies for dealing with “objectivity” claims by academic practitioners and structures

In closing, we invite all interested parties to read, comment, and consider contributing to Write Where It Hurts. Together, we can begin to shed light on the ways our personal and professional lives are intimately intertwined as well as the ways this recognition could shape the path of scientific and other academic pursuits over time.

Xan Nowakwoski, J. Sumerau, and Lain Mathers