Category Archives: Relationships

When Life Hands You Lemons, Write a Journal Article: An Exploration into Navigating Trauma as a Academic

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In this post, a researcher studying the experiences of, reactions to, and management of trauma reflects on the ways these topics intertwine in their life and work over time. 

 

It was my turn to visit you. I canceled the day before and said finals were killing me. You said you would see me next time. Finals didn’t kill me. I made the Dean’s list that semester.

Finals didn’t kill me. I made the Dean’s list that semester.

Finals didn’t kill me. I made the Dean’s list that semester.

Finals didn’t kill me. I made the Dean’s list that semester.

This phrase rang through my head abruptly at 4:21 a.m. on a breezy, Wednesday morning in April. I can’t sleep. I can’t hold down my food. My thoughts are scattered. I need to sleep. I have a paper – which I haven’t started yet – and a presentation I have to finish by tomorrow. I have to maintain the “front stage” I cultivated over the years. It’s the role I feel like I have to play. Good thing I am comparing Goffman’s “presentation of the self” to other theoretical concepts in this paper – that I haven’t started on. Why can’t I sleep? Why can’t I shut everything off? Unfortunately, trauma management and recovery both fail to function in that regard.

They said your death was a freak accident. It was raining. There was ice. You all were in a hurry to go shopping. I would have taken my time. I drive so slow now that everyone passes me. I recently went shopping like we used to. I didn’t buy anything. Only watched the people there. I haven’t done that in years since you dragged me in that fancy Macy’s.

There is no on or off switch for trauma. Just flickering lights. The kind you see at an abandoned warehouse filled with empty crates. I am feeling like an empty crate. I do have the capability to hold heavy cargo, but my trauma memories stop the assembly line of my mind from growing and thriving as full human feelings. For me, it always starts at the end of a semester. The sharp pain in my stomach. The cold, night sweats. The high-pitched screaming. The flashbacks. Seeing your hands reaching out for help in my dreams. For some reason, I was pushing away from you. I can’t count the number of people I pushed away since your death. Your face covered in blood. It’s not every day your best friend passes away, days before you were supposed to visit. It’s not every day you get a phone call with that horrific news, while you are sobbing for hours late at night along a surprisingly calm river outside of a run-down apartment.

I recently went back to that river to reprocess my trauma with the support of a close friend. I stood in the exact same spot for 20 minutes on the dot. I couldn’t cry at first. Frustrated, I went back into the car where my friend was staring at me. Just watching me. Like they had the nerve to stare at me after all that effort I put into processing trauma. All of sudden, the floodgates opened in my eyes and I found myself sobbing in their lap while drowning in their t-shirt with my salty tears. That trigger unexpectedly became the beginning point of my trauma recovery.

We always took the back roads because you knew all the shortcuts. I heard later that your driver was going 80 mph. There are tons of potholes I recall. I almost killed myself and someone else while driving on those back roads. You told me not to scare you again. I apologized. Every day, I wish I would have driven that night.  

Trauma recovery is brutally and painfully messy. There is no one-size-fits-all framework in managing trauma or even studying trauma. Literature on trauma is limited, especially trauma research aside from PTSD treatment and veterans. I remember one week where I spent 15 hours in the library trying to educate myself on trauma management and recovery. I quickly became frustrated with the substantial gaps in the literature, so I attempted to find trauma researchers other disciplines. I only found one university with a doctoral program that had two faculty members who were considered to be trauma researchers. Since we all seem to have some variation of big ‘T’ and little ‘t’ traumas, how is this possible? Trauma has been normalized throughout American media and culture from the trauma of gun violence to the trauma of rape and sexual assault. However, the literature is limited. So how can we grow the body of trauma research and scholarship?

Everyone apparently asked you where I was the night before you died. You told them not to worry and that I was coming home soon.

We start by studying vulnerable populations that have been previously ignored in trauma research, alongside researched populations. For example, we could study the experiences of transgender and non-binary folks. Specifically, what about the issues transwomen and transwomen of color face managing trauma? We could also study other populations who consistently face traumatic events, like racial and ethnic minority populations, sexual minority populations, people of low socioeconomic status, rape survivors, people with chronic illnesses, and people with disabilities. By expanding our array of knowledge on diverse populations outside of traditional trauma narratives, such as veterans and military personnel with PTSD, we can then start to understand how trauma operates on a broader level.

The definition of trauma also must be unrestrained and inclusive, since individuals have a wide range of responses to traumatic experiences. Less noticeable responses do not equate to a given circumstance being less traumatic. We all develop and process trauma in very distinctive ways. Researchers must capture the full fluidity of trauma by understanding trauma survivors through their experiences and daily management.

Strangers kept hugging me at your funeral and told me how great you were. I already knew this.

I am not a trauma expert by any means. But I am a trauma survivor. Much like others before me. I have heard numerous stories of students, faculty, and other academics over the years discuss how their trauma has influenced their research and careers. To my understanding, this desire to fully understand one’s self through emotionally-based research can be both healing and therapeutic throughout the trauma recovery process.

I started writing and opening myself up again. I am now forming intimate and meaningful relationships with those who are supportive in my healing. I began to see my passion for this limited area of literature blossom and flourish. Walls keep crashing down around me as I recover. Somehow, I managed to finish that paper on time, while rocking my presentation. Researching trauma is weirdly comforting for me. I actually decided that night when I broke down, if life hands me lemons, then I will write a journal article. I know I won’t get any sleep tonight. I know today will be hard. But I now know I’m not alone anymore through research and sharing experiences with others.

Creating Homecoming Queens – a southern gothic bi+, poly, and trans love story

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In this post, J. Sumerau reflects on the process of composing and publishing Homecoming Queens, a southern gothic bi+, poly, and trans love story set in the south and based on their experiences as a bi+ poly trans person and researcher collecting stories of other sexual and gender minorities throughout the past couple decades.

Earlier this month, my third novel and second book in the Social Fictions Series of sociological based novels – Homecoming Queens – was officially released. The novel is a southern gothic bi+, poly, and trans love story based on hundreds of formal and informal interviews with sexual and gender minorities throughout the southeast I’ve collected over the past couple decades as, first, a curious bi+ trans and poly kid and later, as a researcher focused on sexualities, gender, religion, and health in the lives of sexual, gender, and religious minorities. In this post, I elaborate on the background and creation of the novel after doing so with Cigarettes & Wine, my first research based novel, has been useful both for readers interested in my work and fellow teachers using my stories to teach sexualities, sociology, gender, LGBTQIA studies, and Southern studies in classrooms to date. For more information about the novel or to purchase it, see here.

Background

Like many aspiring novelists I have met in my life, I dreamed of writing the next great American novel around the same time I was finishing college a decade ago. The seeds for Homecoming Queens emerged in early failed attempts to do this back then, and in fact, the scene in the diner between four of the main characters near the end of the book comes from an experience between four people I witnessed – including being in the diner scene of real life I recreated in the novel – over a decade ago. Like many other writers across genres, I have my favorites, and the southern gothic traditions of the likes of Toni Morrison, Flannery O’Connor, and William Faulkner have always spoken to me via the use of real world complexities, the ways the past shapes and becomes active in the present, and the fine lines between the darkest and brightest moments of love, pain, and life itself. Homecoming Queens began as an entire handwritten journal in 2007 wherein I sought to translate small town life in Georgia through the eyes of a brilliant, older African American neighbor I had who told me so many stories about the world at the time in what was, in hindsight, a poor attempt at writing like other southern gothic writers – especially Toni Morrison – I worshiped then and now without the skills to do it myself in my own voice at the time. It was a learning experience that got put in the background of so many other failed novel attempts in my life at the time.

Fast forward to the year 2016, and the completion of my first novel, Cigarettes & Wine, and I found myself thirsty for trying to write more novels without any clue if I could do that well or publish the first one. I was celebrating the legalization of my primary life partnership, and began asking about the idea of Homecoming Queens in conversations with my spouse and my best friend. For some reason I still can’t explain though I’m beginning to agree with now, neither of them had any questions or doubts about my ability to write more novels, and both thought I should try it out since I had just resurrected my first novel from an earlier failed attempt in college and was well enough situated in academic and public writing credits to have the time and space to commit some time to fictional endeavors without other parts of my career falling behind. This led to priceless patience on both of their parts as I talked and ran through scenarios and data I had for the next novel relentlessly on late night walks, phone conversations, and over lunches and dinners for a while. I was more than a little fixated and obsessed in hindsight, and I was lucky enough that they were okay with that and supportive of it at the same time.

I was also repeatedly listening to the newest album by one of my favorite – and in my opinion, one of the most talented ever – songwriters. The entire album, Brandy Clark’s Big Day in a Small Town, was about small town adventures and experiences with a mixture of humor and heart. I kept coming back to the song “Homecoming Queen” and the memory of the former homecoming queen friend who moved back to her small town with her two spouses, and things that happened to them, good, bad and in between, in the process. I also kept talking about this one story, and how it related to so many other stories from my own life and the lives of others I had spoken to in the south with my patient supporters. I also thought about what it would look like to illustrate my own primary romantic relationship structure in terms of how it worked, how our rules were set up for each of us to always get what we want together and individually, and how other mono, poly, and fluid (sometimes mono, sometimes poly) unions operated. Finally, I started thinking about both how many things from the past are prevalent in the nation today, and my experiences (on both sides of mentor / mentee relationships over time now) of the different ways trans and other queer kids find community, support, rejection, and / or struggle in the world as they try to be themselves. These were the threads that I would weave together to create the novel.

Data and Methods

I began crafting character profiles and a small town that could be any southern small town, and looking at all these things as homecomings of a sort that happen in between the various connections and disconnections we each experience throughout our lives. I followed the same process I do in many qualitative and quantitative studies and outlined in relation to Cigarettes & Wine in a previous blog post. The data points from real people’s lives and stories – and my own lives and stories to date – became the ingredients for the town, the characters, the conflicts, the tensions, and the narrative arcs of the story itself. Even more than in Cigarettes & Wine – or my independently published novel Essence – I crafted a tale that could be anyone or anywhere in the places I have seen, lived in, and visited in the south over the years, and created a story where, as friends have said about each of my books, I was both everywhere and nowhere in the book at the same time. As I’ve done in other works, maybe it’s the researcher inside me, I once again also only used events and experiences that had happened to a wide variety of people in different ways, at different times, and in different settings to capture an overall set of common – or as we say in scholarship, generic – experiences anyone could potentially relate to, experience, or know of in the lives of other people to demonstrate both possibilities and probabilities in the world.

Results

As I’ve noted with the first two novels in conversations individually, in classrooms or at conferences where I’ve been invited to talk about such things, or otherwise, I do not believe it is ever up to the writer to gauge the results of the composition. I feel the same way – as many people know from other speeches related to my academic, journalistic, public, and other writing – about everything I write. It is up to the audience to decide what the book means in terms of messages, merits, and ideas, and I leave it up to audiences to figure such things out. I know what I sought to do. I sought to, as always, offer a realistic portrait of some of the many ways – good, bad, and everywhere in between – queer life takes place in the south, thrives and continues in the face of support and opposition, and speaks to broader norms and patterns in cultural notions of sexualities, romance, gender, family, history, relationships, and lives. I don’t know or want to decide what others will think of the work, but I feel confident that I accomplished what I wanted to do with the book and early responses to it (both good and bad) have suggested as much.

Instead of trying to ascertain any concrete result or metric, when I think about Homecoming Queens as a now published work available for purchase by anyone, I think about the stories that have and continue to inspire me, that others have kindly shared with me so many times over the past couple decades, that resonate with me in cases of both similarity and difference, and that speak to a much wider, more complex, and more varied Queer existence then I can usually find in academic or mainstream media portraits and publications.

If those last couple of lines sound familiar, it is because they are copied directly from my thoughts on Cigarettes & Wine right as it was published, and you could continue down that set of paragraphs in that blog with Homecoming Queens as well because, for me, the goal is the same. For me, these stories I write – like any other research or art or writing that blurs (or Queers) such distinctions – is about the same thing, revealing the beauty, complexity, pleasure, pain, and wonder of Queer experience in its many forms, places, and continuations for as many of us and as many others as possible in ways people can relate to, think about, and consider as they navigate the complexity and possibility of the world in their own lives and their treatment of others they may encounter.

Building the Literature on Aging Partners Managing Chronic Illness Together

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In this post, Xan and J announce an upcoming and rolling special issue of Gerontology and Geriatric Medicine focused on managing illness in relationships over the life course, and invite scholars interested in health, aging, relationships of all times, caregiving, and chronic conditions to consider submitting works for this issue and emerging area of research in social, physical, and medical sciences. 

Hello readers!

Xan and J here with a teaser for our newest project. In our home communities of Orlando and Tampa, we’ve been spending some time recovering from Hurricane Irma and helping our fellow Floridians do the same, as well as supporting friends in Texas and Puerto Rico in their own recovery efforts. As things calm down more here in central Florida, we’re pleased to roll out our latest effort to amplify voices from lived experience in research.

Earlier this year, we pitched a special collection proposal to Gerontology and Geriatric Medicine. We suggested a content collection focusing on “Aging Partners Managing Chronic Illness Together”. The collection would highlight opportunities for inquiry, evidence-based perspectives, case studies, and new primary research on collaborative illness management among older intimate partners.

Right now there is very little literature on this topic—most published research on caregiving in intimate relationships uses a “sick partner/well partner” model. But our own lived experiences as well as what we have both seen in our work suggested that many people are living a very different reality! We also found no literature whatsoever in conducting our own preliminary review on collaborative illness management that delves deeply into the experiences of marginalized older adults and relationships between people occupying varied genders, sexualities, and relationship types. We very much want to change that!

Our introductory editorial for the content collection at GGM will be up soon (we’ll share on the blog and social media sites when it is), meaning we are ready to accept original submissions from other scholars doing work on this important topic. Unlike traditional “special issues”, this content collection will remain open indefinitely for new submissions. We intend to use the Aging Partners Managing Chronic Illness Together collection as a springboard for both highlighting inspiring innovative research on older adult health that champions people’s unique lives, biographies, and needs.

If your research includes a focus on chronic disease management, older adults, and intimate relationships, we hope that we’ll be able to showcase some of your work in our special collection in the future!

But It’s Heavy: Friendships, Expectations, and Illness

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In this post, Xan reflects on the weight of chronic illness, and role of emotions, expectations, and caregiving in the experience of chronic illness and emotion management.  

In my last post I wrote about the fallacy of people thinking I cannot carry things because like many people with cystic fibrosis (CF), I am very thin. “But it’s heavy!” strangers will say. “You can’t possibly carry it all by yourself.” If only they knew. I manage just fine with heavy material objects, provided they aren’t especially large or unwieldy. No, the heaviest burdens I carry are those unseen to others.

Knowing the data, knowing people with your condition have an average life expectancy in the high 30s range, constantly explaining “well it’s really a bimodal distribution differentiated by access to care and a bunch of contextual factors” to wide-eyed people whose eyes well up with tears because it’s too hard for *them* to handle to know you are sick. Now *that’s* heavy. I spend so much time explaining things that people could Google, so much time bending over my phone responding to messages asking if I’m okay when what people really want is for me to make *them* feel okay. My neck has begun to hurt from the weight of my head literally dragging me down.

So now I’m holding my phone at 90 degrees to my face, stretching my neck and thoracic muscles, asking myself tough questions about why I’ve always swallowed whole the assumption that it’s my responsibility to do the emotional labor of coddling people in my life under the guise of helping them get educated. It’s never the people closest to me who ask for this. They know better, or they wouldn’t have gotten so close to me in the first place. Asking how I am is kind and affirming. Using that question to spend the next 30 minutes gobbling up all the emotional support you can from me about how hard my diagnosis is for you and how much it scares you…is not. It literally weighs me down.

Being open about your fears is a tremendously good thing in and of itself. It’s where you seek support in coping with those fears that matters. This isn’t black and white; it’s a question of nuances. Ring Theory offers a good way to understand socially affirming flows of emotional support, using a simple algorithm of “comfort in, dump out”. The basic idea here works like an earthquake. The person dealing directly with the challenges at hand (terminal illness, loss of a loved one, sexual assault, etc.) dwells at the epicenter. Then shock waves radiate around the epicenter with progressively lower intensity as distance increases. A life partner feels them most intensely, followed closely by other family members who are close to the person. Then come very close friends, then other friends and colleagues in a much bigger ring, and then casual acquaintances.

I’m a pretty textbook long-surviving CF patient in many ways, including both all the issues I do experience and what has heretofore been more minimal involvement of the pancreas. Whether I have any pancreatic involvement remains unknown, because I definitely have some bizarre endocrine symptoms these days. I just keep coming back to the fact that I had low-positive results on a sweat test *and* so many of the core clinical signs of the disease and nobody gave a damn. Why was my case dismissed when my parents kept fighting so hard to get me medical care? Why did I have to be treated in fragmented little pieces by specialists focused on this or that organ? Why did I have to undergo surgery to rebuild mucous membranes that could have been reasonably well protected by drugs that were already on the market? These questions pull me down like heavy stones.

I see a CF specialist tomorrow for the first time in my entire 33 years of life and these questions spin through my mind constantly. And I feel the lingering fear that this doctor won’t believe me either, that I’ll now be caught in a terrible limbo of knowing I need a specific type of care yet being just as unable to get it as when I had more questions than answers. Maybe I still have more questions than answers. I spend most of my time trying to answer other people’s questions, though. And it has exhausted me so thoroughly that I feel empty inside, as if my disease consists more of the need to justify it and reassure others than of its terrible physical mechanics, which I wind up with little cognitive space to consider. I go to bed each night feeling as if the day has drained all the life from me, questions racing through my mind in the darkness that surrounds.

I don’t have any real answers. I wish desperately that I did, but I don’t, and I often feel as if I’ve failed the people in my life because of that. All I have is a lot of lost time and an opportunity to do things differently with a doctor who stands a chance of understanding my case and my needs. So…to be continued. I’m excited about meeting with the specialist. I try to Be Positive in all things. But there’s so much beneath the surface, and it feels exceptionally heavy today. So I strive to grow more proficient and comfortable in asking others to shoulder a piece of that burden, not my grocery bags or guitar equipment. For it’s the invisible weights that bring us down the hardest.

Creating Queer Kinship in “Straight” Spaces

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In this post, Xan Nowakowski explores the importance of Queering Heterosexuality and “straight” as a heteroqueer (i.e., someone who identifies as primarily heterosexual and also Queer in other respects related to sexualities (i.e., kink, poly, mixed orientation relationships, etc.) and / or gender (i.e., trans, non-binary, genderqueer, agender, etc.) person existing between static notions of cisgender-monosexual-heterosexuality on the one hand and Queerness on the other.  Specifically, as an agender person primarily attracted to different sexes, they discuss using access to “straight” spaces to Queer such spaces and advocate for Queer Kinship and Justice in daily life.  

When I was in high school, my best friends and I were members of one of many “gay-straight alliance” groups formed throughout the US in the 1990s.  I always found the group’s name sort of odd, because it reduced sexuality to a binary and suggested that people of different sexualities supporting each other was a matter of formal “alliance” rather than basic human decency.  These days, I certainly feel glad to live in a society that is increasingly using inclusive language to craft and narrate queer spaces.  But I also realize the wisdom—if inadvertent at the time—in a name that illustrates the possibility of complex interplay between queer and straight identities.

Referring to myself as “straight” was also something I avoided before I could really give voice to why it made me so uncomfortable.  I was one of those kids who discovered at a pretty early age that they were interested in people with genitals different from their own.  But even though I never felt attracted to people with similar anatomy to my own, I never ruled out the possibility of that happening in the future either, nor did I feel any anxiety about that possibility.  I was fortunate to grow up in a home where my parents made clear that I would be loved equitably whether I were interested in males, females, intersex people, or all or none of the above.  Over time, the painful realization set in that many of my peers did not have that freedom.

I feel some of this pain now as I reflect on high school—a time I very much enjoyed that made me feel free to be myself both in the classroom and outside of it.  I did not realize at the time just how privileged I was.  I also had the wonderful privilege of a close friendship with an out gay male, and although I cringed at how he had been non-consensually outed by someone who was angry at him the previous year, I celebrated his self-assurance in enjoying an openly out life, as well as the degree to which the school community seemed to embrace him as a gay man.  It was only later, as my partners in more mature relationships gained a higher level of knowledge of their own sexuality and its social consequences, that I began to wonder if many of my peers had just ignored my friend, accepting him while at the same time erasing the core of who he was.

For reasons I have never really tried to unpack, I have generally felt most comfortable and happy in relationships with males who experience at least some degree of attraction to other male-looking people, even though I myself have never experienced attraction to a female-looking person.  And in terms of gender presentation, my partners have run the gamut from very rugged-looking to very delicate-looking, but all have embraced at least some degree of fluidity in relation to established gender norms.  Yet many did not understand what it meant to me to be agender, something I have known about myself with stunning clarity since long before I knew the technical term for it.  This growing sense of alienation made me reflect anew on my experiences in high school, and how differently I probably experienced the social environment surrounding my friend’s openness about his sexuality than he did.

I came to the uncomfortable and inexorable conclusion that although my high school was queer-friendly in many ways, it was fundamentally a straight space.  I would see this time and again in stories other friends told me about their own coming out—friends who had been so deeply closeted that not so much as a single rumor circulated about their sexuality when we were all in high school together.  These stories drove home just how much we were *not* “all in it together”, because togetherness and feelings of such were a privileged space for students whose sexuality did not deviate from those deeply entrenched norms.  Nobody questioned me for saying I did not feel threatened by the idea of one day being attracted to another female, because I was frequently seen in the company of males and it was well known that I had a history with several male students.  I rejected the term “straight” pretty vocally, but was that really enough?  Despite my openness about my gender identity, I also never considered the idea that I might myself be queer—that queer was more than just a double-edged term for “gay”.

In fact, the idea that I might be queer—and indeed, the very meaning of that term—did not register until I met my partner, the person I married just a few months ago.  In zer wedding vows, ze spoke softly about how I always *saw* who ze really was, in a world that often ignores zer entirely.  I could see my partner quite clearly—a bisexual, genderfluid person to whom I felt a pull like no other.  I celebrated zer sexuality and gender identity and thought about how nice it was to be with someone who really *got* it about my experience as an agender person, even though ze was not agender zerself.  But at the same time, I worried about not being “queer enough” to provide the kind of safe spaces that would truly nurture my partner.  This was a source of constant anxiety for me and frustration for my partner until one day, ze looked me in the eye and said, “Xan, this is what I’ve been trying to tell you all along.  You’re queer too.  You just don’t see it because you’ve always been embraced in straight spaces as well as queer ones.”

That got my attention.  I was still living with DID at the time, and looking back I wonder if this discussion might have been one of the events that led to my reintegration a few months later.  I learned that I was something called “heteroqueer”—a person who is attracted only to members of other sex groups, but feels comfortable with the possibility they might one day feel attracted to members of their own sex group.  Many heteroqueer people also queer gender and sexuality norms in other ways.  For example, I have experienced attraction to transmasculine people after they have achieved their physical transition goals.  I also queer gender every moment of every day by reminding people that there is no empirical relationship between what my body looks like, how I dress, how I behave, and whom I choose to invite into the most intimate spaces of my world.

Yet this was the first time I had ever come close to an integrated concept of what it meant to be both a “heterosexual” person and an agender person, or to prioritize spending my time in and enriching spaces for openly queer people, or to feel more fulfilled in relationships with bisexual partners, or any of those other things my high school activism had not remotely prepared me to address.  I just knew that I was “doing me”, whatever that meant, and that I felt a constant sense of anger and frustration that was starting to boil over.  Every time someone would use “straight” language or norms to describe my relationship with my partner, I would cringe and then start to go on the offensive.  And when people asked me stupid questions about my relationship with J, I fought to hold on to my composure.

My favorite of these ridiculous questions was “So J is bi…does that mean you’re bi now too?”  Yes, and being with a person who has a penis means that I have also magically grown a penis.  No, I am not bi.  As far as I know—and I have a fair amount of data to back up my suspicions at this point—I will never be bi.  And that is incredibly important, because the very fact that I exist—and that in so doing I make people acknowledge the heretofore unexamined reality that people like my partner exist—is still, even in today’s world, an affront to heteronormative thinking about relationships.  I have learned, with progressively greater degrees of discomfort and anger, that “straight” people are not supposed to want to date bisexual people, let alone marry them.  We are supposed to feel threatened and overwhelmed by their rampant, teeming, uncontrollable sexuality.  We are supposed to expect them to fuck anything that moves.  We are supposed to expect them never to feel fully satisfied by us.

Of course, those of us who *do* have bisexual partners know none of that has anything to do with bisexuality.  Nymphomania, hypersexuality, infidelity, ennui…these things all exist as well, and are worthy of attention.  But what emerges from daring to love a bisexual person in a straight world is a deep and nuanced knowledge of what “queer kinship” really means—and the responsibility I have in creating it.  I probably did some of these things unconsciously back in high school by affirming my friend and never erasing parts of his experience that broader norms and narratives could not seem to find spaces for—an example being the little-known attractions he had also experienced toward females, but generally those who exhibited aggressive and traditionally masculine behavior.  I saw my friend back then the same way I see my partner now, but I could not give voice to that sight even with him, let alone with anyone else.

Those of us who identify as heteroqueer have a unique opportunity to create queer kinship in places where it is not usually found—and indeed, where such kinship can make a profound impact.  We have a privilege reserved for few in our society, one that simultaneously grants us affirmation in both straight and queer spaces.  We speak both languages, as it were, but often spend so long battling norms that suggest we need to “pick a side” that we become exhausted and tapped out.  It is only since building a life with my partner that I have realized how much more freedom I have now, as an openly heteroqueer person whose partner and other loved ones see me and embrace me exactly as I am.  I feel like a complete person for the first time in my life, and it makes me ache for all those who cannot experience that fulfillment because there are no safe spaces in which to do so outside of intentional ones that only other queer people can access.

For those of us who constantly straddle the boundaries between queer and straight spaces, queer kinship is a precious responsibility that too often goes unmet.  We need to be more than allies who demur with phrases like “I’m not *really* queer”.  We are absolutely queer, and we absolutely need to be here.  But we also need to be *there*.  We need to keep spending time in the straight spaces where we are privileged to be welcome, and we need to keep breaking down the walls that keep our fellow queer people out—or as is more often the case, electrocute them if they attempt to enter.  In having the ear of both queer and straight communities simultaneously, we can challenge destructive norms about sexuality and gender and still escape to fight another day.  The scars we receive in these battles are worth every knotted inch of flesh, every jagged piece of skin.  We drink deeply from the nourishing well of queer kinship every day while also enjoying the continued embrace of our straight peers.  We must now build those wells for others in places where they can be accessed safely, without navigating pit traps or minefields.

Heteroqueer identity is an important cornerstone of queer kinship because it dismantles the idea that queer kinship cannot exist and thrive within straight spaces.  Embracing this identity, and taking the time to educate others about how queerness and straightness can intersect without destroying one another, offers more than just a means of liberating ourselves.  Rather, this work is profoundly essential for the overall goal of queer liberation.  Cultivating and nurturing queer kinship in straight spaces is worth doing at every opportunity, and at any cost.  When we do so together, we build a world in which everyone can truly “do them” instead of parroting this empty mantra to avoid working for real change.  Queer kinship is the path to a world in which closets exist only to hold clothing—a world in which every space is a safe one.

Have you seen me lately? A reflection on Queer Kinship

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In this week’s post, the first in our Queer Kinship series, J reflects on the meaning of Queer Kinship in their life.

Earlier this year, a student of mine interested in content analysis and the structure of science sought to do an independent research study. I had recently been asked an interesting question at a conference, and so I selected twenty-five years of publications by five prominent sociology journals and had my student use these journals to try to answer the question. The question was simple – how often does sociology include the study of Bi and Trans people? While there are more details in the work in progress stemming from the analysis, the simple answer to the question was that between the late 1980’s and 2013 sociology, rather than the study of society as a whole, was almost entirely monosexual and cisgender based in these five prominent publication outlets. Even counting articles that only mentioned BT existence, there was only about 1 piece per year on average throughout the time period and within the vast majority of pieces published focused on mostly heterosexual and cisgender populations.

As I’ve written elsewhere, the aforementioned project fits in well with my experiences as a bisexual (on the pansexual end of the spectrum) and transgender (formerly transsexual, currently genderqueer/non-binary/crossdresser identified as I continue considering transition) person in sociology as well as academia more broadly. Even though I have been lucky enough to land a stable position in a department full of (often impressively) supportive, accepting, and accountable colleagues, and to develop a network of fellow BTLG scholars at other places over the years, I generally experience an occupational world wherein people like me don’t exist in the assumptions of the monosexual (mostly on the heterosexual side of this binary) and cisgender people who dominate the field or in their published works. Most surveys, as colleagues and I have noted elsewhere, provide the bulk of generalized information from the field, and yet they rarely have any way to admit the existence – much less capture the experiences – of people like me. As noted by other BT writers, this is part of long term patterns of BT erasure within and beyond academic settings.

At the same time my student was analyzing sociological literature, I was analyzing daily life – my own especially but other BT peoples as well – as part of another project. In so doing, I was cataloguing the multitude of times and ways people like me – wholly or in part – are cisgendered or monosexualized by others in their everyday lives (i.e., assumed to fit binary notions of gender and sexuality predicated upon binary notions of biological sex as a determining force in the composition of human desire and self identification). I catalogued disparities in public when I did or did not wear skirts with a visible beard, the vastly different ways people acted in monosexual minority (i.e., lesbian and gay) spaces when I said ‘I like men’ versus when I said ‘I’m bi’ and when I said ‘I’m into drag’ versus when I said ‘I’m trans,” and the countless ways monosexual and cisgender people misgender and missexualize myself and others based on their own assumptions and stereotypes both when they expressed support for BT others and when they did not. Similar to the analysis of sociological literature and previous observations about academic life, the message was the same – the existence of people like me was at best problematic or confusing for most monosexual and cisgender people I encountered regardless of their personal positions within these binaries.

I could give many more examples like the ones above from my own life, from interviews – formal and personal – with other BT people, and from our-storical records related to BT existence and experience. Instead of seeking to catalogue such a list, I use the aforementioned examples to explain what Queer Kinship means to me.

In its simplest formulation, I see Queer Kinship as the relationships wherein I am allowed and even encouraged to exist and be seen by others. For me, Queer Kinship means places and groups and relationships where people like me are not unexpected or problematic. Queer Kinship, for me, refers to the very few spaces, relationships, and situations wherein people move past monosexist and cissexist assumptions and norms to not only accept or tolerate BT people of varied types, forms and experiences, but actively embrace, expect, and look for us in their daily engagement with the world. Queer Kinship, again for me, refers to the efforts some people make to learn about and support BT people of varied types and experiences before they are forced to by activism, tragedies that actually get some news coverage, or an awkward encounter demonstrating our existence in their world. Queer Kinship refers to the interactions with others where I don’t have to wonder if they see me or if they will cause me harm because they actually see me. In my own experience, and that of many other BT people (as well as many of our lesbian, gay, asexual, and otherwise Queer cousins), such spaces and audiences are incredibly rare, precious, and necessary for well being in a monosexist (as well as heterosexist), cissexist (as well as patriarchal) society.

For me, Queer Kinship and the visibility and break from the rest of society it gives me shows itself in differential reactions to the same stimuli. I think about the store clerk who spots me in the makeup aisle and proceeds to stare at me, follow me, and even ask if I’m in the right place as a result versus my life partner seeing me in the same place on another night and offering to get me some new eyeliner. I think about people looking at the fact that I’m in a committed relationship and asking if I’m heterosexual, monogamous or done with the “gender stuff” now versus my life partner and I talking about men we both find cute over drinks; about the ways we decide as a unit how monogamous, polyamorous or anywhere in between we decide to be at a given time; and about plans and details we would need to work out together if I do transition later in life. I think about people awkwardly shifting between cisgender pronouns and terms depending on how I appear in a given moment versus my best friends and life partner treating me equally well no matter how I’m dressed or appearing in a given moment. Because I’m lucky enough to have a kinship group that I can rely on and be there for every day, I can actually come up with far more examples of such discrepancies than I have room for here. In fact, I was actually saddened when I was working on this piece by how easy it was to make a list of such examples that was far too long for comfort.

In the end, for me, Queer Kinship matters because the people closest to me provide me with most of (and some weeks the only) times when I know I’m seen without it hurting in some way. In my profession, the literature my profession creates, and my daily life, I get by like so many others worried about any time my differences are noticed while also wishing I could be seen in a safe manner by the rest of the world. But in the eyes, arms, and moments spent with my own little Queer family and network, I get to be seen and I get to experience this without the fear of danger that accompanies such visibility in other spaces. That, for me, is the importance of Queer Kinship in the forms that show up in my own life, and the forms that show up in other ways for many other people I have come across over the years.

My Work Starts at Home

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Ashley Josleyn French was an educational consultant in New York City for over ten years before moving with her family to Winter Park, FL. In addition to chasing three children under seven, she is a PhD student and a lecturer in Sociology and Women’s Studies. She writes about the madness of it all at www.thestayathomesociologist.com. 

Toward the end of the school year, my son began talking about a student who visited his class for science twice a week named Freddie. The first time he mentioned Freddie, he said that Freddie had recently joined his science group. He said, “Mom, Freddie writes and talks like my sister. He has a teacher who sits with him all during class. Sometimes he has BIG tantrums!” I could tell by his tone that he felt that Freddie deserved some graciousness and love, but also that he didn’t understand why a kid his age was on a social and academic level of that of his three-year-old sister. I asked him, “Does Freddie like to do science as much as you do?” He said, “Oh, yes! He loves the projects!” I followed up, “Are you enjoying being with him?” “Yes,” he said enthusiastically, “He’s a part of our group!” I finished up with, “That’s great. Freddie learns differently than you, but he loves to learn just as much as you do. It’s important to always include new kids and make sure that they feel welcome. Freddie learns in a different way and might struggle with some of the typical first grade work, so its important to make sure that he is still comfortable and that everyone is kind to him.” “OK,” my biggest little one said.

The family is the first agent of socialization. In sociology, we talk about agents of socialization—social institutions that greatly influence us over the course of our lives, such as family, schooling, work, religious bodies, etc. The earliest and often most influential because of that early influence is the family. Our children learn from parents. They learn rather or not to say please and thank you either because we enforce the practice with punitive measures or because we ourselves say please and thank you in kindness to others. They learn to brush their teeth because we require it of them, or because they see us do it and join us in the practice each morning and evening in the intimate space of our bathrooms of our homes, where one would only do something like brush teeth with someone with whom they are tightly knit. They also learn how to respond to people who are different than us. Are we kind and inclusive with people who look different than us? Do they have a physical difference or disability? Are they too thick or too thin? Are they a different nationality or speak a different language? Are their clothes dirty? Is their car rusted out and old? Are they educated or uneducated? Are they progressive or conservative? The first agent of socialization is the family. Do we want our children to be kind and accepting and loving to other children and people, or cold and insensitive to differences? Will our children be helpful or hurtful? Are we helpful or hurtful?

As I was reading Sojourner Truth’s famous speech recently, I was reminded of this interaction with my oldest child and the crucial role that parents play in changing our society to be an inclusive, just and loving one. Exiting a life of slavery and entering a role as an activist, Sojourner Truth spoke to a group of women’s rights activists in Akron, Ohio, in 1851. Her famous speech, “Ain’t I a Woman?” resonates today regarding our continuing issues in this country with race, gender and poverty. She suggests that that she is not treated like a real citizen or “woman” by society because of her role as a former slave and because of her race.

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Ain’t I a Woman? Sojourner Truth:

“Well, children, where there is so much racket there must be something out of kilter. I think that ‘twixt the negroes of the South and the women of the North, all talking about rights, the white men will be in a fix pretty soon. But what’s all this here talking about?

That man over there says that women need to be helped into carriages and lifted over ditches, and to have the best place everywhere. Nobody ever helps me into carriages, or over mud-puddles, or gives me any best place! And ain’t I a woman? Look at me! Look at my arm! I could have ploughed and planted, and gathered into barns, and no man could head me! And ain’t I a woman? I could work as much and eat as much as a man- when I could get it- and bear the lash as well! And ain’t I a woman? I have borne thirteen children, and seen them most all sold off to slavery, and when I cried out with my mother’s grief, none but Jesus heard me! And ain’t I a woman?

Then they talk about this thing in the head; what’s this they call it? [Intellect, somebody whispers] That’s it, honey. What’s that got to do with women’s rights or negro’s rights? If my cup won’t hold but a pint, and yours holds a quart, wouldn’t you be mean not to let me have my little half measure-full?

Then that little man in black there, he says women can’t have as much rights as men, ’cause Christ wasn’t a woman! Where did your Christ come from? Where did your Christ come from? From God and a woman! Man had nothing to do with Him.

If the first woman God ever made was strong enough to turn the world upside down all alone, these women together ought to be able to turn it back, and get it right side up again! And now they is asking to do it, the men better let them.

Obliged to you for hearing me, and now old Sojourner ain’t got nothing more to say.”

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Her words foreshadow what social theorists in the 1990s began referring to as intersectionality. Intersectionality is a concept that suggests that social hierarchies such as race, gender, class, nationality should not be examined simply individually, but in the ways they mutually construct one another and how those layers of oppression interact. Patricia Hill Collins argues that very early on within families children are socialized into systems of power and hierarchy, making a transition to a life in a society of hierarchies based on social categories feel natural despite the fact that they are very much socially constructed. As we see these intersections of oppression in the lives and faces of our children’s classmates and friends, neighbors, colleagues, service people, etc., how can we speak to these, give them voice and teach our children to hear their stories, especially if our children function from a space of privilege?

As the most influential person in a child’s life, when parents are dismissive or unkind to people who are different for whatever reason, they are teaching their children, subtly and sometimes not so subtly, to participate in systems of hierarchy and oppression. Even in the seemingly most minor interactions with a salesperson or someone on the street to how I teach my children to interact and socialize with kids on the playground or at school, I find it to be my job to live what I learn and teach through the discipline of sociology. I want, I need to take this work home with me, to implement it. As an academic and a thoughtful parent, if I don’t use these tools at home, my writing and teaching make no sense. It is hard to be thoughtful each moment with children. It would be easier to put them in front of a screen or send them outside so I can finish my work. But this is my work. Molding minds to view life through a fresh lens, and so for me, as for all parents, my work in socialization with my children starts at home.

Of Children Born: The Journey of an Agender Lesbian Mother

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Simone Kolysh is a PhD Candidate in Sociology at the CUNY Graduate Center. They are also an adjunct professor at Brooklyn College and Lehman College, teaching in Women’s Studies and Sociology. Their work addresses intersections of gender, sexuality and race.  In this post, Simone reflects on being an agender, lesbian mother of three children that parents against dominant narratives of gender and sexuality in their queer household. 

My body is a mother’s body. It is not a young body with smooth lines from the thighs to the small of the back. Mine is a body of valleys, soft and reminiscent of uterine battles and pain. It is a jagged, unshaven landscape full of stretch marks and cowardly veins that collapsed under pregnancy weight. Mine is a body that managed a labor without contractions and the darkness of postpartum depression, as the light of my first child was brought into the world on a hot July day. I rocked this body around the bed unable to loosen it free of panic but kept it close to my child so that no matter what was breaking inside me, I’d keep him whole.

My body is a mother’s body. It is not a dancer’s body with perfect posture and well-shaped legs. Mine is a body that knows what an obsession dance can be but that movement no longer comes first. Though it responds to an inviting embrace of the Argentine Tango, it does so with a reluctant and bothered ankle, broken weeks before the light of my second child was brought into the world on the day I, too, was born just twenty-five years prior. I crumbled under my own pressure, onto a mailbox at the corner of Kings Highway and West 8th street. Cursing, I hopped home thinking that to labor with a broken limb is just what I needed.

My body is a mother’s body. It is not my mother’s body with frail shoulders and cheeks full of Botox. Mine is a body of risks, piercings and tattoo ink. When the light is right and the mirror is bribed, I can see what my lover finds gorgeous. And though I claw at my body because it does not always make sense to me, I remember how bravely it got me through my only labor without pain meds, as the light of my third child was rushed into the world at the Brooklyn Birthing Center. When I now feel my three children collapse onto my breasts that have struggled to breastfeed, I know that my body is a mother’s body and it is well worth the worship.

______ ~ ______

There is nothing like a slurred ‘You’re so sexy, baby’ from some guy on the street to remind me that I am seen as a woman despite holding an agender identity. Even men that aren’t strangers have said that I am ‘so obviously a woman’ because I turn them on. Such experiences of sexism, laced with homophobia and racism when I am with my Black female partner, make it obvious that my struggle around gender takes a backseat to our collective struggle as people of marginalized gender and sexual identities, trying to navigate a world where white, cisgender, and heterosexual men hold a significant amount of power.

Yet white, cisgender and heterosexual men may be the future demographic of my three children, ages eight, six and one. Therein lies the paradox of an agender lesbian mother trying to raise feminist kids in a society that teaches boys to put down women and people that don’t conform to mainstream ideas of gender and sexuality. As a scholar of gender and sexuality, a sociologist and a Women’s Studies professor, I have given my kids a critical eye towards gender, sexual and racial hierarchies. It also happens that my middle child has taken a gender non-conforming path, linking once more our gender journey as mother and child.

Shortly before he was born, I began to struggle with the category of ‘woman’ into which I was born and raised. Once I admitted to myself that I could not finish the sentence, ‘I’m a woman because,’ and explored identities beyond the gender binary, I was able to more fiercely carve out a safe space for my children. Perhaps unsurprisingly, one of the first battles took place between me and my biological family that not only rejects and erases my gender and sexual identities but also believes I am causing my children great psychological harm. So before I can think through my gender identity and how it has evolved through my motherhood, I must face how my own mother shaped my ideas of womanhood.

My mother’s main lesson was that one’s power as a woman comes from seducing men and appealing to the heterosexual male gaze, in addition to becoming a mother and a wife. Whether it was because our family is Russian-Armenian or that the prevailing attitude across most cultures is one of patriarchy does not matter now. When I showed interest in taking charge of my pleasure or being with women, she took me to see a psychiatrist. When, at twelve, I came out as bisexual, the closest word I knew at the time to describe being attracted to more than just men, she cried. When I married at twenty, she was glad, hoping it was all a phase.

Rather immediately, I became obsessed with getting pregnant since that meant ‘having it all.’ Three years later, I was a mother of an eight-month-old child, banished from my house for breaking up with my husband. I was in love with another man, someone who was my equal. He helped me come into my motherhood by taking over my child’s care from my mother who tried her hardest to teach my son traditional gender norms. To this day, my first child is more aligned with ‘boy things’ because at the time I did not feel strong enough to stand up to my family.

My new partner supported my being queer, the label I took up during college, and my exploration of gender. When we married, I was pregnant and determined to raise this child differently. As I became more involved in LGBTQ scholarship and activism, I struggled with my gender identity and it took about three years to publicly come out as gender non-conforming, during a panel on transgender identities. It was a fleeting moment of being true to myself in a public setting since, without constant coming out, no one can ‘tell’ I am not a woman.

I have to come out again and again because it never quite sinks in and some people simply forget that I am agender or that my pronouns are ‘they/them.’ Generally, I never correct people if they use ‘she/hers’ because I am glad to align myself with women and do, to a large extent, experience the world as women do. Though I would like to not be perceived as any gender, changing my physical appearance was never essential – I do not want to change my body, just the way others link it to womanhood. Not making a physical transition makes it difficult for people to see me as agender.

Even though mothering, to me, does not mean I’m a woman, it adds to my invisibility as an agender person because of the assumption that if one has been pregnant and birthed three children, that they are even more of a woman. It certainly made my biological family like me more, because I gave them ‘three healthy boys,’ a marker of status within a sexist community. It is as if the assumed gender of my children helped solidify my womanhood. And, as a mother, I was now responsible for raising them properly, to become grown men able to provide for their families through upward mobility.

Which is why I am glad that my oldest child’s first Barbie was the Halloween Barbie, scary not only for its lack of realistic measurements. Growing up in Russia, having a Barbie meant you were better off than other families. When naked ‘pupsiki,’ which happened to be gender-neutral dolls, were all we could afford, Barbie symbolized a ‘better life,’ a life sought in the United States. Now I am raising my own children in Brooklyn, New York, but there is little place for the Russian-Armenian values of my past. After all, it was not in my parent’s dreams to have their grandsons play with dolls.

Instead of being groomed to be ‘real men,’ my kids are raised free of gender norms, which allows them to develop their identities safely as they learn more and more about the world. And, prior to learning about gender, each of them gives me a gift. As an agender person, moments when I am not gendered are essential to my wellbeing and how I see myself but they are rare. When my children are young, they are able to see me as Simone or Mommy without gendering me or seeing me as different from them. Even when they have noticed physical differences between their bodies and mine, I have explained everything from menstruation to genital shape without attaching biology to gender.

So when my kids look at me during those early years, their eyes are a place of freedom. In a way, motherhood has given me a way to find moments of validation for my agender identity, even if they are short-lived. I cannot say enough of these transformative experiences because I know what it feels like when a person with no pre-conceived notions of gender is able to see me. The intrusion that takes place when the outside world teaches them their mother is a woman is always disturbing and requires significant re-education. Long ago, I made a blog called Gender/Detki – Rearing Logical Children. In it, I had hoped to provide concrete examples of how I addressed gender and sexuality with my children.

Looking over the blog now, it is clear that my children knew little of gender until they interacted with their maternal grandparents, who live downstairs, or their Russian preschool environment. Their father and I never called them boys and they were allowed to play with any toy and wear any article of clothing, including dresses, tutus and fairy wings. Their hair was never cut and they never heard a single thing about their behavior not ‘being appropriate for boys.’ Naturally, what they learned from us, their chosen family made up of multiple parents and family friends, clashed with what they learned from others.

It was quite a surprise for my children to learn that boys and girls are often separated in preschool throughout the day, that boys and girls have to go to different bathrooms and that specific recital roles, of gnomes or princesses, are reserved by gender. The length of their hair became an issue, because other kids would say they look like girls and their ‘girly shirts’ got laughs. When I dealt with the administrators, I did not disclose my agender identity or any additional details about my family. I argued that if girls were getting their hair styled on a daily basis, the same can be done with my children’s hair and reminded them of the fact that we paid generously for tuition.

Once my kids got attached to their teachers, they wondered whether gender was good or bad. I taught them that people have different opinions and that nobody has the right to police how their gender is expressed. Sadly, because of their encounters with other adults and children, they have learned to expect harassment based on their choice of clothing, toys or behavior. Some of the time, they would give in to the pressure and, for example, ask me to cut their hair. Because it is their body and their choice, I have done so but with tears in my eyes. The pain and the anger I feel on behalf of my children exacerbates my own trauma.

Now older and in public school, my kids manage a lot more backlash, which is hard for me to watch. As an adult, I have not yet figured how to freely express my agender identity without having to constantly educate uninformed cisgender people. Why should children as young as five have to face a similar struggle? Because knowledge is power, I have taught my kids about the construction of the sex and gender binaries, the link to sexuality and how gender and sexuality are affected by one’s race, class and any number of other social factors. These topics are hard enough for my college students to grasp but the way people react to my kids’ gender ‘deviance’ makes such discussions necessary.

I am proud to say that the more I learn about gender and sexuality and about myself, the more my children are able to benefit and feel supported in their own exploration. They have shown resilience and courage by resisting harassment and trying to live truthfully. Here, I would like to return to my middle child’s gender non-conforming path. Most recently, he has become quite interested in wearing a ‘girl’s bathing suit,’ which is not going to go over well at his swim classes, summer day camp or with my biological family. Part of my motherhood journey is to be an advocate for my child and so I am gearing up to have several conversations so that he may be able to wear his turquoise bathing suit full of ruffles. When I caution him, I am sad to say that he may not be allowed to wear it and that his grandmother and others will continue to make comments. He nods and answers, ‘I will ignore them, Mama, I will just ignore them.’

When I speak to others on his behalf, part of me wants to say that I am also like him, weird and proud of my ‘deviance,’ and that I would love for my kids to be part of the LGBTQ community. But their mother’s deviance makes it hard for others to accept my children. Now that I am firmly at peace with my lesbian identity, there are new definitions to go over since their peers are throwing around casually homophobic remarks. To me it is not difficult to reconcile being agender and a lesbian but trying to explain to my kids why the label ‘lesbian’ still applies even if I am not a woman is a bit of a challenge. What I say is that others perceive me as a woman which means having to face sexism and homophobia.

If I did not have to explain to my kids why much of the world thinks our family is ‘wrong,’ they wouldn’t need an explanation because they have been raised to embrace difference. Regardless of divorce, changes in family structure, new gender and sexual identities, like their mother’s lesbianism or future children, they are surrounded by loving adults who will help them usher in a new world. Along the way, they will offer acceptance in return. Want to see an example? I recently asked my middle child about his feelings on my not wanting a gender, on being agender. Not looking up from his video game, he replied, “I feel fine because it’s your choice and gender doesn’t matter at all.”

“Hope” Springs Forth: New Article Out in Sociology of Health and Illness!

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In this post, Xan Nowakowski reflects on a recent publication in Sociology of Health and Illness concerning the personal, political, and structural experience of managing chronic conditions in everyday life.

Hello readers! If you’ve been following WWIH for a while, or just know any of us editors outside of the blog, you may have heard a bit about my new article in Sociology of Health and Illness. It’s a critical analysis of my experiences with a prescription drug that has excellent benefits and a lot of potential side effects, and the many sociological lessons learned from trying to find the right balance between the two.

A lot of the illness management literature deconstructs major changes in health status, and the impacts of these events on identity formation and performance. This literature doesn’t yet contain as diverse an array of information and analysis on the day-to-day nuances of living with chronic conditions. I’m hoping to inspire other scholars to delve more into that area, and to do so with a richly intersectional perspective on relationships between health and social life.

To have this article published in Sociology of Health and Illness is a dream come true, and the product of about two years’ worth of work. So I’m thrilled to report that “Hope Is a Four-Letter Word: Riding the Emotional Rollercoaster of Illness Management” is now available online, along with an accompanying video abstract introducing the piece. The print version of the article will appear later this year. In the meantime, if you want to read the article and are having trouble getting access to the online version, just drop me an email.

I also encourage everyone to share the link to the online version with others who may be interested in this topic. I quite deliberately constructed this article as a narrative with theoretical commentary, not a research methods piece. It’s accessible for a wide variety of audiences, not just academics. I wrote the paper with patients, families, clinicians, advocates, and caregivers all well in mind. WWIH readers will recognize a lot of our key themes here: intersectionality of multiple social positions and roles, gender performances and violations of norms, racial and ethnic inequality, symbolic interactionism as a tool for understanding health experience, and of course a hefty dose of storytelling!

An essential contribution of this piece is detailed insight into the interplay between personality and social structure in the experience of chronic illness and the management thereof. By using my own voice to explore the complexities of different theories of social inequality, I hope to help build new ground for dialogue about what chronic illness feels like day-to-day that can inspire improvements in both community support and clinical care. I also hope to open doors for other scholars who occupy one or more marginalized social locations to share and critically analyze their own stories of illness management in everyday life.

On not Writing

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Erika Gisela Abad has a Ph.D. in American Studies, and works at Center for Puerto Rican Studies investigating intersectionality, cultural experience, and oral history among Puerto Rican communities and families.  In this post, Erika reflects on how her research in Puerto Rican Chicago sparks tension and memory in dialogues and debates with her mother.  

I struggle with not writing. Sitting with my mom after a long day’s work watching ridiculous TV shows on streaming media. I do this in the midst of professional uncertainty when my conscious tells me it is important to, well, send out applications. A woman struggling with the invisibility of her work, of her motherhood, closing the computer allows me to make her visible in the mundanity of the everyday to which we’ve arrived.

A mixed class Latina the second to finish college, the first PhD, I got this degree because making a living as a writer a mentor once told me, was going to be difficult. In the place many predicted the MFA would land me, I sit with my mom because of the reasons I write:

To heal, to release anger, to get to truths neither speaking nor working reveal. Drafting and talking through to forgive what moments trauma doesn’t want to let go. As I once wrote a mentor, it’s about getting to the table and trying to write what the other person coming to the table could or would look like. It’s about practicing with characters and metaphors how to listen through the trauma, whether the trauma be colonial, patriarchal or material – whether the trauma be that which has been named or that which must be kept invisible. Sometimes the struggle to survive demands struggles be kept silent. Human suffering, as inevitable as it is, often gets lost in the pursuit of fantasy as well as forgetting. Coming to the table is also about assessing whether the wheel turning revolution can be rebuilt or if the pieces of memory missing – memory missing because of what can’t yet be named – requires so many of us to rebuild it.

And sitting with my mom is about waiting, waiting for memory to reappear. And her memories awaken in the memories of others I record as an oral historian. Memories of parking lots turned into playgrounds, memories of late buses to colleges she never imagined. Memories of drinking Dr. Pepper for the first time, her comfort food, the comfort of being able to know more, taste more than poverty and patriarchy permitted to a young woman growing up where Puerto Ricans were trying to make place. These memories give her life beyond the college she never finished for no other reason than being by herself. Her stories lifting up from computer screens in a voice still weary of helping and reaching, come to life beyond the place of making meaning of leaving that requires returning, overwhelmed by isolation.

And I sit with that, when our skin color differences do not write away the sameness of racism we experience. A paleness that encourages forgetting that my brownness writes on the page, for the stage in ways that have her admit—not to me—that the fight continues. Responses to racism are coded in the traumas we share. Retorts and resistance colored by the adverse childhood experiences that divide us. Sitting is all she wants at the end of the day, at the end of days running, at the end of years climbing to find stable ground in which to root, in which to lift me, among her other children higher. My hands race and wring, legs twitch because work, all the kinds, exige movement.

And I struggle to not write in those moments: moments where the cogs in my head turn too fast for her to keep up; when the questions she asks receive huffs and stomps out looking for roads bigger than the rooms we occupy. In those moments where the grumbles she makes about the car driver who works when she doesn’t, because the car that is freedom to her and is more work to me in ways that put her back on the bus, on the train to move because her fixed time challenges the time that, for me, remains in constant question. The need for work fuels us in speeds and codes the other doesn’t understand.

It takes seconds to remember a woman speaking of a girl ashamed and strained by the laundry she carries on the bus. And I see my mom there, then, aching and taking days off to not have to, again cross the street with bags and baskets. She bought to own to never again walk or rent or borrow. She works to have the luxury, luxuries she couldn’t have back then, then when Puerto Ricans were beginning to make meaning, Puerto Ricans who form the history I collect. Her life fills up in the margins of those stories, of those whose mark on Puerto Rican Chicago get printed in newspapers, shine in their awards, appear on screens to see. Those Puerto Ricans now, in between arguments and questions, spark her to remember her story. Histories she lived differently, differently for reasons the more I learn from others, the more she reveals.

So I stretch and listen and sit still, waiting, waiting till she’s asleep to pull out the books, to open the pc, to take out the pen and paper to write. Because writing is still needed to heal, to move, to forgive, to let go, to uncover, to remember. But not writing—not writing in those moments I steal from reason, from economy—allows me to say thank you, thank you the only way a struggling writer knows how. By counting the wrinkles in her face, the sighs in her stories, knowing that, in between them, remain moments and movements to keep me writing.