“You Poor Thing”: New Article Out in The Qualitative Report!

In this post, Xan Nowakowski reflects on and shares a recent publication in Qualitative Report (available at the link at the end of the post free of charge as an open access document) concerning the embodiment and management of visible chronic illness in daily life.  

Hello again readers! It’s a new season and a new academic year, and I’m happy to report that I also have a new autoethnographic publication coming out this week. If you’ve been following WWIH for a while, you may remember that earlier this year Sociology of Health and Illness published a piece called “Hope Is a Four-Letter Word: Riding the Emotional Rollercoaster of Illness Management”. This article, which focuses on the day-to-day processes and experiences of living with chronic disease, is still available online along with a video abstract introducing the piece.

In the process of writing “Hope Is a Four-Letter Word” I realized there was another rich topic nested within that study, and wound up breaking this theme out into its own critical autoethnography. Specifically, I focused on the nuances of visibility and representation for people whose chronic conditions produce readily apparent changes in physical appearance. The title comes from a comment made to me many years ago as the symptoms of my autoimmune disease became more visible to outside observers.

In this new autoethnography, I compare and contrast my own experiences of living inside a visibly ill body with others’ stated and implicit perceptions of what my life must be like. In doing so, I explore and refine theories of illness as deviance to accommodate multiple intersecting levels of divergence from normative expectations. I use interactionist sociological theories as well as a variety of other scholarly literature to analyze and contextualize my own lived experiences of embodying chronic illness.

As with most of my work, this piece strongly emphasizes the complex and dynamic interplay of multiple domains of life. These include personality traits, social structure, cultural context, political climate, and many more. Likewise, I focus on concepts of health equity and use my own experiences to amplify attention to persistent systems of marginalization and the voices of those affected. Above all else, I encourage other scholars with chronic conditions to share their own experiences of negotiating visible disease, and to advocate for active incorporation of these narratives in both formal systems of health care and informal systems of social support.

Please feel free to download and read the article at no cost here.

Queer Bowls: On Mothering as Failure, Healing and Survival.

Simone Kolysh is a PhD Candidate in Sociology at the CUNY Graduate Center. They are also an adjunct professor at Brooklyn College and Lehman College, teaching in Women’s Studies and Sociology. Their work addresses intersections of gender, sexuality and race.  In this post, the second in our Queer Kinship Series, Simone reflects on experiences as a Queer parent. 

 

My mother, having caught me walking slowly by her couch, says ‘Can I ask you something?’ and I know that no good will come of it.

I hear ‘Why do you put a dress on him when he doesn’t know he shouldn’t wear it?’

I’m tired.

Rubbing my eyelids, I say, ‘Because he asks for it…because he’s happy in it.’

I leave.

Why does she even bother, I think, knowing full well that we won’t change each other’s minds? It is my three children, two marriages, and several gender and sexual developments in the ‘wrong direction’ too late for her to still attempt these conversations.

This time, the ‘he’ in question is my 2-year-old. He, and I use that pronoun tentatively, does not know gender for now or that most of the world will not understand that he should wear dresses just because. This child about whom my mother worries is not the one I want to talk about lately. I wish she’d talk to me about his sibling, the kid that’s 7 years old, the one using ‘she’ and ‘they’ pronouns as of last month. She wears dresses a lot more and says she’ll be a girl if my next child is not or that, you know, she is a girl but it’s complicated. I know that feeling. Gender is complicated for me too, as an agender lesbian person. Or, rather, it is very simple but the rest of the world makes it difficult.

She’s the daughter I was always scared to raise and a somewhat unexpected one at that, because while no one really thought this child would follow a straight path, pun intended, I did not know it would be now that she would say she’s trans. I whisper ‘I’m not ready’ and ‘But if anyone can raise her, it’ll be you’ back and forth in my head. My mother should ask me about what is going on but she won’t because she thinks of her as an already lost cause, the way she thinks of me. To her, there is still hope for my 2-year-old and maybe, if she starts her attacks on my parenting early enough, the way she did with my oldest, now 10, perhaps my youngest will grow up to be a boy.

So when I think of queer kinship, I think of my mother as its antithesis. My life will be forever marked by the enormous failure that is her lack of mothering. The space between her as a woman and me as a person is vast and monstrous-looking because of many traumas and I will always mourn the kind of acceptance and support that a mother should give her child. As part of the mourning process, I, like many others, have ripped out my roots and shred them swiftly and without regret. Yet, her actual physical being remains in my house and in my life and I just know that even when she dies, the many things she’s done and said will always haunt me until I die and perhaps bleed into my own parenting in ways unknown.

Sometimes, I wonder if my own fervent commitment to mothering my children and other people in my life is an act of rebellion against such haunting. I did not enter motherhood to rebel, quite the opposite, but I recommit to it time and again because, to me, it is now a clear political act. After all, mothers are treated like replaceable trinkets that are not worth much while others pay lip service to their important social location. In reality, many of us are sentenced to parenthood and find ourselves utterly full of despair and without support. Amazingly, we persevere and rarely abandon our young or each other. We thrive and make it work, despite many hardships and experiences of oppression. Further, the kind of mothering queer and trans folks are intimately involved in is a genuinely healing process without which there would be a lot more broken people.

Which is why my second thought regarding queer kinship goes to the Japanese art called Kintsugi, in which broken bowls are repaired with gold and other precious metals, so as to mark the history of the broken object instead of hiding that it’s been broken. Many of us that are queer and trans carry around deep mother wounds, even as if we see our own mothers broken before us. Many of us are now parents ourselves, trying to preserve our children and minimize their own shattering. All of us are queer bowls that have been repaired, sometimes carefully and sometimes without anyone noticing, by the numerous experiences, friendships and relationships we’ve had with others that are ‘deviants like us.’

What are the ways in which we are connected? In some ways, the making and sustaining of a queer kinship network defies a clear articulation. Sometimes, they are my friends from way back when; sometimes they are my students. Other times, they are strangers in the traditional sense but they are writing and living and surviving and providing all of us with models of being, of building families and of queer survival. In turn, they look to me for inspiration, for the kind of adult and parent they’d like to be, for ways to talk about sex, gender, and sexuality with kids or anyone else. Each of us thinks the other is brave and strong but each of us feels uncertain and precarious. We are the next generation or activists, scholars and elders. Our children, just like us, are growing up in an alternate dimension, a dimension that imagines a different future, while the general sense of reality is still a mainstay of a white hetero-patriarchy.

I find the constant fight to make a different future happen in my house and inside myself to be exhausting in profound ways but my final thought about queer kinship is that it is worth fighting for, because we cannot live a different life, a life without authenticity, and we must try to stick around so that others can do the same. Nevertheless, we must also speak to the wounds we bear on a daily basis because they build on our childhood wounds. As much as we mother each other, we cannot escape the fact that we have been failed by those who were supposed to do that work instead. When I think of my mother, I do not understand her bowl. She has not healed through me. Instead, she took the jagged pieces of her broken self and cut me constantly without hesitation, as if my tears and my pain are good enough results. When I think of my bowl, its earliest cracks have been the biggest and the gold with which they are now filled is very queer, the kind of queer people say is radical, as if that word has any definition. As for my trans daughter’s bowl, her childhood cracks will never be as bad as mine because the gold that is my queer kinship network is the kind of gold that alchemists chased through the ages, rare and powerful. That is the gold that will now coarse through her veins untamed and for that I will be eternally grateful to the many people that, by their existence alone, have made it easier for me to be this strong a mother, to be this strong a queer warrior.

Dreams

 

In this post, J. Sumerau reflects on the possibility of focusing on and talking about dreams in contexts where we are more often encouraged to focus on what we should do rather than what we wish for.

A couple months ago, I posted a piece here about the emphasis on obligations, or the dreaded should, I have noticed so many fellow academics wrestling with over the years.  In the piece, I noted the possibility of shifting our focus from what we should be doing to what we have actually done that might deserve some credit from us or others.

Based on messages and discussions with people, as well as my own reflections, I could likely add more to the piece I published at this point, but that is not what I want to do today.  Instead, I want to talk a little bit about dreams and the importance of them – the wants instead of the shoulds – for self care and fulfillment.

 

Did you have a dream when you were younger or last night?

 

Does your current life, career, or circumstance match this dream or have you on a path to reaching it?

 

I think these are important questions that I never hear people talk about within or even beyond the academy. Social psychologists have even noted that having dreams is a very important aspect of selfhood, whether or not such dreams ever come true in one’s life. They provide motivation, joy, pain, and other emotional experiences that facilitate growth and development in a wide variety of ways. Of course, this makes me wonder why I don’t often hear people talking about their dreams. More often, I hear people talking about what they are doing, should be doing, have to do, or haven’t gotten done yet. I fully admit, as I noted in the previous piece, that academic culture especially seems to encourage – if not require – these questions much more so than any talk about desire, hopes, or dreams for the world or one’s self. At the same time, I think we – myself included at times – miss something when we forget to also think about whatever we might wish for, deeply desire, and hope for in our best imagined versions of our world and life.

I can’t pretend to evaluate the dreams of another, but I do think dreams are very important whatever shape they take. I’m reminded of friends and colleagues I admire who dreamed of being academics, teachers, scholars, researchers, and university administrators their whole lives. At the same time, I think about the fact that this was not the case for me, and that I kind of stumbled into an academic life as a way to facilitate and fund my actual dreams of being a writer and activist. In both cases, my colleagues and I had dreams that we ultimately got to touch in our own lives for various reasons and thanks to a lot of things beyond our control going well. Thinking about these things leads me to wonder what other people dream about, what do other people want most in the imagined case where it somehow works out, and what discussions about these questions might reveal about ourselves, about others, and about our lives.

I’m also reminded of just as many friends and colleagues I admire who dreamed of things that never came true, or continue to dream of things they are still chasing.  In both of these cases and similar to the above, the dreams themselves speak to the people, what they value, what they desire, and what matters to them most once upon a time, in the present, or in some imagined future.  Thinking about this leads me to wonder what other dreams people have given up, what dreams changed over time as people learned more about themselves and the world, and how past and current dreams or other desires speak to one’s current life or efforts.

As I said, I can’t offer any real answers to these questions, but I thought it might be nice to at least broach the conversation. I thus invite people to think about, write about even on this site if you wish, and consider what your dreams might be, and what such reflection might tell you about yourself and others.  I’ll close this post with a simple question.

What do you get to do that feeds you enough to make the things you have to do worthwhile and what do you have to do to facilitate your ability to do the things you really want to do?

Happy Birthday Write Where It Hurts

This week the Write Where It Hurts blog is one year old. With this in mind, we thought it might be useful to look back over the past year, express our appreciation to the many people who have contributed to the growth and development of the blog and its associated social media sites, and glance toward the coming year.

On June 6, 2015, we launched Write Where It Hurts online and on social media sites with the hope of providing resources for and generating conversation about the personal and emotional aspects of teaching, research, service, activism, and other elements of scholarly and creative life and experience. With this goal in mind, we spent the year utilizing our social media presence to disseminate information and resources, and posting 42 blogs covering a wide variety of topics from a wide variety of backgrounds, perspectives, and traditions. Our hope was and remains to, as one regular reader noted at a recent conference, create a space for open dialogue as well as resources for people managing the personal and emotional aspects of academic and activist life.

Whether looking at numbers or conversations, the past year exceeded any expectations we had at the onset of this project. We have received word of cases where posts from the blog have been useful resources for teaching in classrooms, educating potential allies in activist groups, and sharing experiences in interpersonal settings. At the same time, the blog has garnered much more traffic and attention than we expected it to (especially in the first year), and we have had far more people seek us out at conferences and online for further discussion than we thought would happen. At the same, response to our social media sites has been far more active than we initially expected, and has led to interesting and useful collaborations. All of these and other observations throughout the year suggest this type of space is useful for many people, and encourage us to continue developing it for broader use.

We have also benefitted tremendously in the past year from the talent and bravery of our guest authors. We have truly been privileged to work with incredibly talented and insightful guest writers, and in each case, we – as well as the blog – have benefitted immensely from their perspectives, experiences, and analyses. It is with this in mind that we reiterate our ongoing calls for guest contributors, and encourage anyone looking for a space to Write Where It Hurts to reach out to us with your ideas, compositions, and other thoughts as there may well be space for you on the blog and there may well be others who would benefit from your offerings.

As we move forward, we simply wish to thank you all for an incredible first year in the academic blogging world. Thank you to all the readers, sharers, tweeters, guest writers, and others who made this year possible. Thank you as well to all the people in person and / or online who shared with us the ways the blog posts and / or social media sites were useful to you personally and / or professionally. Thank you all for making Write Where It Hurts first birthday feel like a celebration. We will continue to work on the blog and on social media, and we look forward to all the conversations to come.

Xan, J, & Lain

Of Children Born: The Journey of an Agender Lesbian Mother

Simone Kolysh is a PhD Candidate in Sociology at the CUNY Graduate Center. They are also an adjunct professor at Brooklyn College and Lehman College, teaching in Women’s Studies and Sociology. Their work addresses intersections of gender, sexuality and race.  In this post, Simone reflects on being an agender, lesbian mother of three children that parents against dominant narratives of gender and sexuality in their queer household. 

My body is a mother’s body. It is not a young body with smooth lines from the thighs to the small of the back. Mine is a body of valleys, soft and reminiscent of uterine battles and pain. It is a jagged, unshaven landscape full of stretch marks and cowardly veins that collapsed under pregnancy weight. Mine is a body that managed a labor without contractions and the darkness of postpartum depression, as the light of my first child was brought into the world on a hot July day. I rocked this body around the bed unable to loosen it free of panic but kept it close to my child so that no matter what was breaking inside me, I’d keep him whole.

My body is a mother’s body. It is not a dancer’s body with perfect posture and well-shaped legs. Mine is a body that knows what an obsession dance can be but that movement no longer comes first. Though it responds to an inviting embrace of the Argentine Tango, it does so with a reluctant and bothered ankle, broken weeks before the light of my second child was brought into the world on the day I, too, was born just twenty-five years prior. I crumbled under my own pressure, onto a mailbox at the corner of Kings Highway and West 8th street. Cursing, I hopped home thinking that to labor with a broken limb is just what I needed.

My body is a mother’s body. It is not my mother’s body with frail shoulders and cheeks full of Botox. Mine is a body of risks, piercings and tattoo ink. When the light is right and the mirror is bribed, I can see what my lover finds gorgeous. And though I claw at my body because it does not always make sense to me, I remember how bravely it got me through my only labor without pain meds, as the light of my third child was rushed into the world at the Brooklyn Birthing Center. When I now feel my three children collapse onto my breasts that have struggled to breastfeed, I know that my body is a mother’s body and it is well worth the worship.

______ ~ ______

There is nothing like a slurred ‘You’re so sexy, baby’ from some guy on the street to remind me that I am seen as a woman despite holding an agender identity. Even men that aren’t strangers have said that I am ‘so obviously a woman’ because I turn them on. Such experiences of sexism, laced with homophobia and racism when I am with my Black female partner, make it obvious that my struggle around gender takes a backseat to our collective struggle as people of marginalized gender and sexual identities, trying to navigate a world where white, cisgender, and heterosexual men hold a significant amount of power.

Yet white, cisgender and heterosexual men may be the future demographic of my three children, ages eight, six and one. Therein lies the paradox of an agender lesbian mother trying to raise feminist kids in a society that teaches boys to put down women and people that don’t conform to mainstream ideas of gender and sexuality. As a scholar of gender and sexuality, a sociologist and a Women’s Studies professor, I have given my kids a critical eye towards gender, sexual and racial hierarchies. It also happens that my middle child has taken a gender non-conforming path, linking once more our gender journey as mother and child.

Shortly before he was born, I began to struggle with the category of ‘woman’ into which I was born and raised. Once I admitted to myself that I could not finish the sentence, ‘I’m a woman because,’ and explored identities beyond the gender binary, I was able to more fiercely carve out a safe space for my children. Perhaps unsurprisingly, one of the first battles took place between me and my biological family that not only rejects and erases my gender and sexual identities but also believes I am causing my children great psychological harm. So before I can think through my gender identity and how it has evolved through my motherhood, I must face how my own mother shaped my ideas of womanhood.

My mother’s main lesson was that one’s power as a woman comes from seducing men and appealing to the heterosexual male gaze, in addition to becoming a mother and a wife. Whether it was because our family is Russian-Armenian or that the prevailing attitude across most cultures is one of patriarchy does not matter now. When I showed interest in taking charge of my pleasure or being with women, she took me to see a psychiatrist. When, at twelve, I came out as bisexual, the closest word I knew at the time to describe being attracted to more than just men, she cried. When I married at twenty, she was glad, hoping it was all a phase.

Rather immediately, I became obsessed with getting pregnant since that meant ‘having it all.’ Three years later, I was a mother of an eight-month-old child, banished from my house for breaking up with my husband. I was in love with another man, someone who was my equal. He helped me come into my motherhood by taking over my child’s care from my mother who tried her hardest to teach my son traditional gender norms. To this day, my first child is more aligned with ‘boy things’ because at the time I did not feel strong enough to stand up to my family.

My new partner supported my being queer, the label I took up during college, and my exploration of gender. When we married, I was pregnant and determined to raise this child differently. As I became more involved in LGBTQ scholarship and activism, I struggled with my gender identity and it took about three years to publicly come out as gender non-conforming, during a panel on transgender identities. It was a fleeting moment of being true to myself in a public setting since, without constant coming out, no one can ‘tell’ I am not a woman.

I have to come out again and again because it never quite sinks in and some people simply forget that I am agender or that my pronouns are ‘they/them.’ Generally, I never correct people if they use ‘she/hers’ because I am glad to align myself with women and do, to a large extent, experience the world as women do. Though I would like to not be perceived as any gender, changing my physical appearance was never essential – I do not want to change my body, just the way others link it to womanhood. Not making a physical transition makes it difficult for people to see me as agender.

Even though mothering, to me, does not mean I’m a woman, it adds to my invisibility as an agender person because of the assumption that if one has been pregnant and birthed three children, that they are even more of a woman. It certainly made my biological family like me more, because I gave them ‘three healthy boys,’ a marker of status within a sexist community. It is as if the assumed gender of my children helped solidify my womanhood. And, as a mother, I was now responsible for raising them properly, to become grown men able to provide for their families through upward mobility.

Which is why I am glad that my oldest child’s first Barbie was the Halloween Barbie, scary not only for its lack of realistic measurements. Growing up in Russia, having a Barbie meant you were better off than other families. When naked ‘pupsiki,’ which happened to be gender-neutral dolls, were all we could afford, Barbie symbolized a ‘better life,’ a life sought in the United States. Now I am raising my own children in Brooklyn, New York, but there is little place for the Russian-Armenian values of my past. After all, it was not in my parent’s dreams to have their grandsons play with dolls.

Instead of being groomed to be ‘real men,’ my kids are raised free of gender norms, which allows them to develop their identities safely as they learn more and more about the world. And, prior to learning about gender, each of them gives me a gift. As an agender person, moments when I am not gendered are essential to my wellbeing and how I see myself but they are rare. When my children are young, they are able to see me as Simone or Mommy without gendering me or seeing me as different from them. Even when they have noticed physical differences between their bodies and mine, I have explained everything from menstruation to genital shape without attaching biology to gender.

So when my kids look at me during those early years, their eyes are a place of freedom. In a way, motherhood has given me a way to find moments of validation for my agender identity, even if they are short-lived. I cannot say enough of these transformative experiences because I know what it feels like when a person with no pre-conceived notions of gender is able to see me. The intrusion that takes place when the outside world teaches them their mother is a woman is always disturbing and requires significant re-education. Long ago, I made a blog called Gender/Detki – Rearing Logical Children. In it, I had hoped to provide concrete examples of how I addressed gender and sexuality with my children.

Looking over the blog now, it is clear that my children knew little of gender until they interacted with their maternal grandparents, who live downstairs, or their Russian preschool environment. Their father and I never called them boys and they were allowed to play with any toy and wear any article of clothing, including dresses, tutus and fairy wings. Their hair was never cut and they never heard a single thing about their behavior not ‘being appropriate for boys.’ Naturally, what they learned from us, their chosen family made up of multiple parents and family friends, clashed with what they learned from others.

It was quite a surprise for my children to learn that boys and girls are often separated in preschool throughout the day, that boys and girls have to go to different bathrooms and that specific recital roles, of gnomes or princesses, are reserved by gender. The length of their hair became an issue, because other kids would say they look like girls and their ‘girly shirts’ got laughs. When I dealt with the administrators, I did not disclose my agender identity or any additional details about my family. I argued that if girls were getting their hair styled on a daily basis, the same can be done with my children’s hair and reminded them of the fact that we paid generously for tuition.

Once my kids got attached to their teachers, they wondered whether gender was good or bad. I taught them that people have different opinions and that nobody has the right to police how their gender is expressed. Sadly, because of their encounters with other adults and children, they have learned to expect harassment based on their choice of clothing, toys or behavior. Some of the time, they would give in to the pressure and, for example, ask me to cut their hair. Because it is their body and their choice, I have done so but with tears in my eyes. The pain and the anger I feel on behalf of my children exacerbates my own trauma.

Now older and in public school, my kids manage a lot more backlash, which is hard for me to watch. As an adult, I have not yet figured how to freely express my agender identity without having to constantly educate uninformed cisgender people. Why should children as young as five have to face a similar struggle? Because knowledge is power, I have taught my kids about the construction of the sex and gender binaries, the link to sexuality and how gender and sexuality are affected by one’s race, class and any number of other social factors. These topics are hard enough for my college students to grasp but the way people react to my kids’ gender ‘deviance’ makes such discussions necessary.

I am proud to say that the more I learn about gender and sexuality and about myself, the more my children are able to benefit and feel supported in their own exploration. They have shown resilience and courage by resisting harassment and trying to live truthfully. Here, I would like to return to my middle child’s gender non-conforming path. Most recently, he has become quite interested in wearing a ‘girl’s bathing suit,’ which is not going to go over well at his swim classes, summer day camp or with my biological family. Part of my motherhood journey is to be an advocate for my child and so I am gearing up to have several conversations so that he may be able to wear his turquoise bathing suit full of ruffles. When I caution him, I am sad to say that he may not be allowed to wear it and that his grandmother and others will continue to make comments. He nods and answers, ‘I will ignore them, Mama, I will just ignore them.’

When I speak to others on his behalf, part of me wants to say that I am also like him, weird and proud of my ‘deviance,’ and that I would love for my kids to be part of the LGBTQ community. But their mother’s deviance makes it hard for others to accept my children. Now that I am firmly at peace with my lesbian identity, there are new definitions to go over since their peers are throwing around casually homophobic remarks. To me it is not difficult to reconcile being agender and a lesbian but trying to explain to my kids why the label ‘lesbian’ still applies even if I am not a woman is a bit of a challenge. What I say is that others perceive me as a woman which means having to face sexism and homophobia.

If I did not have to explain to my kids why much of the world thinks our family is ‘wrong,’ they wouldn’t need an explanation because they have been raised to embrace difference. Regardless of divorce, changes in family structure, new gender and sexual identities, like their mother’s lesbianism or future children, they are surrounded by loving adults who will help them usher in a new world. Along the way, they will offer acceptance in return. Want to see an example? I recently asked my middle child about his feelings on my not wanting a gender, on being agender. Not looking up from his video game, he replied, “I feel fine because it’s your choice and gender doesn’t matter at all.”

Writing: Alone.

Craig Wood is a public school teacher as well as a PhD candidate with an interest in reflective practice methodologies. In this post, Craig’s reflections on lived experience and his conversations with fellow post-graduate colleagues become data and are expressed as a fictional representation. Where are you located in this story?

Promising himself just a short break, Frankie stepped out on to the terrace of his hotel suite. He was still 2500 words from finishing his Masters thesis and he could sense the demons of apprehension closing in on him.

Frankie sipped from his water bottle, drew a breath, and closed his eyes. The cacophony of noise from the Vegas strip below was somewhat dampened by nearly thirty stories of distance.

– Shrill screams from the Big Apple Coaster as it roared and clanked by the Statue of Liberty – The crisp sound of someone elegantly breaking the surface water of one of the hotel’s five pools

… laughter …

– Chinking glasses and cutlery falling on crockery

… voices …

– From the car park below, the bone jarring rattle of a hot-rod turning into West Tropicana Avenue and vibrating through the still air into the distance.

Then, the theme from Happy Days, Frankie’s ringtone for his manager, Sid. Frankie thought to reject the call but

– Hey Frankie! It’s Sid. Ya there yet?

– Yeah Sid.

Where are ya?

– I’m on the terrace.

Da terrace! Wadda ya mean ya on da terrace? Ya not spendin’ all damn day in dat hotel are ya?

– I just need to get away from everyone, Sid. Lock myself up. And write.

Frankie it’s Vegas! I gottya da best damn room, Frankie. Hey! Tell me I’m da bes’ damn manger, Frankie. Look down dat strip and tell me whadda ya see?

– Vegas, Sid.

Tha’s right, Frankie. Vegas. Three nigh’s time: You. Me. An da best damn ticke’s in town. Pacquiao V Bradley3. I’m da best ain’t I Frankie? Tell me I’m da bes’ manger.

– Yeah.

I’m da bes’?

– Yeah.

Good boy, Frankie. Now don’ go bustin’ yaself up on dat book o’ yours. You’re back in Vegas, Frankie. It’s your town. They luv ya!

– Yeah.

I’ll call ya tomorro’, Frankie.

– Yeah.

Frankie tried to at least say the words ‘Thanks, Sid’, and not just thanks for the room, or thanks for being the best damn manager. Frankie yearned to be able to find the words to tell Sid how important he was in Frankie’s life. Not that any of that mattered, Sid had already hung up. It wasn’t that Frankie was unintelligent. Since retiring from boxing he had balanced a public profile with his private pursuit of a Master of Science degree in Sports Management. Nor did he mean to be curt with Sid, Frankie loved Sid. It’s just that Frankie didn’t want to be around people; that’s a feeling he had had for some time.

Frankie looked out from the terrace. The sun’s rays of dusk were slowly rescinding from the Eiffel Tower, Caesar’s Palace, Treasure Island, and the rest; giving way to the flickering, shimmering neon energy of a Vegas night awakening. Beyond the desert the now deep dark blues of shadow blanketed the mountains that were holding up a horizon of pink and orange pastels. Looking at the emerald lights that were wrapping themselves around the terrace, Frankie briefly thought about giving himself just two rounds of bourbon in some bar, but, determined to stay focused, he sipped from his water bottle, stepped back into his room, shut the door and drew the curtains.

He was alone.

Letting the full drop of plush velvet separate him from the passions playing out beyond his terrace.

Alone.

Frankie flipped open his laptop and scrolled to the top of the document. Everything to everyone: Stories of balancing the demands of elite athletic performance with celebrity. By Frankie Rosetti.

He hovered over the title and changed the font size. Again.

Then the font type.

Then removed the underline…

… and made the title bold.

Then, clicking on his name, changed the text to Francis Rosetti.

An incoming email popped up on the screen. It was from Rex, Frankie’s supervisor.

Hi Frankie, I’ve just read your ethics chapter. Of course you are using pseudonyms for your informants, but I still need to be convinced about using your data to create an entire fiction.

Frankie reread the email seven times.

He could feel his eyes getting wet.

Clasping his hands over his cheeks he read the email twice more as waves of despair enveloped him.

Alone.

Frankie knew … in one of his three suitcases he had brought … he knew he had packed them … interview transcripts that were his data … as well as hand written minutes from all of the meetings he had with his supervisor … and he clearly recalled discussing how he intended to ethically manage his data in the dissemination of his research … it was that meeting, when, after interviewing twelve high profile athletes and meticulously transcribing the interviews, Rex had criticised Frankie for arranging the data alphabetically by sport: Baseball, Basketball, Football, Hockey, Soccer.

“Where are the NASCAR drivers?” Rex had grilled Frankie, “and why are there no Olympic sports? These are omissions that are clearly gaps in your data. Where’s your own boxer colleagues? It’s all a bit basic, don’t you think”

Frankie clearly recalled leaving that meeting feeling demeaned. Like he was some kind of fraud who did not belong in graduate school. It was Sid who had offered a solution.

– Wadda ya so work’dup about, Frankie? You know I can take care o’ dis Rex if he’s bothrin’ ya. Waddas he know ‘bout sports?

Lissen, waddas it madder what sport anyone plays? Ain’t dis all about turning yasself inside out tryin’ to please everyone?

Sid had been right. Perfect even – not about the idea of taking care of Rex – but about the other stuff. So, with a new lease of energy, Frankie had rearranged his data in less than 48 hours. He had gone beyond ‘basic’ delineations based on specific sports and identified patterns in his data that he called: Personal tension; Franchise/team tension; Relationship tension; Fan tension; and Success tension. Then, with specific sports no longer an identifying label on the data, Frankie began the process of further de-identifying the data. The more he played with the data, the more readable it became. Even Sid commented.

– Dat interview stuff ya wrote, ain’t no one gonna read dat. But dis, well dis is like one of dem books ‘bout a person’s life.

Frankie found the minutes he was looking for. In a meeting with Rex where they were speaking about ethics and de-identification, another member of faculty suggested Frankie read Michael Angrosino’s Opportunity House. Frankie had done so. In fact he loved the idea so much that he had run a search to see who else had cited Angrosino. Google Scholar had returned over 2000 hits. A whole world had opened up: Laurel Richardson, Lisa Tillmann-Healy, Carolyn Ellis, Tony Adams. And then Frankie had found an entire book series dedicated to Social Fiction.

Rolling his chair back to his suitcases and opening the second one, Frankie looked over his collection of books by Norman Denzin, Michael Angrosino, Patricia Leavy, Art Bochner, and at least ten other social researchers. He clasped his hands out in front of him, then rolled his shoulders and cracked his neck.

Alone. But with a new sense of energy.

Frankie scrolled down to his chapter on managing data and began typing.

“Unacceptable progress” towards degree

The following anonymous guest post is by a doctoral candidate at a public research university in the United States.  In this post, he reflects on making unacceptable progress toward his PhD and feelings surrounding such experience.

I do not think I’d be here today if it were not for my sardonic sense of humor – I would have succumbed long ago to the stress and hypocrisy of the daily lunacy we call life. For the longest time, I was able to laugh away these most unfortunate aspects of human existence, at least while I was “on top” that is. However, I am no longer anywhere near “the top” in any socially relative aspect of my life… and ‘tis the season for funding. This essay is composed of my personal experiences concerning the perverted business of academia, how I am the embodiment of “unacceptable progress” towards my PhD in sociology, and why I’m still here. To be blunt- and to get the more complicated “why” question addressed at the very least – I honestly would not be an active student at this moment if it were not for mindfulness practices. For the first time in my life I am (kind of) comfortable with uncertainty and “letting go”.

Each year, my department conducts the uttermost warped evaluation process of graduate students enrolled in both the masters and doctoral program. In an almost cult-like gathering veiled in mystery, a handful of professors determine the most crucial part of a graduate student’s existence – Funding. Adjectives aside, this “annual review” is a rather reasonable procedure and makes perfect sense in the context of a soul-crushing bureaucracy. But here is the sick part of the whole thing – while paperwork for the annual review is due mid-December and funding decisions are essentially made in January (current graduate students are ranked in order in a top secret list), students are not informed of their fate until early March (via physical mail to add insult to injury). During that 3 month period, every other thought a graduate student has revolves around funding concerns for the upcoming year. This creates a demented cycle of mental and emotional harm which intensifies each day as March approaches. Speaking out against this process is not a perceptible option as there have been repercussions in the past.

For the past 4 years, around this time of year, I would eagerly check my mail each day in hopes of receiving a letter of funding. Each day it was absent caused me to worry incessantly, but this year is different. I am not expecting a letter. I am hoping, sure, but I am not counting on it. In previous years I was the golden boy of the department, an overachiever making acceptable progress towards my degree. Yet after a scuffle with a sadistic professor, a failed comprehensive exam, and 3 outstanding independent studies, I received a notice of unacceptable progress towards my degree completion this past month. I had stumbled this past year for sure. I was not mentally well from June to November following a series of deaths and illnesses in my family combined with a period of no insurance coverage (which meant no doctors visits or medication). Yet now that I am on my feet so to speak, the last thing I need is to dwell on my past failures. This seems to be the plight of civilized humans, to obsess over what could have been and what will become of the future.

“Are you sure you are not just in denial,” asked a good friend of mine when I told him that I am content with my unacceptable progress. This is a good question but I believe the answer to it is ultimately no. I am not denying that I am now officially certified as a lousy student, but rather embracing the fact that there is nothing I can do to change that at this exact moment. If a depressing string of thoughts about my academic fiascoes occurs late at night after a rather productive day, then why should I let it affect me? Instead, I now acknowledge these thoughts and the feelings they temporarily instill in me, and then I situate myself back in the present moment. I am so far managing this semester rather well – even though this essay is in part based on a paper which was late – and worrying about the past and future can only negatively impact me. Letting go of these thoughts of failure or impending suffering via mindfulness practices has been tremendously helpful in my day-to-day life, and therefore by default has also been helpful in the long run.

Perhaps the single largest stressor in my life is uncertainty. But in a paradoxical moment of clarity, I am now certain of one thing – that I will always be uncertain. I have never known the concept of “job security” and doubt I ever will, but that is part of the fun in life. I do not want to live a rationally ordered existence where one works to live. I rather enjoy spontaneity and wrinkles in life’s “plans”, and the ideal of omniscience tastes kind of bland. To be human is to feel, and perhaps this is part of the reason why negative experiences feel so bad – pain, misery, suffering, depression, etc. We do not want to have those feelings so we take measures to avoid situations where they may occur. But when the uncomforting notion of uncertainty is embraced as a constant and we let go of the desire for a predestined life, uncertainty becomes less distressing. I do not know where I will be or how I will secure life’s necessities come next fall and there is nothing I can do about that fact. Will worrying help improve my life situation? No, but I cannot help but to worry. In being mindful of worrying over uncertainty, I acknowledge the feeling and bring myself back to the present moment. Additionally, this is an empowering process (I am in control of my life right now) whereas worrying is a depowering process (I have no control over my fate). In an odd way, we gain power by surrendering power. We want control over our “fate” but this desire can overwhelm us with worry, guilt, and ultimately stress. Though a philosophical metacognitive argument, I believe that by letting go and enjoying the moment, we reclaim power over ourselves.

What I have been describing so far may seem self-defeating, judgmental, and critical in a negative manner. When I say that I am “the embodiment of unacceptable progress”, I am appealing to my own critically demented sense of humor. I tend to be a satirist and like to push negative aspects of my life into the realm of the absurd. Laughing is the kindest, most rewarding condition I can bring about myself. If I imagine that the professors who secretly make funding decisions do so in some kind of a dark ritual involving robes and goat blood – and this thought makes me laugh at the (very real) ridiculousness of the process – then I am better off for it. I know of nothing more loving than that.

I cried the entire day when I assembled my annual review this past December. After over 12 agonizing hours of reflecting upon and writing down my achievements and shortcomings (mostly shortcomings), I had a narrative of merely 1045 words to sum up the most painful year I have experienced so far in my life. I have not – and will not – receive any feedback on that most personal narrative either as that goes against protocol. So what good did that distressing day of forced reflection do to my then-present psyche? None whatsoever as the next few days in particular were spent more or less in a state of emotional and physical recovery. If I was aware of this then, I never would have engaged in that activity of needless suffering. I would have submitted a blank sheet of paper (if anything) to the annual review committee. The end result is me not getting funded, yet the approach I took was one of intense judging and self-loathing.

I have become accepting, even welcoming, of uncertainty as it relates to my future. This enhanced awareness has allowed me to reframe some situations in a more holistic light and eschew others altogether. I have no clue where I will be next semester and I am perfectly okay with this. I have even put some semi-serious applications into rather prestigious job openings – I did not get “hung up” on getting it right, but rather had fun writing the cover letters and such. Who knows what will happen. Maybe my passion for teaching will come across more clearly and I’ll get a call back.

Shit happens and it will forevermore. As a life-long overachiever, I have always strived to evade shit but was lost to the fact that I was centering my life on and around shit itself. Through my deliberate and rigorous avoidance of shit, my life had become shit. Shit happened and it will happen again, but right now as I write this paper, there is no shit in my life. It’s all good here. Even the cat boxes are clean. And that’s how I feel about my life right now as an “unacceptable progress” student. I may not complete my PhD by the time I am 30 years of age (a little over 3 years from now), but I feel “clean” by accepting this.

The Anxiety Inscriptions

In this post, Lain Mathers reflects on zir experiences managing anxiety and graduate study.  Lain Mathers is a doctoral student in Sociology at the University of Illinois Chicago and the Assistant Editor here at Write Where It Hurts.

It is mid-February as I begin writing this post. I am sitting in my apartment at my computer, my hands floating apprehensively above the keyboard. This is an odd sensation considering the fact that usually I type so intensely that the tiny plastic squares pop off of my laptop and onto the floor. I can feel the words I want to write just out of reach, curled up in the darker corners of my brain. I start to feel my chest tightening. “No, no not right now, please not right now,” I plead with my brain. We have a constant dialogue going, but as of late it’s taken on a significantly more dominant role in those dialogues. I’ve come to know this feeling. It’s like watching a tornado bellowing toward me while being fastened to the ground. As the tornado gets closer and closer, I eventually give in to the fact that I will be swept up in the debris of my own internal natural disaster.

At this point, generally, when I can feel a panic attack coming on, I resign to it. Over the past few months, I’ve learned just how neurological and out of my control those events are, and that trying to resist them (and largely failing to do so) leaves me feeling significantly more exhausted, disappointed, and angry than if I just allow myself to lean into them, tear apart a cardboard box or two, and then sit quietly on my couch and listen to Rilo Kiley, Neko Case, or The Yeah Yeah Yeahs in the calm after the storm.

See, I’ve known that I exhibit symptoms of Generalized Anxiety Disorder (or Generalized Anxiety Condition, as I prefer to call it, since I am working against the internalized and institutionalized stigma that the ways my brain operates means there is something inherently broken about me) for a while. I’ve had nervous ticks like compulsively picking at my skin since as early as I can remember. I can be thrown into a state of total disarray over a two-lined text message that I’m afraid someone other than the intended recipient will get a hold of. I’ve found large crowds overwhelming for a long time, and regularly get up two to three times throughout the night to make sure I’ve locked my doors (so that no one can get into my apartment) and unplugged all the kitchen appliances / blown out all the candles (so that a fire doesn’t start when I’m asleep). On my walks to school, I try to replay my morning routine to make sure I locked the doors and unplugged the appliances, and if I can’t remember I will often text message my roommate (if he is home) to make sure I did. If he is not home, it is not uncommon for me to turn around and walk back home to check (even if I am only a few blocks away from school). I have to get to the airport or train station at least three hours before my trips out of town because I am constantly terrified that some catastrophic event will happen that prevents me from getting where I’m supposed to be, and I am known to check the pockets in my jacket up to 15 times before leaving my house, sometimes one right after the other, to make sure I haven’t accidentally lost my wallet, keys, or cigarettes.

All of these are symptoms I’ve learned to manage over the years. For example, I just plan my travel accordingly; I allow an extra 30-45 minutes before I go to bed to check the locks and plugs. I say out loud to myself that I locked my door as I leave my house in the morning so when I run over my morning routine repeatedly on my way to school, my own verbal affirmation to myself will be part of that narrative. And, historically, when I would get the occasional panic attack (every couple of weeks or months), I would allow myself to just experience them and make sure to try to get as much sleep as possible and drink lots of water.

Writing has also been a huge part of my anxiety management. For the past 14 years, I have been writing regularly in a journal. Presently, I am in my 94th book, and have no plans of stopping any time soon. Since I was old enough to hold a pen writing has been the place where I can document the conversations I am constantly having with my brain about all of the things I need to be worrying about or else something terrible will happen. Putting them down on paper both makes them feel real and also like something I don’t have to carry around in my head anymore (it can get quite crowded in there). Writing is the place I go during panic attacks when nothing makes sense and I can’t even really form complete sentences, yet something about the feeling of pen on paper keeps me anchored to this world. Writing is, without a doubt, my most significant and important survival strategy when it comes to my mental health.

So what do I do when I can’t write through the anxiety? For those of us that find a deep comfort in writing, the inability to do it is incredibly destabilizing and painful. Recently, I had to confront this question in a wholly unsettling manner.

For people who live with chronic mental health conditions and/or trauma, we know that triggers can pop up and derail our routines for hours, days, weeks, even months. We also know that triggers can come in the most unexpected contexts and magnitudes. So, just because one is perhaps prepared to handle a situation that has previously triggered them doesn’t mean they’ll be able to negotiate a totally new trigger with as much familiarity.

So, when my understanding of my life was recently upset by conditions entirely outside of my control, and unlike any trigger I’ve previously experienced, I began having panic attacks on a daily basis. Not only did they start occurring more frequently, but also at unexpected times compared to when they’ve previously boiled to the surface. By this point, though, I had convinced myself that writing was all I needed to settle the rush of chemicals in my brain. “Just write it out, Lain, you’ve done this hundreds of times before.” Yet when I sat down to put the chaotic words on paper nothing flowed. I was in a state of mental and emotional quicksand, sinking faster than I could get my words to secure me to this world.

This was even more unsettling because writing is not something I just do for personal pleasure or comfort anymore, it is part of my livelihood. I began to tell myself elaborate stories about how I will never be able to write again and my career as a sociologist is doomed to failure. I walked nervously around my apartment, screamed into pillows, ripped apart cardboard boxes, and smoked countless cigarettes to try and dilute the quicksand feeling but nothing worked. It was in this moment that my brain and I began to have a serious conversation and one unlike any talk we’ve had before.

“Maybe you should talk to someone, Lain. Maybe you really need that.”

“No, brain, I can manage this. You’re just really fucking with me right now. It’ll pass.”

“Will it?”

“It has to.”

“How do you know? Maybe you’re just like this forever. Maybe I’ll never stop.”

“Maybe I should talk to someone.”

“Should you, though? How do you know it will help anything?”

“I don’t.”

Before making an appointment with a therapist, I held my journal and a pen in my hand, so desperately hopeful that I would have some kind of breakthrough by just acknowledging that my mental condition is real, that this experience is out of my control (despite how much control I like to believe I have over it). Nothing. So, I made the appointment and had a flurry of panic shortly after doing so.

Over the past few months, I’ve started more openly acknowledging that I not only live with generalized anxiety everyday, but also that it profoundly influences my life in ways I never expected it would. I am continually learning that maintaining anxiety management strategies, such as writing, is one important component in a large equation of other management mechanisms, such as (for me) therapy, medication, painting, supportive friends and loved ones, and plenty of alone time. I am still learning to overcome the stigma associated with chronic mental health conditions (especially one like anxiety, that many people don’t believe to be real), and the path to figuring all of this out certainly defies the American ideal of a linear progress narrative.

Yet, here I am, in late March, sitting at a café finishing this essay that you are presently reading to the sound of Rilo Kiley’s song, “A Better Son or Daughter” and occasionally picking up the “I” and the “O” keys off the floor. The routine of bending over every seven or so minutes to fetch the tiny, plastic, lettered squares off the ground is a welcome reminder that I am still here, anxiety and all.

Recovering from Graduate School: Rewriting the Trauma Narrative

Eric Anthony Grollman (@grollman) is a Black queer feminist sociologist and intellectual activist; they are an Assistant Professor of Sociology at the University of Richmond. They are the founder and editor of the blog, Conditionally Accepted, which recently became a regular career advice column on Inside Higher Ed.  In this post, Dr. Grollman reflects on negotiating and making sense of trauma related to graduate education. 

“What’s the deal with this PTDS book,” my parents asked when they last visited me. Common understandings of post-traumatic stress disorder (PTSD) – the mental scars that soldiers, survivors of sexual violence and childhood abuse carry – certainly don’t call to mind any aspect of my life. My parents even sat through my talk on intellectual activism at the 2015 Conference of Ford Fellows, in which I attempted to identify the structural and cultural factors of graduate school that inevitably led me to be traumatized by my graduate training. But, maybe they assumed I was using the term “trauma” to be provocative or dramatic. With some embarrassment, I had to explain that I was, indeed traumatized by grad school, experiencing the symptoms of complex trauma, which is not (yet) officially classified in the Diagnostic and Statistic Manual (the major psychiatric guide for mental disorders in the US).

When my therapist pointed out the trauma – really only repeating back to me comments I had made just moments before about being traumatized – I also resisted. Seriously, who gets traumatized by educational training? I wasn’t physically attacked, I was not raped or sexually assaulted, and I did not endure torture or extreme warfare. Coursework, a qualifying exam, a master’s thesis, a dissertation, and some teaching experience – these, on the surface, are about equipping me with the skills necessary to become an independent scholar, the skills necessary to obtain a PhD and, ideally, a tenure-track job. To help me to begin to see the trauma, my therapist encouraged me to write a trauma narrative.

So, I took some time to write down every challenging, offensive, and potentially traumatizing event or condition that I could draw from my memory. In the midst of writing about one memory, I would have to make a note to write about another that came to mind. “Oh, how could I forget about that!” I thought several times in this process. In the end, I had nearly filled a 70-page spiral notebook with such memories. When I flipped through the notebook, I asked myself, “who wouldn’t be traumatized by all of this?” Guilty of being an academic geek, I took the time to identify some common themes: 1) repeated exposure to and witnessing of microaggressions, stereotypes, and discrimination; 2) devaluing of my research interests, in particular, work on my own communities (i.e., people of color, LGBTQ people, and, especially, LGBTQ people of color); 3) the undermining of my career choices, namely eventually becoming a professor at a liberal arts college; and, 4) an explicit attempt to “beat the activist” out of me through the graduate training.

I have continued to work through my therapist to begin to recover from the trauma. The initial and, it seems, hardest step has been to name the trauma. It has taken some time to stop denying that grad school could be so bad, that I was somehow too weak to survive traumatizing circumstances, or that it is my fault for not leaving at the first sign of trauma. I, like most others, would never expect trauma to be one of the outcomes of graduate training. So, blaming myself or denying the trauma doesn’t help.

Once my therapist and I opened that door, I began to grow impatient. Now what? I wanted some sort of homework to do outside of therapy sessions, though I learned that was not my therapist’s approach. So, I looked into buying workbooks that I could do on my own. Unsurprisingly, most that are out there focus on what my therapist calls “big T Trauma”: sexual violence; war; child abuse; being robbed; having your house burn down; and, natural disasters. My own struggle with complex trauma – “little t trauma” – is the result of prolonged trauma that is interpersonal in nature, and likely occurred at a key developmental period (early adulthood, in my case). Since it is not included in the DSM, there are few workbooks that even mention it, let alone offer resources to help recover from it. But, I eventually found one that does: The PTSD Workbook (second edition), by Mary Beth Williams and Soili Poijula.

I’m not as far as I’d like to be into the workbook, but I find that digging into traumatizing experiences is not something I care to do daily. But, so far it has been helpful to address it head on. Recently, I completed one of the exercises in which they instruct readers to “[t]hink of another person who has gone through a similar event. Knowing now what most helped you survive, what would you say to that other person?” I don’t think that I followed the instructions, but I ended up reflecting on something much more powerful. I ended up rewriting my trauma narrative, albeit an abbreviated version.

Rewriting the Trauma Narrative

Let me give some context. In the process of naming the trauma, I have closed my memory around all that was taken away from me in the process of completing my PhD and obtaining my current tenure-track position. I entered my PhD program in sociology as an activist with a desire to study racism in queer communities using qualitative methods. I figured sociology would be more likely to open doors to gender studies, sexuality studies, and even student affairs than the other ways around. A desired joint PhD with gender studies was discouraged. A desired graduate minor in either sexuality research or gender studies was discouraged. An intended dissertation in trans health was discouraged. I also learned to self-police my interests; for example, I selected a qualifying exam in social psychology rather than gender, sexualities, or race/gender/class/sexualities. I left graduate school with a PhD, trauma, Generalized Anxiety Disorder, a cute boyfriend, expertise in medical sociology using quantitative methods, and an acute awareness that I must hide any activist work or community service. The 28-year-old me was hardly an older and wiser reflection of the 22-year-old me.

That is, in my efforts to identify just how traumatizing graduate school was, I have focused almost exclusively on the negatives – what I have lost, what I compromised, what dreams have been dashed for the sake of job security. This has been a necessary step for me to stop denying how bad grad school was and blaming myself for the trauma. But, the unintended consequences of this focus is that I have lost sight of the ways in which I did survive and thrive, pursued my dreams and values, among other positive highlights of those six years. A while ago, I tried to write a positive-focused complement to the trauma narrative, and only came up with missing the excellent restaurants in Bloomington, IN and the friends that I made there. I also met my now-fiancé there, who moved to Richmond, VA with me. And, my excellent training – despite the compromises I made – opened a number of doors in terms of jobs and professional networks. So, hey – at least I don’t regret my time there. But, that effort felt like settling for an otherwise traumatic experience.

So, back to the prompt from The PTSD Workbook. I began my answer to the question about what I would advise to others, presumably to prevent being traumatized, with: “In the thick of [grad school], I attempted to maintain activities, relationships, and projects that were not valued by my program, but that fed my spirit nonetheless.” From there, I listed example after example of the things in which I was involved during my time in graduate school. Contrary to the sentiment that I left graduate school anything but a sexuality scholar, I identified plenty of examples of the ways in which I clearly demonstrate active involvement in this subfield. I published two articles on sexualities that were co-authored with people outside of my university; in fact, my advisors only became aware of these papers upon noticing them on my CV. I also started one on trans health late in grad school, which was finally published in September 2015. As the founder of the short-lived Campus Coalition for Sexual Literacy – an initiative through the Center for Research and Education on Gender and Sexuality as UCSF – I organized a few events to promote sexual literacy on campus, including a conference on transdisciplinary approaches to sexuality research. I attended a few conferences and workshops in the field of sexualities. And, I also was involved in service on campus and in the community that promoted community-building for LGBTQ people, as well as healthy relationships in the queer community. I could go on…

In essence, I rewrote my trauma narrative. In this narrative, I didn’t sell out, I didn’t allow others to dictate my career, and I wasn’t powerless. Rather, this was a narrative about pushing back against mainstream expectations in sociology to build my career as a scholar-activist whose work focuses primarily on sexualities. This narrative allows me to recall ways in which I defined my career for myself, with necessary compromises along the way. Would the trauma have been worse if it weren’t for feeding my soul with sexualities work and activism? Or, was the trauma the result of defying mainstream expectations in sociology by pursuing such work? I’m not certain at this point, and cannot actually say what could have been. But, I’m in a better position to say what actually was. Yes, I was traumatized; but I was no passive victim.

I hope through speaking openly about the trauma, about the efforts to “beat the activist” out of me, and the training that attempted to steer me away from studying my own communities to make it easier for current and future marginalized grad students to weather the challenging circumstances of grad school.

 

“Hope” Springs Forth: New Article Out in Sociology of Health and Illness!

In this post, Xan Nowakowski reflects on a recent publication in Sociology of Health and Illness concerning the personal, political, and structural experience of managing chronic conditions in everyday life.

Hello readers! If you’ve been following WWIH for a while, or just know any of us editors outside of the blog, you may have heard a bit about my new article in Sociology of Health and Illness. It’s a critical analysis of my experiences with a prescription drug that has excellent benefits and a lot of potential side effects, and the many sociological lessons learned from trying to find the right balance between the two.

A lot of the illness management literature deconstructs major changes in health status, and the impacts of these events on identity formation and performance. This literature doesn’t yet contain as diverse an array of information and analysis on the day-to-day nuances of living with chronic conditions. I’m hoping to inspire other scholars to delve more into that area, and to do so with a richly intersectional perspective on relationships between health and social life.

To have this article published in Sociology of Health and Illness is a dream come true, and the product of about two years’ worth of work. So I’m thrilled to report that “Hope Is a Four-Letter Word: Riding the Emotional Rollercoaster of Illness Management” is now available online, along with an accompanying video abstract introducing the piece. The print version of the article will appear later this year. In the meantime, if you want to read the article and are having trouble getting access to the online version, just drop me an email.

I also encourage everyone to share the link to the online version with others who may be interested in this topic. I quite deliberately constructed this article as a narrative with theoretical commentary, not a research methods piece. It’s accessible for a wide variety of audiences, not just academics. I wrote the paper with patients, families, clinicians, advocates, and caregivers all well in mind. WWIH readers will recognize a lot of our key themes here: intersectionality of multiple social positions and roles, gender performances and violations of norms, racial and ethnic inequality, symbolic interactionism as a tool for understanding health experience, and of course a hefty dose of storytelling!

An essential contribution of this piece is detailed insight into the interplay between personality and social structure in the experience of chronic illness and the management thereof. By using my own voice to explore the complexities of different theories of social inequality, I hope to help build new ground for dialogue about what chronic illness feels like day-to-day that can inspire improvements in both community support and clinical care. I also hope to open doors for other scholars who occupy one or more marginalized social locations to share and critically analyze their own stories of illness management in everyday life.