Sacrificio

Lisette E. Torres is the Assistant Director of the Cooper Foundation Center for Academic Resources at Nebraska Wesleyan University as well as a Ph.D. candidate in the School of Education at Iowa State University.  Her scholarly interests include intersectionality, critical race theory, knowledge production, critical visual and textual discourse studies, and the sociocultural context of science and higher education.  In honor of Fibromyalgia Awareness Day (May 12th), in this post, she reflects on what she calls the “narrative of sacrificio” and how it informs her experience as a Boricua mother-scholar living with fibromyalgia.

Sacrificio. Sacrifice. To give up something for the sake of someone else. To destroy, renounce, or lose something for a belief or an end.

Growing up in a Puerto Rican household full of women, I am quite familiar with sacrifice. My two sisters and I would be reminded almost daily about the sacrifices that family members have had to make for the love of family and country – my grandmother’s humble beginnings living in poverty on a farm on the island, my father and aunt having to walk to school (sometimes with no shoes), my grandmother coming to the mainland U.S. to work in a factory, my father fighting in Vietnam, my mother managing the household, my father having to travel 2 hours to and from New York City to provide for the family . . . the list goes on. These stories of sacrifice were meant not only as a way to demonstrate how resilient our family has been but also to remind us of the responsibility that the three of us had as Puerto Rican women. We learned that it was our obligation to always try our best and to give up our own wants and needs for the family. Social scientists often refer to this socialization as instilling the values of familismo, or one’s prioritizing family over one’s own needs, and marianismo, the notion of the assumed submissive female gender role of Latinas.

However, this narrative – the narrative of sacrificio – is one that I have also experienced as an academic. The “publish or perish” mantra, working more than 40 hours per week, and the unspoken expectation that scholars (particularly women) put off having families or give up having families all together encompass some form of sacrifice, whether it be time, money, or personal fulfillment. For women of color in the academy, this sacrifice is much deeper. It is the fragmentation of the mind, body, and spirit or the creation and acceptance of multiplicity (Ong, 2005). It is forgoing speaking the language of our ancestors to converse in the elitist, colonial jargon of the ivory tower. It is physically moving away from our families and communities in pursuit of job opportunities, which causes a multitude of additional challenges that come with relocation.

From my own personal experience as a Boricua mother-scholar, there is a great tension between having the racialized gendered identity of a Latina and an academic identity. I often feel pulled in different directions. On the one hand, I want to spend as much time with my son and husband as possible. I want to keep a clean house, provide healthy meals, and be present with my child, who is growing up so very fast that I do not want to miss a thing! Guilty about putting him in daycare, I forgo working on projects in the evenings and on weekends to try to get the most of my time with my family. I also tend to put aside some of my goals and needs in order for my son and husband to be happy; for example, I often have to take the day off to take care of my son when he is sick and have never expected my husband, who is also an academic, to do the same.

On the other hand, I am well-aware of the social and structural challenges of being a woman of color in the academy (Gutiérrez y Muhs, Niemann, Gonzàlez, & Harris, 2012). We often have to work harder and longer to receive the same recognition as our White, male colleagues. The purpose and content of our scholarship as well as our inherent intelligence is questioned, and heaven’s forbid that you have a family! The baby penalty is very real; mother scholars are often viewed as being less committed to their field and to the academy as compared to their male counterparts. They are less likely to find a tenure-track job, receive little to no assistance with childbirth support or childcare services, and do not receive the proper mentoring or career advice to help them manage family and work. Add stereotypes about women of color being fertile and emotional and you can see how women of color in the academy are in a double-bind (Malcom & Malcom, 2011) that is even tighter when you incorporate motherhood and the narrative of sacrificio.

As every academic knows, there is little time and energy to devote to research, teaching, service, and one’s personal life. Every hour is precious. We talk about “work-life balance,” though we know this is a complete myth. We try to remind everyone about self-care, exercise, and finding time to recharge (which we need to do, do not get me wrong!), all the while trying to ignore the culture shift necessary to change the neoliberal influence on productivity in higher education. Yet, we still judge others based on what we assume about them and the expectations of academia. If someone leaves campus before 5 p.m., then we think they are slacking off or cutting corners. Daily conversations revolve around “how tired” we are because we “stayed up until 2 a.m. working on a grant proposal/manuscript/course.” We complain about all the varied activities that we are engaged in while simultaneously looking down on others who may not be as involved on campus. We are complicit in perpetuating the culture of busy and the narrative of sacrificio among our colleagues. And we do this without considering the impact it has on women of color or on individuals with chronic illness/pain.

Personally, the narrative of sacrificio – from my Puerto Rican upbringing and from the academy – wears on me daily, both psychologically and physically. In the spring of 2015, I was diagnosed with fibromyalgia, a chronic syndrome with no known cure that is diagnosed by exclusion. The symptoms can vary among people, but they can include the following: widespread muscle and joint pain, fatigue, chronic headaches, hypersensitivity to sensory stimuli (e.g., cold, heat, light, sound, and touch), inability to concentrate (known in the community as “fibro fog”), stiffness, restless sleep, mood swings, and depression. These symptoms have made my career in academia difficult, aside from the structural challenges I also face as a woman of color who is also a mother. However, the words used to describe my lived experience with chronic pain are extremely limiting and cannot fully illustrate how it shapes the narrative of sacrificio in my life. Despite limitations in language, I will try to explain what it is like to have fibromyalgia. Having fibromyalgia is . . .

  • Sleeping a full 8 hours but getting up and feeling as if you only had 3 hours of sleep
  • Waking up in the middle of the night with non-stop thoughts or tingling arms/legs
  • Getting up in the morning and feeling like you worked out all night because your body is so sore and stiff
  • Like walking through really thick mud or walking around with weights around your ankles all day
  • Losing what you were going to say before you can even say it; the words get stuck and you have trouble with recall
  • Losing your train of thought in mid-sentence or forgetting the names of common things (i.e., you know what it is but you cannot get the word out)
  • Revisiting files, readings, emails, notes, etc. multiple times because you cannot concentrate long enough to remember what you read/saw
  • Feeling like a rag doll on a rack, limbs being pulled out of their sockets
  • Never feeling completely comfortable in a seated or resting position
  • Being hypersensitive to temperature changes; for me, I am almost always cold and cold temperatures cause deep pain in my bones
  • Being hypersensitive to touch; there are days when I literally cannot stand wearing socks!
  • Feeling like an open nerve
  • Feeling on edge, like you are ready to fight at any time
  • Feeling incredibly disappointed in a seeming lack of progress due to energy level
  • Feeling guilty and depressed that you cannot do all the things that other parents/academics can do

When a chronic condition like fibromyalgia intersects with the narrative of sacrificio found within Puerto Rican culture and the academy, it makes an already difficult journey as an academic almost impossible. As a mother-scholar of color, I am continuously trying to avoid the cultural taxation (Padilla, 1994) placed on faculty of color, balancing being an advocate for students of color on campus while also not participating on every single institutional diversity committee. Like most scholars of color and working moms, I work twice as hard to receive half the credit. I worry that I am not a good scholar or mother, knowing that I am being judged by others on both fronts. Stereotype threat, imposter syndrome, and racial microaggressions are daily challenges for me that can wear on the mind, body, and soul. I know that I already have three strikes against me in a White patriarchal society – I am a woman, I am a person of color, and I am a mother. I am viewed as “less than” and “unworthy” of being in higher education. I am already presumed “lazy,” “inarticulate,” and “incompetent” by the mere fact that I am a woman of color, and I sometimes fear that my fibromyalgia adds to those assumptions.

In an effort to confront the narrative of sacrificio in my life, I have decided to accept that I have a finite amount of energy to give due to fibromyalgia and, since stress can exasperate my symptoms, I must embrace what Dr. Eric Anthony Grollman calls a radical reprioritizing of my life. As such, I have started practicing Taiji every week and taking time out for a massage every month, which helps with stress and pain management. I try to not to bring work home with me, accomplishing as much as I can in the office as possible and being okay with that. I also try to practice slowing down, with great reminders from my colleagues Dr. Riyad Shahjahan and Dr. Kimine Mayuzumi on their blog. While I am working on me, I want to share my lived experience with other women of color who suffer from chronic illness who may also be academics and mothers. You are not alone and the narrative of sacrificio does not define you! We do not have to sacrifice ourselves. As our sister in the struggle, Audre Lorde, wrote in a Burst of Light (1988), “Caring for myself is not self-indulgence, it is self-preservation, and that is an act of political warfare.”

Recovering from Graduate School: Rewriting the Trauma Narrative

Eric Anthony Grollman (@grollman) is a Black queer feminist sociologist and intellectual activist; they are an Assistant Professor of Sociology at the University of Richmond. They are the founder and editor of the blog, Conditionally Accepted, which recently became a regular career advice column on Inside Higher Ed.  In this post, Dr. Grollman reflects on negotiating and making sense of trauma related to graduate education. 

“What’s the deal with this PTDS book,” my parents asked when they last visited me. Common understandings of post-traumatic stress disorder (PTSD) – the mental scars that soldiers, survivors of sexual violence and childhood abuse carry – certainly don’t call to mind any aspect of my life. My parents even sat through my talk on intellectual activism at the 2015 Conference of Ford Fellows, in which I attempted to identify the structural and cultural factors of graduate school that inevitably led me to be traumatized by my graduate training. But, maybe they assumed I was using the term “trauma” to be provocative or dramatic. With some embarrassment, I had to explain that I was, indeed traumatized by grad school, experiencing the symptoms of complex trauma, which is not (yet) officially classified in the Diagnostic and Statistic Manual (the major psychiatric guide for mental disorders in the US).

When my therapist pointed out the trauma – really only repeating back to me comments I had made just moments before about being traumatized – I also resisted. Seriously, who gets traumatized by educational training? I wasn’t physically attacked, I was not raped or sexually assaulted, and I did not endure torture or extreme warfare. Coursework, a qualifying exam, a master’s thesis, a dissertation, and some teaching experience – these, on the surface, are about equipping me with the skills necessary to become an independent scholar, the skills necessary to obtain a PhD and, ideally, a tenure-track job. To help me to begin to see the trauma, my therapist encouraged me to write a trauma narrative.

So, I took some time to write down every challenging, offensive, and potentially traumatizing event or condition that I could draw from my memory. In the midst of writing about one memory, I would have to make a note to write about another that came to mind. “Oh, how could I forget about that!” I thought several times in this process. In the end, I had nearly filled a 70-page spiral notebook with such memories. When I flipped through the notebook, I asked myself, “who wouldn’t be traumatized by all of this?” Guilty of being an academic geek, I took the time to identify some common themes: 1) repeated exposure to and witnessing of microaggressions, stereotypes, and discrimination; 2) devaluing of my research interests, in particular, work on my own communities (i.e., people of color, LGBTQ people, and, especially, LGBTQ people of color); 3) the undermining of my career choices, namely eventually becoming a professor at a liberal arts college; and, 4) an explicit attempt to “beat the activist” out of me through the graduate training.

I have continued to work through my therapist to begin to recover from the trauma. The initial and, it seems, hardest step has been to name the trauma. It has taken some time to stop denying that grad school could be so bad, that I was somehow too weak to survive traumatizing circumstances, or that it is my fault for not leaving at the first sign of trauma. I, like most others, would never expect trauma to be one of the outcomes of graduate training. So, blaming myself or denying the trauma doesn’t help.

Once my therapist and I opened that door, I began to grow impatient. Now what? I wanted some sort of homework to do outside of therapy sessions, though I learned that was not my therapist’s approach. So, I looked into buying workbooks that I could do on my own. Unsurprisingly, most that are out there focus on what my therapist calls “big T Trauma”: sexual violence; war; child abuse; being robbed; having your house burn down; and, natural disasters. My own struggle with complex trauma – “little t trauma” – is the result of prolonged trauma that is interpersonal in nature, and likely occurred at a key developmental period (early adulthood, in my case). Since it is not included in the DSM, there are few workbooks that even mention it, let alone offer resources to help recover from it. But, I eventually found one that does: The PTSD Workbook (second edition), by Mary Beth Williams and Soili Poijula.

I’m not as far as I’d like to be into the workbook, but I find that digging into traumatizing experiences is not something I care to do daily. But, so far it has been helpful to address it head on. Recently, I completed one of the exercises in which they instruct readers to “[t]hink of another person who has gone through a similar event. Knowing now what most helped you survive, what would you say to that other person?” I don’t think that I followed the instructions, but I ended up reflecting on something much more powerful. I ended up rewriting my trauma narrative, albeit an abbreviated version.

Rewriting the Trauma Narrative

Let me give some context. In the process of naming the trauma, I have closed my memory around all that was taken away from me in the process of completing my PhD and obtaining my current tenure-track position. I entered my PhD program in sociology as an activist with a desire to study racism in queer communities using qualitative methods. I figured sociology would be more likely to open doors to gender studies, sexuality studies, and even student affairs than the other ways around. A desired joint PhD with gender studies was discouraged. A desired graduate minor in either sexuality research or gender studies was discouraged. An intended dissertation in trans health was discouraged. I also learned to self-police my interests; for example, I selected a qualifying exam in social psychology rather than gender, sexualities, or race/gender/class/sexualities. I left graduate school with a PhD, trauma, Generalized Anxiety Disorder, a cute boyfriend, expertise in medical sociology using quantitative methods, and an acute awareness that I must hide any activist work or community service. The 28-year-old me was hardly an older and wiser reflection of the 22-year-old me.

That is, in my efforts to identify just how traumatizing graduate school was, I have focused almost exclusively on the negatives – what I have lost, what I compromised, what dreams have been dashed for the sake of job security. This has been a necessary step for me to stop denying how bad grad school was and blaming myself for the trauma. But, the unintended consequences of this focus is that I have lost sight of the ways in which I did survive and thrive, pursued my dreams and values, among other positive highlights of those six years. A while ago, I tried to write a positive-focused complement to the trauma narrative, and only came up with missing the excellent restaurants in Bloomington, IN and the friends that I made there. I also met my now-fiancé there, who moved to Richmond, VA with me. And, my excellent training – despite the compromises I made – opened a number of doors in terms of jobs and professional networks. So, hey – at least I don’t regret my time there. But, that effort felt like settling for an otherwise traumatic experience.

So, back to the prompt from The PTSD Workbook. I began my answer to the question about what I would advise to others, presumably to prevent being traumatized, with: “In the thick of [grad school], I attempted to maintain activities, relationships, and projects that were not valued by my program, but that fed my spirit nonetheless.” From there, I listed example after example of the things in which I was involved during my time in graduate school. Contrary to the sentiment that I left graduate school anything but a sexuality scholar, I identified plenty of examples of the ways in which I clearly demonstrate active involvement in this subfield. I published two articles on sexualities that were co-authored with people outside of my university; in fact, my advisors only became aware of these papers upon noticing them on my CV. I also started one on trans health late in grad school, which was finally published in September 2015. As the founder of the short-lived Campus Coalition for Sexual Literacy – an initiative through the Center for Research and Education on Gender and Sexuality as UCSF – I organized a few events to promote sexual literacy on campus, including a conference on transdisciplinary approaches to sexuality research. I attended a few conferences and workshops in the field of sexualities. And, I also was involved in service on campus and in the community that promoted community-building for LGBTQ people, as well as healthy relationships in the queer community. I could go on…

In essence, I rewrote my trauma narrative. In this narrative, I didn’t sell out, I didn’t allow others to dictate my career, and I wasn’t powerless. Rather, this was a narrative about pushing back against mainstream expectations in sociology to build my career as a scholar-activist whose work focuses primarily on sexualities. This narrative allows me to recall ways in which I defined my career for myself, with necessary compromises along the way. Would the trauma have been worse if it weren’t for feeding my soul with sexualities work and activism? Or, was the trauma the result of defying mainstream expectations in sociology by pursuing such work? I’m not certain at this point, and cannot actually say what could have been. But, I’m in a better position to say what actually was. Yes, I was traumatized; but I was no passive victim.

I hope through speaking openly about the trauma, about the efforts to “beat the activist” out of me, and the training that attempted to steer me away from studying my own communities to make it easier for current and future marginalized grad students to weather the challenging circumstances of grad school.

 

Radical Reprioritizing: Tenure, Self-Care, and My Future as an Intellectual Activist

 

 Eric Anthony Grollman (@grollman) is a Black queer feminist sociologist and intellectual activist; they are an Assistant Professor of Sociology at the University of Richmond. They are the founder and editor of the blog, Conditionally Accepted, which recently became a regular career advice column on Inside Higher Ed.  In this post, Dr. Grollman reflects on balancing life and the tenure track as an activist scholar.

I am currently wrapping up my third year as a tenure-track professor at the University of Richmond – an elite, small liberal arts college in Richmond, VA. This semester is the first time I am teaching courses I have taught at least once before; and I’m teaching the “two” of my 3-2 yearly course load. Finally, I have a little breathing room to really advance my research.

But, the service demands, and my own campus, community, and professional involvement have increased with each passing year. As far as I know, I am the only out Black queer faculty member on my campus – one of few LGBTQ faculty in general, and one of few faculty of color in general. My classes tend to have a heavy queer, (Black) feminist, and antiracist focus. And, I make an effort to be visible on campus, hopefully letting my fellow “unicorns” on campus know they are not alone. Students’ need for me to be a teacher, mentor, and role model seems particularly great at our small, slightly diverse university.

And, then there is my intellectual activism, especially my blog, Conditionally Accepted, which I hope will expand into a bigger initiative for change in the academy. There are the symposia, conference panels, and workshops at which I have spoken about discrimination, exclusion, and health problems in academia. Though less consistently, there is work I have done to make academic research and knowledge accessible to the community. Trying to earn tenure to stay in academia, while also working to change academia, sometimes I feel as though I have two jobs – and those two jobs are typically at odds with one another, unfortunately, to the detriment to my health.

I am undeniably spread thin. Due to fear of unclear and biased tenure expectations, I do my best to exceed what I suspect that I need on the research front. (Don’t we all aim for that “slam-dunk” tenure case? And, at what cost?). I sometimes push even harder on the research front to “compensate” for my advocacy – again, owing to fear of how others’ perceive my approach to being a scholar. Despite the fears that my blogging would cost me my job, I’ve kept at it since I started my position in August 2013; I’m now the editor of an Inside Higher Ed career advice column that is read nationwide (at least among academics). I’m frequently invited to speak on campus, attend various events, facilitate discussions, and so forth. I’m flattered. But, I’m also frustrated that the campus hasn’t employed more faculty like me to share the labor. For, that’s what all of this is – work. Work that is incredibly important, and affirming, and enjoyable. But, I’m only one person!

I’m only one person. A person who has suffered from Generalized Anxiety Disorder since 2010. An academic who was traumatized by graduate school, and is now seeing a therapist to begin the recovery process. And, now I suffer from Irritable Bowel Syndrome, probably from the anxiety and trauma. And, I finally got over myself and started taking Lexapro. Health-wise, I’m a mess, or at least a work-in-progress. Why push myself so hard at work? If these were physical health problems, I would not hesitate to rest, resist demands of work, pace myself, and seek proper treatment.

Radical Reprioritizing

Recently, my perspective has changed. I have shifted toward taking the long-view. I want to be in the academy for a loooooong, long time. I’m coming for the structures and culture that allows for the exploitation of, yet lack of support for, minority scholars. I want to educate thousands of students about the social problems of the world, and what they can do to solve them. Maybe I’ll serve as a dean or provost one day; hell, maybe I’ll defy the odds and become a university president. Or, forget thinking inside of the box; maybe I’ll start my own academic justice organization, working with multiple universities rather than within just one.

With that in mind, I have realized it is time to radically reprioritize. I have identified the two most important goals for my future as an academic and intellectual activist: 1) get healthy; and, 2) earn tenure.

Self-care is my number one goal. That means making a serious effort to do the things that will promote my mental, emotional, physical, and spiritual health. I hate exercise, but it’s good for me. I can never seem to find the time to meditate, but I have to let my brain recharge just as I let my body recharge nightly. I’ll continue to limit work to 8am-5pm on weekdays (with no work on weekends, of course), with a mandatory lunch break for leisure reading, seeing friends on campus, or walking. I will continue to see my therapist, take my anti-anxiety medication, and use workbooks and private journaling to recover from the trauma and anxiety. I realize that I will be useless to everyone if I am sick and suffering or have a limited capacity for anything other survival. And, to be grim, I can’t help anyone if I die young. I deserve to be healthy and happy!

Earning tenure means lifetime job security at my current institution – an incredible privilege these days, even in the academy. It means more freedom to take chances in the classroom, in my research, and even in my advocacy. Tenure means power and access to make meaningful change on campus, in my discipline, and in the academy in general. It will also come with the responsibility to be in service to other academics, serving on various committees, mentoring junior faculty, and becoming involved in faculty governance. I find six years on the tenure-track tends to encourage junior scholars to play it safe, prioritize their own career and status over change and service, and promotes worry and mental illness. But, it is, at worst, a necessary evil to make real change.

Together, these goals help me to determine whether I can accept or take on a new invitation, initiative, or opportunity. For example, when I received a last-minute invitation to facilitate an on-campus discussion about racism scheduled for late in the evening, I quickly declined. Staying late and providing the necessary emotional energy would not have enhanced my health, and I am well aware it would do little to strengthen my case for tenure. But, I did finally agree to attend enVision – a social justice weekend retreat hosted by my campus’s Office of Common Ground; I found it incredibly affirming to interact with students outside of the traditional classroom context on these issues. Blogging doesn’t help me for tenure, per se, but it is a necessary outlet for me to vent about injustices that I and others have experienced, to build community, and advocate for change. Unfortunately, I realize there are still some things that will help for tenure that aren’t so enjoyable or health-enhancing – like networking at conferences, occasionally publishing in high-impact journals, etc. As I said, it’s a necessary evil; I can chalk it up to job security as a matter of health and my livelihood.

But, admittedly, there is also a third focus: my post-tenure future. I have heard the horror stories of post-tenure depression. Junior scholars who keep their mouths shut and their heads down find that they are lost when they raise their heads upon receiving tenure. I am beginning to work toward the career I want for myself as an Associate (and eventual Full?) Professor. Maybe my research will catch up with my passion and advocacy; that is, I could turn blogging into actual research on injustices in academia. Or, maybe my joke that Conditionally Accepted will serve as the launching pad for my academic talk show, Academic T with Denise, will actually become a reality. (I could live with just a podcast like On Being, though.) There is life after tenure; so, I’m doing what I need to to have both of those (life and tenure), but also doing the groundwork for my goals for intellectual activism post-tenure.

I am fortunate to have friends, family, and colleagues who support me in these endeavors. I realize that this is not afforded to everyone. But, I also recognize that these concerns – job security, health, and needing to make a difference – are particularly heightened for me as a Black queer person. That is, maybe I’d be stressed, but not mentally ill and medicated, if I were a white cishet man. Maybe I’d be a touch nervous about tenure, but not concerned that my work would be trivialized as “me-search” – even if I studied the lives of other privileged people. Maybe, maybe, maybe – but that is my reality (for now). I need to stick around along enough to ensure that this is not the reality of future unicorn scholars.

 

On not Writing

Erika Gisela Abad has a Ph.D. in American Studies, and works at Center for Puerto Rican Studies investigating intersectionality, cultural experience, and oral history among Puerto Rican communities and families.  In this post, Erika reflects on how her research in Puerto Rican Chicago sparks tension and memory in dialogues and debates with her mother.  

I struggle with not writing. Sitting with my mom after a long day’s work watching ridiculous TV shows on streaming media. I do this in the midst of professional uncertainty when my conscious tells me it is important to, well, send out applications. A woman struggling with the invisibility of her work, of her motherhood, closing the computer allows me to make her visible in the mundanity of the everyday to which we’ve arrived.

A mixed class Latina the second to finish college, the first PhD, I got this degree because making a living as a writer a mentor once told me, was going to be difficult. In the place many predicted the MFA would land me, I sit with my mom because of the reasons I write:

To heal, to release anger, to get to truths neither speaking nor working reveal. Drafting and talking through to forgive what moments trauma doesn’t want to let go. As I once wrote a mentor, it’s about getting to the table and trying to write what the other person coming to the table could or would look like. It’s about practicing with characters and metaphors how to listen through the trauma, whether the trauma be colonial, patriarchal or material – whether the trauma be that which has been named or that which must be kept invisible. Sometimes the struggle to survive demands struggles be kept silent. Human suffering, as inevitable as it is, often gets lost in the pursuit of fantasy as well as forgetting. Coming to the table is also about assessing whether the wheel turning revolution can be rebuilt or if the pieces of memory missing – memory missing because of what can’t yet be named – requires so many of us to rebuild it.

And sitting with my mom is about waiting, waiting for memory to reappear. And her memories awaken in the memories of others I record as an oral historian. Memories of parking lots turned into playgrounds, memories of late buses to colleges she never imagined. Memories of drinking Dr. Pepper for the first time, her comfort food, the comfort of being able to know more, taste more than poverty and patriarchy permitted to a young woman growing up where Puerto Ricans were trying to make place. These memories give her life beyond the college she never finished for no other reason than being by herself. Her stories lifting up from computer screens in a voice still weary of helping and reaching, come to life beyond the place of making meaning of leaving that requires returning, overwhelmed by isolation.

And I sit with that, when our skin color differences do not write away the sameness of racism we experience. A paleness that encourages forgetting that my brownness writes on the page, for the stage in ways that have her admit—not to me—that the fight continues. Responses to racism are coded in the traumas we share. Retorts and resistance colored by the adverse childhood experiences that divide us. Sitting is all she wants at the end of the day, at the end of days running, at the end of years climbing to find stable ground in which to root, in which to lift me, among her other children higher. My hands race and wring, legs twitch because work, all the kinds, exige movement.

And I struggle to not write in those moments: moments where the cogs in my head turn too fast for her to keep up; when the questions she asks receive huffs and stomps out looking for roads bigger than the rooms we occupy. In those moments where the grumbles she makes about the car driver who works when she doesn’t, because the car that is freedom to her and is more work to me in ways that put her back on the bus, on the train to move because her fixed time challenges the time that, for me, remains in constant question. The need for work fuels us in speeds and codes the other doesn’t understand.

It takes seconds to remember a woman speaking of a girl ashamed and strained by the laundry she carries on the bus. And I see my mom there, then, aching and taking days off to not have to, again cross the street with bags and baskets. She bought to own to never again walk or rent or borrow. She works to have the luxury, luxuries she couldn’t have back then, then when Puerto Ricans were beginning to make meaning, Puerto Ricans who form the history I collect. Her life fills up in the margins of those stories, of those whose mark on Puerto Rican Chicago get printed in newspapers, shine in their awards, appear on screens to see. Those Puerto Ricans now, in between arguments and questions, spark her to remember her story. Histories she lived differently, differently for reasons the more I learn from others, the more she reveals.

So I stretch and listen and sit still, waiting, waiting till she’s asleep to pull out the books, to open the pc, to take out the pen and paper to write. Because writing is still needed to heal, to move, to forgive, to let go, to uncover, to remember. But not writing—not writing in those moments I steal from reason, from economy—allows me to say thank you, thank you the only way a struggling writer knows how. By counting the wrinkles in her face, the sighs in her stories, knowing that, in between them, remain moments and movements to keep me writing.

Incorporating Underrepresented Populations in Teaching and Research

In this post, the Write Where It Hurts editorial team reflects on their experience advocating strategies for teaching to and about marginalized populations often left out of mainstream educational materials, research protocols, and data sets (see our recently published Teaching Sociology article on this topic here) in hopes of facilitating dialogue about the incorporation of marginalized and otherwise underrepresented populations in teaching and research.

As people who belong to, write about, teach, study, and engage in advocacy related to varied populations marginalized or otherwise often left out of mainstream education and scholarship (i.e., donor conceived people, adopted people, transgender and non-binary people, people managing chronic physical and / or mental atypical experiences, etc.), we have become intimately aware of the limitations or missing elements within much existing scientific data and educational resources. At the same time, we know all too well the structural and ideological barriers that slow alteration and revision of existing educational rituals, traditions, and structural patterns in concrete settings. As we did in our recently published Teaching Sociology article focused on strategies for inclusive teaching about gender via the use of survey data that often does not explicitly measure the gender diversity of our shared world, we would like to encourage our colleagues to consider strategies for overcoming existing structural and ideological traditions in hopes of continuing dialogue about methods for creating greater diversity and inclusivity within and beyond scholarly and educational materials.

As we note in our recent article, many data sets called “representative” and used to make far-reaching claims often do not contain and / or do not explicitly measure people like us. If, for example, Xan seeks to learn about social patterns related to donor conceived or agender people, such data sets offer no answers despite the use of such data to “represent” national or other whole populations. Likewise, if J seeks to learn about the experiences of transgender, adopted, or sexually fluid people, all ze will learn from data is that such people are not part of the representation of this society. Similarly, if Lain seeks to ascertain attitudes concerning or held by genderqueer and / or bisexual people, most data sets called “representative” will only offer a “representation” wherein such groups do not exist in any identifiable manner. Despite these “missing” populations, researchers, teachers, and advocates will often utilize these sets to make claims about, for example, families, gender, and sexualities that – we would guess unintentionally – ultimately reproduce existing power structures as well as the marginalization of the groups left out of the official representation contained in the data. In fact, we can see similar problems for other marginalized groups including but not limited to homeless people, neuro-atypical people, and multi and inter racial people despite the use of such data to make claims about housing, mental and physical health, and racial dynamics on a regular basis.

Alongside growing recognition of issues with calling limited collections of people and measurements “representative,” we have heard some advocate doing away with these data sets while establishing more inclusive and diverse forms of data collection, measurement, and sampling. Doing so, however, would require massive changes structurally, ideologically, and institutionally, which will likely take much time, debate, and discussion to accomplish. At the same time, we have heard others advocate for maintaining existing practices or rituals while seeking to explain away the limitations or problems with existing data collection, measurement, and coding practices. Doing so, however, would require accepting the ongoing marginalization and erasure of many sections of the population from official representations. In our article, we propose a middle ground between these two extremes wherein we utilize the existing limitations to illustrate important patterns, power dynamics, and structural issues in contemporary society while continuing to push for revisions in existing data collection, measurement and sampling procedures and encouraging scholars, teachers, and others to talk about such data sets in more inclusive ways within publications and classrooms.

With this information in mind, we invite dialogue, commentary and discussion on strategies for inclusive teaching with existing data limitations and issues. Whether one seeks to join this conversation on this site or in relation to our call in Teaching Sociology or in any other space, we invite and appreciate other educators’ perspectives on these matters. To this end, ask yourself what do we say to unrepresented populations when we call data sources devoid of their presence or measurement representative of our world? What institutional and structural steps might we need to take to make our data sources and educational materials more inclusive of marginalized, underrepresented, and otherwise “missing” populations? Why do we push so hard for generalizations instead of seeking to empirically map the complexities, nuances, and diversity of our shared world, and is this pursuit of “representative” or “generalizable” claims worth the potential negative effects such practices may have on marginalized populations? While we will not pretend to have some “right” or “absolute” answers to these questions, our experiences to date within and beyond classrooms tell us these questions might be incredibly important and useful in many ways. Thus, we encourage members of our intellectual and activist communities to engage openly in these (admittedly challenging) conversations in order to move us closer to truly understanding the complexities of our social world and challenging the inequalities that exist within it.

The Transgender Religion Survey

In this post, J. Sumerau discusses the motivations, contents, and goals of a survey effort seeking to document and amplify the voices of sex and gender groups typically missing from social scientific surveys about religion and nonreligion in American society.

In the past few years, contemporary religious and nonreligious commentators have begun to issue formal and informal statements concerning sex and gender diversity. As transgender women and men, intersex people, non-binary people, agender people, genderqueer people, and other groups of people who do not fit neatly into “male/female” and / or “woman/man” sex and gender binaries gain more recognition in American society and continue to fight for equal rights and representation in this country, some of the largest religious traditions in the country – including but not limited to the Southern Baptist Convention, the Church of Jesus Christ of Latter-day Saints, and the Catholic Church – have started issuing official statements about these groups of people. While some of these statements have been positive (such as the recent changes occurring within Reform Judaism to incorporate greater recognition of sex and gender diversity), many of them have been negative (such as the Southern Baptist Convention denouncing transgender, intersex, and non-binary existence).

At the same time, debates have emerged (especially online) within nonreligious communities about these populations and their place in American society. Like their religious counterparts, some of these examples have included positive depictions of such communities and calls for greater recognition, inclusion, and support of sex and gender diversity in America. However, some other nonreligious leaders and lay people have taken the opposite side while adopting and repeating negative stereotypes and condemnations of these communities. If the historical experiences of various marginalized people and communities offer any clues to these patterns, one may assume that religious and nonreligious statements about sex and gender diversity will only increase, that such statements may have far ranging effects on policy, politics, and the everyday experiences of many people, and that politicians (as presidential candidate Marco Rubio did earlier this week) may seize on these statements to justify opposition to equal rights for all people regardless of sex and gender status, identification, and experience.

As we watched these patterns unfold over the last couple of years while doing research and teaching concerning sex and gender groups and statuses often missing from traditional research agendas, measurement strategies, and protocols, some supportive colleagues and I became interested in what sex and gender groups typically missing from existing surveys might say about these patterns, the statements religious and nonreligious people made about sex and gender diversity, and their own religious and nonreligious experiences. To begin exploring this question, I began explicitly asking transgender, intersex, and non-binary people I encountered at various events for their opinions on these topics, for advice about incorporating these opinions and experiences into scholarship, and for advice concerning the best way to create a questionnaire or survey capable of capturing such opinions for scholarly dissemination and publication. While I initially only went to events and meetings I already attended occasionally or was already acquainted with, I gradually began to find and attend other meetings and events in hopes of gathering the most diverse array of advice, opinions, and suggestions I could. Specifically, I sought out people in each of these groups who experienced life in varied racial, class, regional, community, and political contexts in hopes of developing a study that could be as inclusive as possible of the immense variation contained within any common sex and gender status, group, or community categories.

Overall, the lesson I learned from all these informal inquiries was that if anything characterized the groups experiences of and opinions about religion and nonreligion it was diversity. People in each group agreed about many things, disagreed about many other things, and accomplished both of these options from question to question at times. As a result, I decided to fashion a survey that would allow people to self-identify and self-define their selves, experiences, and attitudes concerning religion, nonreligion, and other elements of American society. With this goal in mind, I turned to a supportive colleague with extensive experience designing surveys, and we further recruited another colleague who did their master’s work on sex and gender diversity and worked with us on other pieces on these issues related to religion. The three of us developed survey questions that allowed for a lot of variation in terms of responses, and then I took these questions back to people I had consulted previously to evaluate our efforts.

Over time, this process of construction and revision led to a survey instrument wherein respondents who choose to participate may define themselves (via multiple options or written in their own words; for example the gender identification question has 17 multiple choice options and an open-ended other response respondents may write in) in varied ways on every single variable, discuss their experiences and attitudes in their own words via open-ended options tied to questions about religion, nonreligion, and other social institutions and categories (for example, rather than assuming an experience with sex status, there is an open-ended question where respondents can share and define such experience in their own words), and wherein respondents may answer questions commonly offered on other religion and nonreligion surveys that generally do not have sex and gender measurements or only allow male/female or man/woman options for sex and / or gender.

Recently, we launched this survey online, and we are currently in the process of recruiting and gathering respondents through social media, conversations with national organizations, and through word of mouth in various communities. With recruitment under way, I wanted to use this space to discuss the details of the survey for anyone who may be considering participation. Simply put, the survey is a combination of multiple choice and open ended questions focused on religion, nonreligion, and other social institutions in contemporary America. Anyone who participates will have the opportunity to self define (either through the selection of one of many options provided in the survey or by writing in their own self identification in their own words) their own gender, sex, sexuality, race, education, income, religious or nonreligious affiliation, year of birth, state or region of residence, employment status, healthcare access, and political views. Respondents will also encounter a series of questions ascertaining religious, nonreligious, and other social experiences, attitudes, opinions, and beliefs (most of these also include open ended options for response and / or elaboration). Rather than assuming anything about the populations eligible for this study, we have specifically designed the survey itself to allow people to identify in their own ways, and discuss their own opinions, experiences, attitudes and beliefs.

Since our goal here is to document and amplify the experiences and opinions of sex and gender populations typically left out of surveys concerning religion, nonreligion, and other social institutions, anyone who identifies or exists in ways that do not fit neatly into “male/female” and / or “man/woman” binaries is eligible for participation in this study. As such, the focus of this survey rests upon comparing and contrasting the variation, diversity and complexity of sex and gender groups typically missing from previous surveys concerning religion, nonreligion, and other aspects of social life.

As part of contemporary institutional research processes, we developed a shorthand  label for describing and explaining the project to audiences and reviewers beyond the target population. After consulting with various members of different sex and / or gender groups, we decided to name the project the Transgender Religion Survey for official purposes because this option received the most support from members of these various social groups.

Especially considering that many sex and gender groups do not necessarily use or identify with the term “transgender” and many spiritual, nonreligious, and even some religious people do not necessarily use or identify with the term “religion,” we recognize that this name is not perfect and understand the perspectives of people who might prefer other names or not use or identify with these terms in daily life. However, for the purposes of this study and following the lead of some other large scale efforts to incorporate sex and gender groups often marginalized and erased in contemporary American society, we use transgender in the official survey documentation as a broad umbrella term for anyone who does not fit neatly into societal assumptions about binary sex and / or gender status, identification, expression, and / or display. Likewise, for the purposes of this study religion is defined as of or having to do with assumptions, beliefs, and practices regarding the supernatural.

While many people who fit within the broad definitions noted above identify in a wide variety of ways, shift and change language and identification terms and definitions over time in varied ways, and have very distinct experiences, beliefs and characteristics, we selected these terms as broad descriptors for the overall effort. Within the survey itself, respondents will define themselves in terms of sex, gender, and religion, and our analyses and use of this data will be built upon the ways people self identify and describe themselves, the variations and distinct experiences shared by the varied populations, and the representations respondents select for their distinct lives, groups, and experiences with religion, nonreligion, and other social phenomena. Rather than attempting to pick a definition for this or that group, we thus allow people to define themselves, and we will utilize their self definitions to compare and contrast variation among sex and gender groups concerning religion, nonreligion, and other elements of contemporary American society.

As a result, this project does not seek to define the characteristics of specific groups (i.e., what is transgender, what is Christian, what is atheist, what is intersex, etc.). There are many talented and capable activists and scholars engaged in such work at present, but in this case we will utilize the definitions and terms selected and discussed by the respondents themselves. Our goal is thus to compliment the work of sex and gender activists and scholars by incorporating the voices of sex and gender groups typically missing from other surveys into other areas of contemporary scholarship.

In closing, I encourage all eligible people (i.e., anyone who identifies or exists in ways that do not fit neatly into “male/female” and / or “man/woman” binaries) to consider participating in this study. While I hope for the day when all sex and gender groups are regularly recognized, included, and represented in scholarly efforts, I am reminded of how far we have to go to reach this goal every year when I encounter students that learn of many sex and gender groups for the first time in my classes. With this survey effort, we seek to continue and compliment ongoing efforts to increase the awareness and recognition of sex and gender diversity in contemporary society by documenting some ways varied sex and gender groups experience and think about religion and nonreligion.

For more information, official survey documentation noted above, and / or to participate in the study, please visit: http://researchsurveyor.com/surveys/index.php?r=survey%2Findex&sid=568681&lang=en

Comprehensive Exams are a Glorified Hazing Ritual

 

The following anonymous guest post is by a doctoral candidate at a public research university in the United States.  In this post, he discusses experience with comprehensive exams often required for doctoral study, and the ways such exams mirror hazing patterns in other institutions and groups.  

As many graduate students know, comprehensive exams (sometimes also called preliminary exams, qualifying exams, prelims, comps, etc.) are often part of the grad school process. I’m sure I’m not the only person who heard horror stories about such tests from senior graduate students and faculty alike from the earliest days of grad school. The stories from graduate students went something like this:

 

“Oh my GOD. The semester you take the test is the worst semester of your life.”

“Get ready to hate everything when you take them.”

“I mean, people have failed before. It’s been documented.”

“Jeez, I don’t even remember half the stuff from the test, but make sure you know the stuff for the exam.”

“They’re so hard. The worst. Ugh I hate them.”

“Take them seriously or else you’ll have to take them again.”

 

From faculty:

 

“You will seriously need to study. Plan on doing nothing else the semester you take them.”

“Your exams are what first demonstrate that you are going to be a scholar in (area X) of (discipline Y). So you need to take them seriously.”

“You need to remember everything from the readings. Yes everything.”

“People have failed them before.”

“Take them seriously or else you’ll have to take them again.”

 

Now, in my particular situation the students were assigned or selected a certain number of texts to read in order to reflect their expertise in a specific area of the discipline. Then over the course of many hours (sometimes in one day, sometimes in two) they sat in a specified room and typed our responses. Faculty then assessed our responses and assigned a score.  Then, we learned our score, but never saw the test again.

For me, as someone who struggles with anxiety, hearing all of this before taking my exams was extremely disconcerting. As I listened to my colleagues and faculty gush about the horror of the tests I started to wonder why we even do them anymore. Over and over again I heard graduate students and faculty alike reinforcing the notion that the tests need to be taken seriously, that they’re intimidating, horrifying, traumatizing even.

In the midst of all this advice, multiple graduate students repeatedly told me that no one ever asked them about the test in the months/years after completing them, so “just get through it and move on”. Each person I talked to portrayed their method of studying as the way to study for these tests. People shared their “survival strategies” with me in what seemed like an effort to soften the blow of this supposedly horrendous process.

When it came time for me to start studying, I kept all these things in mind: the terror of the test, the embarrassment that would come if I didn’t pass, the stress of being a slow reader trying to get through thousands of pages of texts. I woke up in the middle of the night in a fit of anxiety more than once. It seemed my colleagues were right: comprehensive exams are terrible.

“But why?” I wondered to myself. “Why do they have to be terrible if this thing is just a valorized essay test that no one will ever ask me about ever again in my life once it’s over?” it was during this reflection that I realized that all comprehensive exams really are is a glorified hazing process for graduate students.

And I get it, if you think about it as a hazing process it all makes sense:

The tests are framed as the thing that will make you an expert in a field. This framing reinforces the notion that they are not only important, but that if we all really want to be experts then we need to do really well on them. In reality, a completed dissertation or set of publications is more likely to reflect your expertise in a given area, but pointing this out might undermine the ritual of comprehensive exams.

The tests are vaguely framed as scary and something we need to take seriously, even though most people pass, most programs allow you to take them more than once, and no one will ever ask you about them ever again. This fits the guidelines of a hazing ritual perfectly. If we aren’t repetitively told that the tests are scary then maybe we would see them for what they really are: timed essays shrouded in hype. Also, if students are scared into (over) studying for the test, then faculty can say “you must not have studied hard enough” in the face of someone who does fail. In this framework, failing the test becomes a personal failure, instead of a problem with the structure of the examination, and the structure of academia more broadly. Namely how the structure itself is specifically disadvantageous to neuro-atypical, racial/class/gender/sexual minority students who have been told over and over that we aren’t good enough, will never be good enough, and can’t succeed.

“Surviving” makes you one of the team, and then you get to tell future generations how awful the process is. This makes me think of a friend of mine who was involved in Greek life during his time in undergrad. A few years before he pledged his fraternity, their chapter got in trouble for hazing. As a result, they were under serious surveillance from the national office of their fraternity. The brothers who were seniors during his freshman year were the last pledge class to get hazed and were extremely bitter that the incoming class didn’t have to navigate the same emotionally stressful, degrading, “bonding” activities that they did. To these older brothers the initiation of my friend’s pledge class cheapened the meaning of brotherhood.

Comprehensive exams, as they exist now in many programs, operate in effectively the same way: Faculty and senior graduate students who made it through this format get to maintain boundaries between “them” and “us”, those who are “in” on the knowledge and those who are “out.” They do this by engaging in the same, ritualistic scare tactics that they experienced before they made it through the process, and in so doing justify and reinforce the meaning of their own experiences with the hazing process. Otherwise something that they spent a significant portion of their time in graduate school worrying about might be rendered meaningless.

Once you pass them, they don’t really matter. I took my comprehensive exams. I passed. And I’ve never been asked about them since (with the exception of other nervous graduate students who will take them in the future).

Now, to be fair, I learned a lot while studying for the tests, and it was not a total loss. I also understand the argument that we need to have something in place to make sure that people who are getting PhDs are truly experts in a field. I agree, I’m just not convinced that this format of evaluation is it. I also know that not all programs use this format, in fact some of them have (what I think) are much more useful evaluation methods.

For example, in an academic context where publishing is becoming increasingly more important, why not have students review a specific body of theoretical literature, craft a paper that makes a new theoretical contribution, and then submit it for publication? This format allows students to get the experience of reading broadly and deeply across a field, and the written result of all that work isn’t thrown into a vault where their ideas just waste away. Students could also do an archival research project of all the literature in one or two journals that relate directly to their dissertation topic and give an oral or written (but not timed) defense of that literature. Doing this could help students expedite their dissertation proposals and would give them a wide and deep understanding of their disciplinary sub-field/ fields.

I don’t expect changes to the current format overnight. So while what I mention above are just two potential alternatives to this format, I would like to share some thoughts for students who may be getting ready to take comprehensive exams that look like the ones I took:

Do take them seriously, but remember that they are not the end of the world. Yes, these tests do determine when/if you get to move on in the program, but they are not the be all and end all of your worth as a scholar or a human being.

If your program allows you to take comprehensive exams more than once, think about the first time you take them as a practice round. This is easier said than done, especially when the implicit knowledge around one’s department might be that failing is shameful. However, if you can do this it helps put them in perspective – just think, if you have to take them again at least you will know what you’re getting into. Also, you can spend the semester(s) between the first and second time taking them as a chance to work on your dissertation proposal, and then defend your proposal immediately after you (in all likelihood) pass them the next time.

Hey, senior graduate students and faculty, stop treating failing like its shameful. If you passed, good for you, but just because someone doesn’t pass their first time (or ever) doesn’t lessen their value. Help shrink this as a departmental (and academy-wide) norm. Yes, there might be people who fail because they didn’t study, but it can often be significantly more complicated that that. Again, minority scholars specifically are told their whole lives how likely we are to fail at any time. Instead of reinforcing this logic, work to create an environment where students can do better the next time.

Develop your own studying method(s). In the months leading up to comprehensive exams you will likely be inundated with advice on the best study methods. Really, the best method is whatever works for you. Maybe you audio record conversations you have with yourself about the readings, maybe you make flashcards. You could be someone that needs to structure every hour of their day, or a person to whom that degree of structure feels suffocating. Perhaps you discuss the readings with a study buddy over drinks or coffee, or conversely, you might like to study more solitarily. These and dozens of other methods exist – trust yourself to figure out the one that works best for you and run with it.

Don’t lose yourself. Take some evenings off and hang out with friends (or not), allow yourself to watch Netflix between a reading or two, take a long walk and listen to music – whatever feels like a relaxing activity to you, don’t be afraid to do it. In all likelihood that one evening, or one episode of Breaking Bad won’t make or break your experience with comprehensive exams.

All in all, we could seriously use a critical examination of the pedagogical reason these tests exist in this fashion. For now, though, hopefully this framing will help bring the process back down to earth for folks who will be managing this ritual in the future.

Beyond White Canes: Translating Experiential Learning into Student Support

Building on last week’s post, this week Xan Nowakowski explores importance of supporting and including students with different functional and ability statuses in our research and teaching.  

In my last post honoring White Cane Day, I shared some experiences from my childhood and adolescence that helped me to think about how people with blindness and visual impairment may experience life, as well as the broader importance of taking a proactive approach to accommodating students with disabilities. Today I’ll be sharing a story from early in my teaching career that highlights prejudices and misconceptions students with visual functioning differences often face, ways to address and remove those barriers, and benefits of creating inclusive environments for learning.

I got interested in issues of functioning and accommodation from a young age because my mother, a neuroscientist with multiple forms of visual impairment, helped me to learn about disability both within and outside of educational settings. My own experiences with loss of physical functioning later in life also contributed to this learning, and to my ability to put thinking into practice. These experiences also helped me to understand the rights and responsibilities outlined for students and educators in the Americans with Disabilities Act, first and foremost the idea that people are entitled to “reasonable accommodations”.

So when a graduate student I had just spent 10 minutes on the phone with about participating in a research project sounded hesitant and nervous the whole time we were on the phone, and then said “there’s something else I need to tell you” in a hesitant tone after I expressed enthusiasm for working with them, I certainly didn’t expect the next words out of their mouth to be “I’m blind”. I hadn’t assumed that they could or couldn’t see—this was the first time I’d ever spoken with them—but blindness didn’t seem like a reason to worry that they wouldn’t get the opportunity to participate in research. One of the best scientists I knew had significant vision impairment, and they worked in a highly visual field of study! I had friends with no light perception at all who were engineers, computer scientists, teachers, lawyers, artists, and so much more.

I stayed silent, waiting for the rest, waiting for them to tell me why their blindness might be a barrier to participating in my project that couldn’t be addressed through accommodations, turning the question over in my mind and coming up with nothing. Finally I said, “Okay…I’m sorry for sounding so obtuse here, but why would that impact my decision about working with you?” The silence that followed seemed to stretch on forever before they said “You don’t see that as an issue? I mean, I can’t see *at all*. I have no light perception.”

I didn’t want to dismiss their read on the situation, so I tried to affirm their concerns while also assuring them that they’d be fully accommodated and included. “No. Should I? I’m thinking about what kinds of challenges here could prevent you from participating, and I just don’t know how we wouldn’t be able to work around each one. If you need transportation, that’s easy—you can just ride with me when we go out into the field. If you need assistive technology that you don’t have already, I’ll get it for you or partner you with another student who can do the looking while you do the talking. If you need directions on how to do things that don’t require visual input, I’ll give them to you. And if I screw up any of this, you can be blunt with me about that and I’ll make any needed adjustments.”

My student sounded a little gobsmacked, but accepted my invitation for them and their guide dog to meet with me at my office and get started on the project. I then sent them an email with detailed directions using non-visual landmarks to help them navigate my office building—things like how many paces it takes me to get from the main door to the hallway from my office, when they’d hear a water fountain running, when they’d feel a vent blowing on their face, what the carpeting near my office would feel like beneath their feet. They showed up early, accompanied by a black Labrador Retriever who curled up at my feet while my student and I talked. We went over the key activities for the project, and talked through how we’d approach each one. They showed me their Braille translator, and all the features they liked to use on their computer to read screens and create documents. To this day, I have yet to work with a student who creates clearer or more concise PowerPoint presentations.

My student explained to me that this was a new experience for them—to have a professor show enthusiasm for working with a blind student. This troubled me deeply, and I asked them to promise that if they ever felt even a bit marginalized while working with me, they’d tell me. “If you’re left out in any way,” I stressed, “that’s my problem, not yours, and I have to take responsibility for it. It’s my job to think about what an educational experience is going to be like for you and plan accordingly.” They shook their head. “That’s just it,” they said. “You’re never going to make me feel left out. I already know that. You’re different. It’s like…well, those directions you gave me. It’s like you know how the world feels to me.” Then they paused. “Is that because you have visual impairments too?”

I thought about that for a moment. “No,” I said. “But my mother does. She’s a scientist who built her career on doing incredibly precise and detailed visual tracing of cells in the developing brain. She perceives light, and she uses some different technology than you do, but I learned enough from her to use my imagination. It’s not that hard to close my eyes and think about the input I’m getting from my other senses. And while I don’t have vision limitations myself, I’m losing function in my hands because of an autoimmune disease.” I asked if I could shake their hand, felt them flinch at the icy quality of my skin. “Cold, right? I don’t have much circulation in my fingers. Sometimes they won’t grip and sometimes they freeze up so I can’t use them at all. So I know what it’s like to have a disability and feel terrified that you won’t be able to finish school because of it.”

This seemed to put my student totally at ease, and we got down to real talk about our health conditions and the journeys we’ve taken to manage them. My student showed me one of their glass eyes, painted to exacting perfection. They told me about some of the absurd stereotypes about blindness they had encountered on campus. I thought the strangest one was the anger people had shown when my student wasn’t using a cane to navigate the sidewalks, as if it were their responsibility to wear a sign announcing to the world that they had no light perception. “I’m not about the cane. I have one, but I don’t use it much. Things are so much easier with my dog, so I bring her anywhere I can. And sometimes I just use my hands to navigate. It really depends on the situation and how I feel that day.”

We went over the survey quickly, and agreed to meet up at the formal training for student assistants in a couple of weeks. Having a non-sighted student participate in the project turned out to be a huge win for our team, as well as for their own confidence about what they could accomplish with their graduate degree. Other students didn’t miss a beat, making sure that walking paths in the classroom were clear while also not pushing any assistance that wasn’t desired. My student came prepared with Braille versions of each survey and showed them to the other research assistants. Partnering up wasn’t necessary when the time came to do data collection—we arranged piles of the two surveys at 9 o’clock and 3 o’clock at my student’s station, and they used their Braille versions to read the surveys to anyone who requested help.

My student took the lead on developing presentations to share our data with the community. We’d been learning all summer about health challenges in Havana, a small town north of Tallahassee, and my student excelled in putting all of the data together in a community-friendly PowerPoint. They worked with our other graduate student, who had more quantitative training but did not enjoy qualitative analysis or making presentations nearly as much, to get some statistics for the slides. Both students were invited to speak to the community, but only one accepted—my sighted student hadn’t found their comfort zone yet with public speaking, so I let them take the lead on writing a research report instead while we went out and talked to area residents.

At the meetings, participants were enthralled by the Braille notes my student used to present our results and get feedback from the group. Several people mentioned that it made them feel more comfortable talking about their own health challenges to meet researchers with different functional limitations and chronic conditions. What was a disability in a technical sense became an opportunity in a social one—an indication that people could speak openly about their own experiences without shame or judgment. I had seen this time and again in my own work, but my student said it was a first for them. “It had better not be the last,” I noted. “Your professors and employers have a responsibility to accommodate you for any task that you can safely do.”

It has been a few years since this particular student studied on campus, with or without a white cane. But we have many other students with different types of visual impairments, all of whom go about navigating the campus a bit differently. If you’ve met one person with vision challenges, you’ve met that one person, and you probably met them under a specific set of circumstances where they approached tasks a certain way. Maybe you didn’t know what the world looked like to them, or if it looked like anything at all. But if you asked yourself that question, and really took the time to think about the answer, you performed the most basic task of accommodation and inclusion. As more evidence of that sort of thinking appears on our campus each year, we all have new opportunities to take that thinking to a higher level, and ask ourselves what we can do better in the future.

White Canes and Black Coffee: Reflections on Different Ways of Seeing the World

In this post, Xan Nowakowski discusses the importance of White Cane Day and accommodations for students and scholars with different levels of visual functioning.  

I walked into my office smiling last Thursday because change was in the air. It was White Cane Day, and this year our campus was decked out with materials to promote awareness and accommodation for blindness and visual impairment. I smiled because I’d never seen so much activity here for White Cane Day before, and it made me think about other positive changes I’ve been noticing lately to make the campus more accessible for people with limited sight. We’ve installed accessible pedestrian signals that chirp assertively when someone gets near a construction fence or crosswalk. We’ve increased the size and prominence of trigger plates for automated doors, and on some of the signs for classrooms and conference rooms that use Braille text. Hopefully these improvements are signs of good things to come.

Visual functioning has been on my mind a lot since I was very young. Despite having a lot of other challenges with physical health, I have always had strong eyesight. Even during times where my vision was affected by severely low potassium levels or side effects from medications, I was always able to see more than well enough to navigate different physical environments, drive a car, and read written text. But I grew up thinking about accommodations because of what I learned to do for others in my life, beginning at home.

My mother is one of over 85 percent of people with significant visual impairment who have few challenges with light perception. By contrast, only between 10 and 15 percent of people who score as “blind” on current clinical assessments have no light perception. I learned over time that when my mother said that she was “blind without glasses”, she didn’t mean that she couldn’t see at all. Rather, she could see a sort of “big picture” of the world with no details, either up close or at distance.

I watched my mom use adaptive techniques and technologies to complete every task she’d set for herself during the day to her exacting standards. Mom is a developmental neuroscientist by training, and spent about 30 years doing laboratory research and intensive neuroscience education before shifting her focus more prominently to teaching, course leadership, and curriculum development. When I was little, she’d fiddle with her top-quality Zeiss microscope to get a tiny section of mouse brain perfectly into focus. Then she’d trace cells onto white paper in red and blue pencil, marking the path of the ones she and my father were tracking as the brain continued to develop.

I always wondered how she achieved that level of precision in her work—how anyone would. And as my autoimmune disease slowly destroyed nerves and blood vessels in my hands, and my ability to use pens and pencils for more than quick tasks along with them, I was hit with the sharp realization that I couldn’t have done her job without the aid of a modern computer. Other things, I could have done more easily. My mother is notorious for making beautifully detailed and labeled slides for her students, which she builds by getting her screens adjusted just right so she can see the text clearly at close range. It’s a simple accommodation that a lot of people make, and that technology has made much more available to people throughout the world.

Mom’s attention to detail is razor-sharp even moments after she wakes from sleep—always has been. It’s what made her a technical wizard in the lab when she first got her start as a scientist. I’d watch her measure scoops of coffee for the percolator, each one perfectly level and symmetrical.   Sometimes she’d tease me for asking her about something visual early in the morning, before she had her trifocal glasses on. Her jokes helped me learn that what seems like a perfectly reasonable question to a person without visual impairment can seem totally absurd to someone whose vision functions differently. The fact that she could measure out coffee to the grain didn’t mean I could just expect her to process new visual information without the right glasses.

As I got older, I met many other people with varying degrees of visual impairment. From a colleague with Down syndrome, I learned that often what prevents people with this condition from living alone is not cognitive functioning challenges, but rather visual impairments that make getting a driver’s license impossible under current law. From a friend with glaucoma, I learned about smartphone apps that make it easy to read and write on a small device. From a friend with Duane syndrome, I learned about different types of special lenses that help to strengthen muscles that support the eye.

I kept learning from my mother, too—when the retina detached in her “bad eye”, when the macula puckered in her “good” one, when the cataracts started to grow from multiple surgeries. Then she had the larger cataract from her former “good” eye removed and we started playing a game called “Camera 1, Camera 2” where she’d close one eye and then the other to make the world appear in white or yellow tones. It felt okay to laugh in those moments. After all, this surgery was the first to improve Mom’s visual functioning, and she actually had to return to wearing an old pair of glasses with a weaker prescription.

Just from watching and listening to my mother over the years, I learned a lot about how people with different types of functional limitations complete tasks and solve problems. I also learned a tremendous amount about how to start constructive discussions surrounding ability and disability, and create inclusive environments for learning. Mom won several awards over the years for her work in medical education, and her office was constantly filled with students seeking help negotiating challenges in the classroom. She’d share some of these stories with me, never naming any names but making sure I understood the basics of each case.

Always the educator, my mother would ask me how I’d handle accommodations for that student if I were teaching the class. We’d talk about all of the different intersecting issues in providing reasonable and helpful accommodations: fairness to students with accommodations as well as other students, responsibilities of professors versus those of students, current laws and school policies about accommodations, social responses to people with disabilities, and much more. I didn’t know it at the time, but the education I received from my mom about disability and accommodation would become a very important resource for my own teaching activities later in life. Indeed, it would become a cornerstone of my approach to student engagement. In my next post, I’ll discuss some of the ways in which these early-life experiences have helped me create opportunities and remove barriers for students with blindness and visual impairment.

There’s No Manual for This: Surviving Rape Apologists in the Classroom

The following anonymous guest post is by a sociology instructor at a public university in the United States. In this post, she reflects on experiences confronting trauma and rape apologists in the evaluation of student assignments.

When I began graduate training, I was inundated with advice about how to survive in my chosen profession. Specifically, I received tips on teaching – how to grade papers efficiently, how to foster a meaningful class discussion, how to have boundaries with students regarding grade contestations and office hours while also creating a safe space for learning. I was told to try and grade students’ work as uniformly and objectively as possible. I value all of this advice, yet I was left unprepared for what would happen in the future when I taught a gender class.

It was the middle of the semester and we were covering rape culture. As any Feminist instructor who has ever taught about rape culture probably knows, covering this topic is challenging for a multitude of reasons. Sometimes we encounter students who realize that they’ve been raped who come to office hours looking for resources. Other times, students learn that they’ve actually committed rape, and struggle to reconcile this with their images of themselves as “good people” and “not one of those (usually) guys.” And many Feminist instructors, especially those who are women, know all too well what it’s like to navigate the “mansplaining” of a few of the men in the class who would like to ardently deny that rape culture exists. Such students may make claims including but not limited to the following:

In response to discussions about the fact that what a woman is wearing does not give someone license to rape her, nor does the rate of rapes have anything to do with clothing choice: “but don’t you think what she was wearing is at least a little important?”

In response to conversations about the structural barriers to reporting rapes, and the estimated number of rapes that go unreported: “But why wouldn’t she report it? It’s kind of on her.”

In response to demonstrating the staggeringly low rates of “false reports” in contrast with the alarmingly high concern lawmakers, the media, and the general public seem to have with this artificial trend: “How do you know that it’s really rape?”

In response to pointing out that someone is incapable of consenting if they’re intoxicated:  “Well don’t you think she should have been more aware of her surroundings? Less drunk? It’s kind of her fault.”

In response to the fact that we live in a society that valorizes men’s violence against and dominance over women: “Boys will be boys.”

Every so often, however, male students may present a reasonable shortcoming of the prevailing rape culture rhetoric, such as “Why don’t we talk about when men experience rape? How can we make space for that dialogue without pushing aside women’s experiences with rape and systemic inequality.”

This is a valid question, and the inquiry is on point. We need to make space for men (as well as non-binary people) to share their experiences with rape since the foreclosure of such space stems from the very same mechanisms of inequality reproduction that facilitate rape culture in the first place.

When I encountered a paper that began with this question in my gender class, I hoped the student would take the paper in that direction.

He started by citing a media example of a case where a woman on a college campus raped a man, and how poorly the campus responded. However, I first felt a twinge in my spine when I looked up the source of his story and traced it back to a Men’s Rights Advocacy (MRA) group. “Okay,” I thought to myself, “students use terrible sources all the time, often because they might not have the skills to distinguish journalism from something like an MRA group. I’ll give him the benefit of the doubt here and make a note of it for the next paper.”

Unfortunately, his “argument” quickly devolved into a tirade claiming – since he presented ONE case where a man was raped by a woman – Feminism is pointless and women are complaining too much about “their problems.” He wrote that men and women experience rape culture in exactly the same way, and claimed talking about gender inequality was just an effort to make men look bad. He said that women brought these things upon themselves by making people, and specifically men, angry and annoyed via conversations about Feminism and rape culture. He did not even feign a presentation of data to back up his argument after the initial example, but rather, he simply ranted against Feminism, women, and open discussions about the sexual violence women regularly experience.

As I went over his paper, I realized that I was reading a paper that sounded word for word like something my rapist would say. And not only did this sound like something my rapist would say, this student fit the same demographic profile as the man who raped me – White, college male, between the ages of 18-22.

I got up from my desk and went for a walk. I couldn’t concentrate. I had plans to read a book later that afternoon, which were shattered by being thrown back into a pit of traumatic, fragmented memories by this student’s paper. I was furious at the fact that, as an instructor, I was expected to take his paper seriously, and scared of what he might do if he didn’t like his grade. Although I knew it was unlikely that this student would literally try to rape me, his words felt so familiar that I began having trouble distinguishing him from the man that did. Their words were so frighteningly similar that the “rational instructor” side of my brain could not overpower the “trauma survivor” part of my brain.

None of my training or experience prepared me for something like this, not even advice from the few Feminist scholars I have had the pleasure of knowing. I was in a position where I had to take this student’s words seriously, evaluate their merit, and provide a percentile score based on how well I thought they fit the parameters of the assignment.

“ZERO! YOU GET A FUCKING ZERO” I literally screamed at my computer screen. I decided that I wasn’t ready to return to grading papers yet so I got up and went for another walk.

I felt irritated that in two pages of (poorly written) ranting this student was able to undercut whatever authority I thought I had as an instructor. Authority that, especially as a female instructor, I worked hard to establish and maintain. I imagined him sitting on the other side of his computer screen laughing at my pain, joking about my distress. I imagined him being friends with my rapist (though the man who raped me is now significantly older than this student, he is frozen in the 18-22 age bracket in my mind). How, I wondered, could I possibly evaluate this student’s work in an “unbiased” fashion? Such a request would involve me living an entirely different life than the one that I’ve had.

I returned to my computer late that night. I pulled up his paper, took a deep breath, and began to read it again. No one ever advised me about how to grade a paper that sounds like something my rapist would say, so I suppose I will have to train myself. After all, I am certain that I am not the only instructor to have to navigate this dynamic, and I’m sure this won’t be the last time I have to navigate it.